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Gaber, S. N., Mattsson, E., Klarare, A., Dawes, J. & Rapaport, P. (2025). An Intersectional Perspective on Digital health: Longitudinal Narratives and Observations with Older and Middle-Aged Women Experiencing Homelessness. The Gerontologist
Open this publication in new window or tab >>An Intersectional Perspective on Digital health: Longitudinal Narratives and Observations with Older and Middle-Aged Women Experiencing Homelessness
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2025 (English)In: The Gerontologist, ISSN 0016-9013, E-ISSN 1758-5341Article in journal (Refereed) Epub ahead of print
Abstract [en]

Background and Objectives: People experiencing homelessness and older people experience barriers as health and social care services are increasingly delivered online, however, there is limited knowledge about how this relates to older and middle-aged women experiencing homelessness, especially those from minoritized and/or migrant communities. We aimed to explore how technology, including digital health, can help or hinder older and middle-aged women to navigate paths through and out of homelessness.

Research Design and Methods: This 16-month qualitative longitudinal study utilized narrative interviews and participant observations with seven older and two middle-aged women experiencing homelessness, in London, England. Additionally, we observed interactions between the women experiencing homelessness and two information and communications technology class facilitators. We collected and analyzed data using a narrative, interpretative approach. An advisory board of women with lived experiences of homelessness supported the interpretation of findings and development of practice and policy recommendations.

Results: We present our findings as three composite narrative vignettes co-constructed with the participants: (1) “No, I’m not taking this telephone appointment”; (2) “Technology doesn’t judge you”; and (3) “You have to be a digital person now”. The findings illuminate determinants of digital health equity related to aging, gender, and migration status among older and middle-aged women experiencing homelessness.

Discussion and Implications: Using an intersectional lens, we provide recommendations about how to better align digital health to the needs of older and middle-aged women experiencing homelessness. The findings will inform intervention development.

Keywords
Women’s health, Digital divide, eHealth, Homeless, Qualitative research
National Category
Social Work Nursing
Research subject
Människan i välfärdssamhället, Vårdvetenskap
Identifiers
urn:nbn:se:esh:diva-11279 (URN)10.1093/geront/gnaf021 (DOI)39869439 (PubMedID)
Note

In collaboration with: Women Advisory Board for Inclusion Health. Ersta Möjlighet, Stockholm, Sweden.

Available from: 2025-02-11 Created: 2025-02-11 Last updated: 2025-02-11Bibliographically approved
Vamstad, J., Klarare, A., Agius, J. & Mattsson, E. (2025). Seeking public assistance to escape violence: A study on relocation co-created with women with lived experience of homelessness. International Review of Sociology, 1-17
Open this publication in new window or tab >>Seeking public assistance to escape violence: A study on relocation co-created with women with lived experience of homelessness
2025 (English)In: International Review of Sociology, ISSN 0390-6701, E-ISSN 1469-9273, p. 1-17Article in journal (Refereed) Epub ahead of print
Abstract [en]

Why are so few women given public assistance to relocate away from violence? This article will try to answer this question using findings from a study co-created by women with lived experiences and academic researchers. Public assistance for this group is, in Sweden, a right granted by the national Social Services Act, but a significant proportion of women in need of it do not receive it. A survey of local social services reveals a pattern of chance, low priorities, and lack of awareness of this group within the public administration. The pattern is the same for women with children, in spite of their additional legal protection.

Keywords
Discretion, Public administration, Relocation, Social services, Violence
National Category
Social Work
Identifiers
urn:nbn:se:esh:diva-11260 (URN)10.1080/03906701.2025.2450444 (DOI)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2020-00169
Available from: 2025-01-29 Created: 2025-01-29 Last updated: 2025-01-29Bibliographically approved
Gaber, S. N., Rydeman, I.-B., Mattsson, E. & Kneck, Å. (2024). Asking about violence and abuse among patients experiencing homelessness: A focus group study with healthcare professionals. BMC Health Services Research, 24, Article ID 531.
Open this publication in new window or tab >>Asking about violence and abuse among patients experiencing homelessness: A focus group study with healthcare professionals
2024 (English)In: BMC Health Services Research, E-ISSN 1472-6963, Vol. 24, article id 531Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: People experiencing homelessness are at increased risk of violence and abuse, however, there is insufficient knowledge about rates of inquiry or readiness of healthcare professionals to address violence and abuse among this population. This study aimed to explore healthcare professionals' experiences and perceptions of asking about violence and abuse among patients experiencing homelessness.

METHODS: This study used a qualitative, interpretive, and exploratory design. We performed focus group discussions with healthcare professionals (n = 22) working at an integrative healthcare unit for people experiencing homelessness. Data were analysed using reflexive thematic analysis, following Braun and Clarke's six-phase approach. Findings are reported according to the Consolidated Criteria for Reporting Qualitative Research (COREQ) checklist.

RESULTS: The overarching theme of the analysis is that addressing violence and abuse is at risk of "falling through the cracks". The theme is supported by three sub-themes: Hesitance to address violence and abuse, The complex dynamics of violence and abuse in homelessness, and Challenges in addressing violence and abuse amidst competing priorities and collaborative efforts. The normalisation of violence and abuse within the context of homelessness perpetuates a "cycle" where the severity and urgency of addressing violence and abuse are overlooked or minimised, hindering effective interventions. Moreover, healthcare professionals themselves may inadvertently contribute to this normalisation. The hesitance expressed by healthcare professionals in addressing the issue further reinforces the prevailing belief that violence and abuse are inherent aspects of homelessness. This normalisation within the healthcare system adds another layer of complexity to addressing these issues effectively.

CONCLUSIONS: The findings underscore the need for targeted interventions and coordinated efforts that not only address the immediate physical needs of people experiencing homelessness but also challenge and reshape the normalised perceptions surrounding violence and abuse. By prioritising awareness, education, and supportive interventions, we can begin to "break the cycle" and provide a safer environment where violence and abuse are not accepted or overlooked.

Keywords
Abuse, Delivery of health care, Health service research, Health services accessibility, Homeless persons, Qualitative methods, Violence
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-10791 (URN)10.1186/s12913-024-10914-3 (DOI)38671423 (PubMedID)
Available from: 2024-04-30 Created: 2024-04-30 Last updated: 2024-04-30Bibliographically approved
Bockgård, G., Mattsson, E., von Essen, L. & Klarare, A. (2024). Collaborative Interpretation of Researcher-Generated Photo-Elicitation Findings: Insights From Women With Lived Experience of Homelessness. Qualitative Health Research, 34(7), 676-690
Open this publication in new window or tab >>Collaborative Interpretation of Researcher-Generated Photo-Elicitation Findings: Insights From Women With Lived Experience of Homelessness
2024 (English)In: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557, Vol. 34, no 7, p. 676-690Article in journal (Refereed) Published
Abstract [en]

Interviews with individuals experiencing homelessness can be challenging for various reasons, including mental and physical health issues, substance use, and negative experiences with authority figures. Researchers have used photos to facilitate communication and empower participants during data collection. We analyzed data from a previous study to explore the use of researcher-generated photos during interviews about health with 13 women experiencing homelessness. Conversation analysis revealed clear patterns regarding the use of the photos during the interviews. The photos were referred to 118 times over the total interview length, 6 hours and 23 minutes, with the interviewer making 62% of the referrals and the women accounting for 38%. Fifty-nine percent of the referrals occurred within the first 5 minutes of the interviews. The women used the photos to trigger associations and emotions, to describe photo content, or in a minor role during the interview. Interpretations from an advisory board of six women with lived experiences of homelessness suggested that the photos did not engage participants as intended, highlighting the importance of considering participants’ perspectives when designing photo-elicitation methods. The feedback also provided valuable insights into interview locations and incentives in research that may have influenced the women’s willingness to use the photos. This study emphasizes the importance of understanding the complexity of choosing researcher-generated photos in interviews with underserved, hard-to-reach populations.

Keywords
Homelessness, Photo-elicitation, Researcher-generated photos, Women, Qualitative
National Category
Health Sciences
Identifiers
urn:nbn:se:esh:diva-10629 (URN)10.1177/10497323231224330 (DOI)38235734 (PubMedID)
Available from: 2024-01-18 Created: 2024-01-18 Last updated: 2024-06-17Bibliographically approved
Gaber, S., Franck, J., Widing, H., Hällgren, J., Mattsson, E. & Westman, J. (2024). Excess mortality among people in homelessness with substance use disorders: A Swedish cohort study. Journal of Epidemiology and Community Health, 78(8), 473-478
Open this publication in new window or tab >>Excess mortality among people in homelessness with substance use disorders: A Swedish cohort study
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2024 (English)In: Journal of Epidemiology and Community Health, ISSN 0143-005X, E-ISSN 1470-2738, Vol. 78, no 8, p. 473-478Article in journal (Refereed) Published
Abstract [en]

Background: People in homelessness have an increased risk of substance use disorders (SUDs) and poor health outcomes. This cohort study aimed to investigate the association between homelessness and mortality in people with SUDs, adjusting for age, sex, narcotic use, intravenous drug use and inpatient care for SUDs.

Methods: Data from the Swedish National Addiction Care Quality Register in the Stockholm region were used to analyse mortality risk in people with SUDs (n=8397), including 637 in homelessness, 1135 in precarious housing and 6625 in stable housing, at baseline. HRs and CIs were calculated using Cox regression.

Results: Mortality was increased for people in homelessness (HR 2.30; 95% CI 1.70 to 3.12) and precarious housing (HR 1.23; 95% CI 0.86 to 1.75) compared with those in stable housing. The association between homelessness and mortality decreased (HR 1.27; 95% CI 0.91 to 1.78) after adjusting for narcotic use (HR 1.28; 95% CI 1.00 to 1.63), intravenous drug use (HR 1.98; 95% CI 1.52 to 2.58) and inpatient care for SUDs (HR 1.96; 95% CI 1.57 to 2.45). Standardised mortality ratios (SMRs) showed that mortality among people in homelessness with SUDs was 13.6 times higher than the general population (SMR=13.6; 95% CI 10.2 to 17.9), and 3.7 times higher in people in stable housing with SUDs (SMR=3.7; 95% CI 3.2 to 4.1).

Conclusion: Homelessness increased mortality, but the risk decreased after adjusting for narcotic use, intravenous drug use and inpatient care for SUDs. Interventions are needed to reduce excess mortality among people in homelessness with SUDs.

Keywords
Excess mortality, Homelessness, Substance use disorder
National Category
Nursing Social Work
Research subject
Människan i välfärdssamhället, Vårdvetenskap
Identifiers
urn:nbn:se:esh:diva-11197 (URN)10.1136/jech-2023-220989 (DOI)001229580500001 ()38772698 (PubMedID)
Funder
Swedish Research Council, 2019-01095Forte, Swedish Research Council for Health, Working Life and Welfare, 2020-00169
Available from: 2025-01-08 Created: 2025-01-08 Last updated: 2025-01-16Bibliographically approved
Karlsson Rosenblad, A., Klarare, A., Rapaport, P., Mattsson, E. & Gaber, S. N. (2024). Health literacy and its association with mental and spiritual well-being among women experiencing homelessness. Health Promotion International, 39(2)
Open this publication in new window or tab >>Health literacy and its association with mental and spiritual well-being among women experiencing homelessness
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2024 (English)In: Health Promotion International, ISSN 0957-4824, E-ISSN 1460-2245, Vol. 39, no 2Article in journal (Refereed) Published
Abstract [en]

Low health literacy (HL) has been linked to low self-rated health, reduced efficacy of behaviour change, and challenges in preventing, treating, or managing health conditions. People experiencing homelessness are at risk of poor HL; however, few studies have investigated HL in relation to mental and spiritual well-being among people experiencing homelessness in general, or women experiencing homelessness specifically. This cross-sectional study of 46 women experiencing homelessness in Stockholm, Sweden, recruited during the period October 2019–December 2020, aimed to examine how HL was associated with mental and spiritual well-being among women experiencing homelessness. Participants answered questions about socio-demographic characteristics (age, length of homelessness, education) and digital technology (mobile phone/the Internet) use, in addition to Swedish language versions of three questionnaires administered through structured, face-to-face interviews: the Communicative and Critical Health Literacy Scale, the General Health Questionnaire 12 and the Functional Assessment of Chronic Illness Therapy-Spiritual Well-Being. Data were analysed using linear regression, which revealed statistically significant associations between HL and mental well-being (p = .009), and between HL and spiritual well-being (p = .022). However, neither socio-demographic characteristics nor digital technology use were significantly associated with HL. In conclusion, promoting HL may improve mental and spiritual well-being in this vulnerable population. An advisory board of women with lived experiences of homelessness (n = 5) supported the interpretation of the findings and emphasised the need to consider HL in relation to basic needs such as ‘housing first’. Moreover, health information and services should be accessible to people with different degrees of HL.

Place, publisher, year, edition, pages
Oxford University Press, 2024
Keywords
Health literacy, Homelessness, Psychological distress, Spirituality, Psychological well-being, Women’s health
National Category
Nursing Public Health, Global Health and Social Medicine
Identifiers
urn:nbn:se:esh:diva-10734 (URN)10.1093/heapro/daae019 (DOI)
Funder
Swedish Research Council, 2019-01095Forte, Swedish Research Council for Health, Working Life and Welfare, 2020-00169
Note

In collaboration with: Women Advisory Board for Inclusion Health.

Available from: 2024-03-05 Created: 2024-03-05 Last updated: 2025-02-20Bibliographically approved
Klarare, A., Vamstad, J., Mattsson, E., Kneck, Å. & Salzmann-Erikson, M. (2024). Social rights in relation to digitalization, mobile phone, and internet use – experiences of women in homelessness: A qualitative study. Critical Public Health, 34(1), 1-16
Open this publication in new window or tab >>Social rights in relation to digitalization, mobile phone, and internet use – experiences of women in homelessness: A qualitative study
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2024 (English)In: Critical Public Health, ISSN 0958-1596, E-ISSN 1469-3682, Vol. 34, no 1, p. 1-16Article in journal (Refereed) Published
Abstract [en]

Given the fact that women in homelessness face considerable health inequities, the question of how digitalization can be understood in relation to social rights and right to health surfaces. The objective of this qualitative interview study was to explore the use of mobile phones and internet for women experiencing homelessness. Women (n = 26) shared experiences of healthcare access by using a mobile phone or internet. Data were analyzed using NVivo software. The results are presented in two themes: Conditions and circumstances of having a mobile phone; and Structural and intrapersonal challenges affecting social rights. The results show that digitalization actively influenced everyday life for women experiencing homelessness. Whether women wanted it to or not, digitalization presents a line of demarcation for participation and inclusion or exclusion, in health- and social-care services.

Place, publisher, year, edition, pages
Informa UK Limited, 2024
Keywords
Digitalization, Health inequalities, Marginalization, Socio-economic
National Category
Social Work Nursing
Identifiers
urn:nbn:se:esh:diva-10801 (URN)10.1080/09581596.2024.2342334 (DOI)
Funder
Swedish Research Council, 2019-01095
Available from: 2024-05-13 Created: 2024-05-13 Last updated: 2024-05-15Bibliographically approved
Klarare, A., Ekström, V., Godskesen, T., Westman, J., Mattsson, E. & Kneck, Å. (2024). Treatment of trauma-related conditions for people in homelessness: A scoping review. Journal of social distress and the homeless
Open this publication in new window or tab >>Treatment of trauma-related conditions for people in homelessness: A scoping review
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2024 (English)In: Journal of social distress and the homeless, ISSN 1053-0789, E-ISSN 1573-658XArticle, review/survey (Refereed) Epub ahead of print
Abstract [en]

People in homelessness face significant health inequities, with tri-morbidity, exposure to violence, substance use- and post-traumatic stress disorder. The aim of this scoping review was to describe treatments for trauma-related conditions for persons in homelessness. Systematic searches were performed in three databases: PubMed, PsycInfo and Scopus, guided by the PRISMA checklist. Nine studies fulfilled the criteria and were included in the review. Results show no randomized studies specifically focusing on treatment of trauma-related conditions for people in homelessness. Studies described interventions or programs that focused on consolidating and developing participants’ own strengths and skills to better navigate life with the challenges of homelessness, trauma, and PTSD. Treatment of trauma-related conditions may have positive effects for people in homelessness, as for others. Multimodal treatments, developing personal strengths and skills for people in homelessness, show potential to decrease trauma symptoms, however, more robust studies are needed for inferences and recommendations. 

Place, publisher, year, edition, pages
Taylor & Francis, 2024
Keywords
Homelessness, Scoping review, Therapies, Trauma, Treatment
National Category
Health Sciences
Identifiers
urn:nbn:se:esh:diva-10708 (URN)10.1080/10530789.2024.2310948 (DOI)
Funder
Swedish Research Council, 2019-01095Forte, Swedish Research Council for Health, Working Life and Welfare, 2020-169
Available from: 2024-02-13 Created: 2024-02-13 Last updated: 2024-02-13Bibliographically approved
Gaber, S., Klarare, A., Mattsson, E. & Karlsson Rosenblad, A. (2023). A comparison of perceptions of caring behaviours among women in homelessness, Registered Nurses and nursing students. Scandinavian Journal of Caring Sciences, 37(4), 959-969
Open this publication in new window or tab >>A comparison of perceptions of caring behaviours among women in homelessness, Registered Nurses and nursing students
2023 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 37, no 4, p. 959-969Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: The population of women in homelessness in Europe is increasing and women in homelessness experience multiple healthcare needs. However, there is insufficient understanding about how perceptions of caring behaviours compare between women in homelessness as patients and nurses in their clinical practice.

AIM: This study aimed to investigate perceptions of caring behaviours among women in homelessness, Registered Nurses and nursing students.

METHODS: A cross-sectional design was used with convenience sampling to recruit groups of women in homelessness (n = 37), Registered Nurses (n = 92) and nursing students (n = 142) in Stockholm, Sweden. Between August 2019 and December 2020, data were collected through face-to-face interviews or online, using the Caring Behaviours Inventory-24 instrument. Data were analysed using descriptive statistics and group-comparing hypothesis tests.

RESULTS: Overall, women in homelessness' perceptions of caring behaviours were significantly lower than nursing students (p < 0.001), who in turn scored significantly lower than Registered Nurses (p < 0.001). The Knowledge and Skill domain had the highest score, and the Connectedness domain had the lowest score in all three groups. The ranking of the individual items according to score varied between the groups. However, all three groups had the highest score for the Knowing how to give shots, IVs, etc., item and the lowest score for the Helping the patient to grow item.

CONCLUSION: Healthcare providers and nurse educators should consider incongruences and congruences in caring behaviours to better prepare Registered Nurses and nursing students to contribute to increased health equity, and more targeted clinical practice for women in homelessness.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2023
Keywords
Caring behaviours, Homelessness, Nurse-patient relations, Nursing students, Registered nurses, Women
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-9426 (URN)10.1111/scs.13071 (DOI)000758136400001 ()35187681 (PubMedID)
Funder
Swedish Research Council, 2019-01095Forte, Swedish Research Council for Health, Working Life and Welfare, 2020-00169
Available from: 2022-02-28 Created: 2022-02-28 Last updated: 2023-12-13Bibliographically approved
Gerhardsson, E., Oras, P., Mattsson, E., Blomqvist, Y. T. & Funkquist, E.-L. (2023). Health care professionals report positive experience with a breastfeeding training program based on the Baby-Friendly Hospital Initiative for Neonatal Intensive Care. Journal of Neonatal Nursing, 29(1), 75-80
Open this publication in new window or tab >>Health care professionals report positive experience with a breastfeeding training program based on the Baby-Friendly Hospital Initiative for Neonatal Intensive Care
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2023 (English)In: Journal of Neonatal Nursing, ISSN 1355-1841, E-ISSN 1878-089X, Vol. 29, no 1, p. 75-80Article in journal (Refereed) Published
Abstract [en]

Support from health care professionals (HCPs) with good knowledge and positive attitudes toward breastfeeding has been associated with better breastfeeding outcomes in the mothers of preterm infants. The aim of the study was to describe HCPs' experiences of a breastfeeding training program. A total of 48 specialist registered nurses, registered nurses, assistant nurses and physicians working at a neonatal intensive care unit attended a breastfeeding training program and answered a questionnaire including Likert scales and open-ended questions. The participants reported that their interest in breastfeeding had increased as a median (range) of 10 (8–10) on a 10-point scale and rated to what extent they had received new tools for breastfeeding support as a median of 10 (8–10) after training. There were no differences in the median between different professions' ratings. Qualitative content analysis of the open-ended questions resulted in two categories: Discussions of the case scenarios in the group and Knowledge regarding breastfeeding. The results showed that discussions based on breastfeeding scenarios were perceived as valuable; the health care professionals reported receiving new knowledge and useful practical skills. This program was shown to increase health care professionals’ interest in breastfeeding and is useful for different health care professions.

Place, publisher, year, edition, pages
Elsevier, 2023
Keywords
Breastfeeding, Education, Health personnel, Infant, Intensive care, Neonatal, Premature
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-9617 (URN)10.1016/j.jnn.2022.02.008 (DOI)
Funder
Gillbergska stiftelsen
Available from: 2022-06-20 Created: 2022-06-20 Last updated: 2024-02-09Bibliographically approved
Projects
Inclusion health for women in homelessness - development, feasibility and implementation of interventions [2020-00169_Forte]; Marie Cederschiöld University; Publications
Vamstad, J., Klarare, A., Agius, J. & Mattsson, E. (2025). Seeking public assistance to escape violence: A study on relocation co-created with women with lived experience of homelessness. International Review of Sociology, 1-17Gaber, S. N., Rydeman, I.-B., Mattsson, E. & Kneck, Å. (2024). Asking about violence and abuse among patients experiencing homelessness: A focus group study with healthcare professionals. BMC Health Services Research, 24, Article ID 531. Bockgård, G., Mattsson, E., von Essen, L. & Klarare, A. (2024). Collaborative Interpretation of Researcher-Generated Photo-Elicitation Findings: Insights From Women With Lived Experience of Homelessness. Qualitative Health Research, 34(7), 676-690Karlsson Rosenblad, A., Klarare, A., Rapaport, P., Mattsson, E. & Gaber, S. N. (2024). Health literacy and its association with mental and spiritual well-being among women experiencing homelessness. Health Promotion International, 39(2)Klarare, A., Vamstad, J., Mattsson, E., Kneck, Å. & Salzmann-Erikson, M. (2024). Social rights in relation to digitalization, mobile phone, and internet use – experiences of women in homelessness: A qualitative study. Critical Public Health, 34(1), 1-16Klarare, A., Ekström, V., Godskesen, T., Westman, J., Mattsson, E. & Kneck, Å. (2024). Treatment of trauma-related conditions for people in homelessness: A scoping review. Journal of social distress and the homelessAnonymous, . (2024). When the wounds heal but the soul bleeds: A lived experience narrative. Journal of Psychiatric and Mental Health Nursing, 31(5), 701-704Gaber, S., Klarare, A., Mattsson, E. & Karlsson Rosenblad, A. (2023). A comparison of perceptions of caring behaviours among women in homelessness, Registered Nurses and nursing students. Scandinavian Journal of Caring Sciences, 37(4), 959-969Kneck, Å. (2023). Fungerande, behovsstyrd och resursstärkande samverkan: Avgörande för att den våldsutsatta kvinnan i hemlöshet ska kunna erbjudas traumavård. In: : . Paper presented at NaPSa, Nationell paper-konferens i socialt arbete, Södertörns högskola, Stockholm, 22-23 mars 2023.. Mattsson, E. & Klarare, A. (2023). Kvinnor far illa inom ramen för samhällets institutioner. Dagens arena (2023-04-14)
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0001-5104-1281

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