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Andershed, Birgitta
Publications (10 of 55) Show all publications
Ternestedt, B.-M. & Andershed, B. (2020). Den palliativa vårdens utveckling (2ed.). In: Birgitta Andershed; Britt-Marie Ternestedt (Ed.), Palliativ vård: begrepp och perspektiv i teori och praktik (pp. 103-119). Lund: Studentlitteratur AB
Open this publication in new window or tab >>Den palliativa vårdens utveckling
2020 (Swedish)In: Palliativ vård: begrepp och perspektiv i teori och praktik / [ed] Birgitta Andershed; Britt-Marie Ternestedt, Lund: Studentlitteratur AB, 2020, 2, p. 103-119Chapter in book (Other academic)
Place, publisher, year, edition, pages
Lund: Studentlitteratur AB, 2020 Edition: 2
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-8754 (URN)9789144131078 (ISBN)
Available from: 2021-04-15 Created: 2021-04-15 Last updated: 2021-09-29Bibliographically approved
Andershed, B. & Ternestedt, B.-M. (Eds.). (2020). Palliativ vård: begrepp och perspektiv i teori och praktik (2ed.). Lund: Studentlitteratur AB
Open this publication in new window or tab >>Palliativ vård: begrepp och perspektiv i teori och praktik
2020 (English)Collection (editor) (Other academic)
Abstract [sv]

Vad är ett gott liv nära döden och hur kan ett sådant främjas? Många olika synsätt existerar sida vid sida och det finns inte enbart ett enkelt svar. För att fånga den enskilda personens behov krävs ett personcentrerat förhållningssätt där patienter och närstående är självklara aktörer. Behovet av kunskap om döende, död och palliativ vård har blivit extra tydligt i samband med den pandemi som drabbade världen våren 2020.

Detta är den andra omarbetade och uppdaterade utgåvan av boken. Nya kapitel: Möte med religion i det nya Sverige, Mening, Sorg samt Medicinska aspekter på döendefasen kompletterar detta redan gedigna verk. Centrala begrepp och perspektiv i teori och praktik belyses i bokens sju delar: Att möta döden i vår samtid, Värdegrund och förhållningssätt, Identitet, autonomi och delaktighet, Smärta, lidande och sorg, Stöd, tröst och mening, Livet nära döden - tidigt och sent i livet och Den palliativa vårdens praktik. Samtliga kapitel i boken har en tydlig vetenskaplig grund. Författarna är aktiva forskare med olika yrkesbakgrund och erfarenheter av palliativ vård.

Boken vänder sig till studenter på grundnivå och avancerad nivå inom hälso- och sjukvårdsprogrammen, men även forskare, beslutsfattare och en intresserad allmänhet kan ha nytta av att läsa boken. 

Place, publisher, year, edition, pages
Lund: Studentlitteratur AB, 2020. p. 555 Edition: 2
Keywords
Palliativ vård, Omvårdnad, Vård i livets slutskede
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-8729 (URN)9789144131078 (ISBN)
Available from: 2021-04-08 Created: 2021-04-08 Last updated: 2021-04-12Bibliographically approved
Bergdahl, E., Ternestedt, B.-M., Berterö, C. & Andershed, B. (2019). The theory of a co-creative process in advanced palliative home care nursing encounters: A qualitative deductive approach over time.. Nursing Open, 6(1), 175-188
Open this publication in new window or tab >>The theory of a co-creative process in advanced palliative home care nursing encounters: A qualitative deductive approach over time.
2019 (English)In: Nursing Open, E-ISSN 2054-1058, Vol. 6, no 1, p. 175-188Article in journal (Refereed) Published
Abstract [en]

Aims and objectives: The aim of this study was to test the theoretical conceptualization of the co-creative process in home care nursing encounters over time.

Method and design: This was a multiple case study with a deductive analysis of qualitative data over time, using interviews and observations collected from three cases.

Results: The co-creative process was complex and contained main, sub- and micro-processes. Time was important and valuable, giving the patient and relatives space to adjust the process to their own pace. Some processes were worked on more intensively in accordance with the patients' and relatives' needs, and these are considered the main-process. The further developed theory of the co-creative process and its main, sub- and microprocesses can be understood as a concretization of how good nursing care can be performed within caring relationships in the context of advanced palliative home care.

Keywords
caring; case study research; nurse–patient relationship; palliative care
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-7320 (URN)10.1002/nop2.203 (DOI)30534407 (PubMedID)
Available from: 2019-02-20 Created: 2019-02-20 Last updated: 2023-08-24Bibliographically approved
Ewertzon, M., Alvariza, A., Winnberg, E., Leksell, J., Andershed, B., Goliath, I., . . . Årestedt, K. (2018). Adaptation and evaluation of the Family Involvement and Alienation Questionnaire for use in the care of older people, psychiatric care, palliative care and diabetes care. Journal of Advanced Nursing, 74(8), 1839-1850
Open this publication in new window or tab >>Adaptation and evaluation of the Family Involvement and Alienation Questionnaire for use in the care of older people, psychiatric care, palliative care and diabetes care
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2018 (English)In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 74, no 8, p. 1839-1850Article in journal (Refereed) Published
Abstract [en]

AIM: To adapt the Family Involvement and Alienation Questionnaire for use in the care of older people, psychiatric care, palliative care and diabetes care and to evaluate its validity and reliability.

BACKGROUND: Involvement in the professional care has proven to be important for family members. However, they have described feelings of alienation in relation to how they experienced the professionals' approach. To explore this issue, a broad instrument that can be used in different care contexts is needed.

DESIGN: A psychometric evaluation study, with a cross-sectional design.

METHOD: The content validity of the Family Involvement and Alienation Questionnaire was evaluated during 2014 by cognitive interviews with 15 family members to adults in different care contexts. Psychometric evaluation was then conducted (2015-2016). A sample of 325 family members participated, 103 of whom in a test-retest evaluation. Both parametric and non-parametric methods were used.

RESULTS: The content validity revealed that the questionnaire was generally understood and considered to be relevant and retrievable by family members in the contexts of the care of older people, psychiatric care, palliative care and diabetes care. Furthermore, the Family Involvement and Alienation Questionnaire (Revised), demonstrated satisfactory psychometric properties in terms of data quality, homogeneity, unidimensionality (factor structure), internal consistency and test-retest reliability.

CONCLUSION: The study provides evidence that the Family Involvement and Alienation Questionnaire (Revised) is reliable and valid for use in further research and in quality assessment in the contexts of the care of older people, psychiatric care, palliative care and diabetes care. This article is protected by copyright. All rights reserved.

Keywords
Care of older people, Diabetes care, Family involvement, Instrument development, Nursing, Palliative care, Psychiatric care, Psychometric testing, Reliability, Validity
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-6718 (URN)10.1111/jan.13579 (DOI)29603762 (PubMedID)
Available from: 2018-04-12 Created: 2018-04-12 Last updated: 2023-10-24Bibliographically approved
Andershed, B., Ewertzon, M. & Johansson, A. (2017). An isolated involvement in mental health care: Experiences of parents of young adults.. Journal of Clinical Nursing, 26(7-8), 1053-1065
Open this publication in new window or tab >>An isolated involvement in mental health care: Experiences of parents of young adults.
2017 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 26, no 7-8, p. 1053-1065Article in journal (Refereed) Published
Abstract [en]

AIM: The aim of this study was to explore parents' involvement in the informal and professional care of their young adult child with mental illness. A further aim was to examine concepts in the caring theory of "Involvement in the light - involvement in the dark" in the context of mental health care.

BACKGROUND: Mental illness has increased among young people in high-income countries and suicide is now the leading cause of death for this group. Because of their disease, these young people may have difficulty in carrying out daily, taken-for-granted, tasks. Consequently, they often become dependent on their parents, and their parents shoulder a considerable responsibility.

DESIGN AND METHODS: A secondary descriptive design with a deductive content analysis was used. Ten parents who have a son or daughter with long-term mental illness (aged 18 - 25) were interviewed. The deductive analysis was based on the caring theory of "Involvement in the light - Involvement in the dark".

RESULTS: The results are described using the following concepts in the theory: "Knowing", "Doing", "Being" and "Attitude of the health professionals". The result are to a great extent consistent with the "Involvement in the dark" metaphor, which describes an isolated involvement in which the parents were not informed, seen or acknowledged by the health professionals. Continuous support by professionals with a positive attitude was described as being of decisive importance for meaningful involvement. This article is protected by copyright. All rights reserved.

Keywords
Caring theory, Informal care, Mental health care, Parents, Young adults
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-5442 (URN)10.1111/jocn.13560 (DOI)27570938 (PubMedID)
Available from: 2016-09-29 Created: 2016-09-29 Last updated: 2020-06-03Bibliographically approved
Johansson, A., Ewertzon, M., Andershed, B., Anderzen-Carlsson, A., Nasic, S. & Ahlin, A. (2015). Health-Related Quality of Life: From the Perspekctive of Mothers and Fathers of Adult Children Suffering From Long-Term Mental Disorders. Archives of Psychiatric Nursing, 29(3), 180-185
Open this publication in new window or tab >>Health-Related Quality of Life: From the Perspekctive of Mothers and Fathers of Adult Children Suffering From Long-Term Mental Disorders
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2015 (English)In: Archives of Psychiatric Nursing, ISSN 0883-9417, E-ISSN 1532-8228, Vol. 29, no 3, p. 180-185Article in journal (Refereed) Published
Abstract [en]

There is a lack of studies on mothers' and fathers' experiences of Health-Related Quality of Life (HRQOL) associated with caregiving of adult children suffering from mental disorder. A cross-sectional study was therefore carried out with 108 mothers and 43 fathers. Data were collected by means of the Short Form Health Survey (SF-36), the Hospital Anxiety and Depression Scale (HADS), the Family Involvement and Alienation Questionnaire (FIAQ) and the Burden Assessment Scale (BAS). Mothers' HRQOL was affected more than fathers' and lower compared to Swedish age related norms. HRQOL was predominantly related to ratings on HADS and BAS.

Place, publisher, year, edition, pages
Elsevier, 2015
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-4882 (URN)10.1016/j.apnu.2015.02.002 (DOI)26001718 (PubMedID)
Available from: 2015-10-09 Created: 2015-10-09 Last updated: 2024-01-22Bibliographically approved
Bergdahl, E., Benzein, E., Ternestedt, B.-M., Elmberger, E. & Andershed, B. (2013). Co-creating possibilities for patients in palliative care to reach vital goals: A multiple case study of home-care nursing encounters. Nursing Inquiry, 20(4), 341-351
Open this publication in new window or tab >>Co-creating possibilities for patients in palliative care to reach vital goals: A multiple case study of home-care nursing encounters
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2013 (English)In: Nursing Inquiry, ISSN 1320-7881, E-ISSN 1440-1800, Vol. 20, no 4, p. 341-351Article in journal (Refereed) Published
Abstract [en]

The patient's home is a common setting for palliative care. This means that we need to understand current palliative care philosophy and how its goals can be realized in home-care nursing encounters (HCNEs) between the nurse, patient and patient's relatives. The existing research on this topic describes both a negative and a positive perspective. There has, however, been a reliance on interview and descriptive methods in this context. The aim of this study was to explore planned HCNEs in palliative care. The design was a multiple case study based on observations. The analysis includes a descriptive and an explanation building phase. The results show that planned palliative HCNEs can be described as a process of co-creating possibilities for the patient to reach vital goals through shared knowledge in a warm and caring atmosphere, based on good caring relations. However, in some HCNEs, co-creation did not occur: Wishes and needs were discouraged or made impossible and vital goals were not reached for the patients or their relatives. Further research is needed to understand why. The co-creative process presented in this article can be seen as a concretization of the palliative care ideal of working with a person-centered approach.

Keywords
case study research, home care, nurse–patient interaction, nurse–patient relationships, palliative care
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:esh:diva-2428 (URN)10.1111/nin.12022 (DOI)
Available from: 2013-09-30 Created: 2013-09-30 Last updated: 2021-04-12Bibliographically approved
Ternestedt, B.-M. & Andershed, B. (2013). Den palliativa vårdens utveckling (1ed.). In: Birgitta Andershed, Britt-Marie Ternestedt, Cecilia Håkanson (Ed.), Palliativ vård: begrepp & perspektiv i teori och praktik (pp. 103-116). Lund: Studentlitteratur AB
Open this publication in new window or tab >>Den palliativa vårdens utveckling
2013 (Swedish)In: Palliativ vård: begrepp & perspektiv i teori och praktik / [ed] Birgitta Andershed, Britt-Marie Ternestedt, Cecilia Håkanson, Lund: Studentlitteratur AB, 2013, 1, p. 103-116Chapter in book (Other academic)
Place, publisher, year, edition, pages
Lund: Studentlitteratur AB, 2013 Edition: 1
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-3715 (URN)9789144070964 (ISBN)
Available from: 2014-05-13 Created: 2014-05-13 Last updated: 2021-04-12Bibliographically approved
Henriksson (Alvariza), A., Årestedt, K., Benzein, E., Ternestedt, B.-M. & Andershed, B. (2013). Effects of a support group programme for patients with life-threatening illness during ongoing palliative care. Palliative Medicine: A Multiprofessional Journal, 27(3), 257-264
Open this publication in new window or tab >>Effects of a support group programme for patients with life-threatening illness during ongoing palliative care
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2013 (English)In: Palliative Medicine: A Multiprofessional Journal, ISSN 0269-2163, E-ISSN 1477-030X, Vol. 27, no 3, p. 257-264Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Health care systems in many countries are moving towards outpatient care in which family members are central in providing care for patients with life-threatening illness. Several studies show that family members report a lack of preparation, knowledge and the ability to handle the caregiver role, and a need for information and psychosocial support. 

AIM: The aim was to investigate the effects of a support group programme for family members of patients with life-threatening illness during ongoing palliative care.

DESIGN: A prospective quasi-experimental design, including an intervention group and a comparison group, was used.

SETTINGS/PARTICIPANTS: A support group programme was offered to family members during ongoing palliative care at three intervention settings: two specialist palliative care units and one haematology unit. A fourth setting, a specialist palliative care unit, was used for comparisons.

RESULTS: Family members taking part in the support group programme significantly increased their perceptions of preparedness for caregiving, competence for caregiving, and rewards of caregiving. Hope, anxiety, depression symptoms and health showed no significant changes.

CONCLUSIONS: The intervention, including a support group programme delivered to family members of patients with life-threatening illness during ongoing palliative care, proved to be effective in certain domains of caregiving. No negative outcomes were detected. The results indicate that this intervention could be implemented and delivered to family members during ongoing palliative care.

Keywords
Palliative care, Family members, Intervention, Support groups
National Category
Health Sciences
Identifiers
urn:nbn:se:esh:diva-1867 (URN)10.1177/0269216312446103 (DOI)22562965 (PubMedID)
Note

Published online before print May 4.

Available from: 2012-12-20 Created: 2012-12-20 Last updated: 2021-04-12Bibliographically approved
Andershed, B., Ternestedt, B.-M. & Håkanson, C. (Eds.). (2013). Palliativ vård: begrepp & perspektiv i teori och praktik. Lund: Studentlitteratur AB
Open this publication in new window or tab >>Palliativ vård: begrepp & perspektiv i teori och praktik
2013 (Swedish)Collection (editor) (Other academic)
Place, publisher, year, edition, pages
Lund: Studentlitteratur AB, 2013. p. 511
Keywords
Palliativ vård, omvårdnad, Vård i livets slutskede
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-2138 (URN)9789144070964 (ISBN)
Available from: 2013-04-29 Created: 2013-04-29 Last updated: 2021-04-12Bibliographically approved
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