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Publications (10 of 145) Show all publications
Ternestedt, B.-M. & Norberg, A. (2020). Identitet (2ed.). In: Birgitta Andershed; Britt-Marie Ternestedt (Ed.), Palliativ vård: begrepp och perspektiv i teori och praktik (pp. 163-182). Lund: Studentlitteratur AB
Open this publication in new window or tab >>Identitet
2020 (Swedish)In: Palliativ vård: begrepp och perspektiv i teori och praktik / [ed] Birgitta Andershed; Britt-Marie Ternestedt, Lund: Studentlitteratur AB, 2020, 2, p. 163-182Chapter in book (Other academic)
Place, publisher, year, edition, pages
Lund: Studentlitteratur AB, 2020 Edition: 2
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-8761 (URN)9789144131078 (ISBN)
Available from: 2021-04-16 Created: 2021-04-16 Last updated: 2021-09-29Bibliographically approved
Norberg, A. & Ternestedt, B.-M. (2020). Jämlikhet inför döden (2ed.). In: Birgitta Andershed; Britt-Marie Ternestedt (Ed.), Palliativ vård: Begrepp och perspektiv i teori och praktik (pp. 49-64). Lund: Studentlitteratur AB
Open this publication in new window or tab >>Jämlikhet inför döden
2020 (Swedish)In: Palliativ vård: Begrepp och perspektiv i teori och praktik / [ed] Birgitta Andershed; Britt-Marie Ternestedt, Lund: Studentlitteratur AB, 2020, 2, p. 49-64Chapter in book (Other academic)
Place, publisher, year, edition, pages
Lund: Studentlitteratur AB, 2020 Edition: 2
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-8746 (URN)9789144131078 (ISBN)
Available from: 2021-04-13 Created: 2021-04-13 Last updated: 2021-09-29Bibliographically approved
Norberg, A. (2020). Livet med avancerad demenssjukdom (2ed.). In: Birgitta Andershed; Britt-Marie Ternestedt (Ed.), Palliativ vård: begrepp och perspektiv i teori och praktik (pp. 431-439). Lund: Studentlitteratur AB
Open this publication in new window or tab >>Livet med avancerad demenssjukdom
2020 (Swedish)In: Palliativ vård: begrepp och perspektiv i teori och praktik / [ed] Birgitta Andershed; Britt-Marie Ternestedt, Lund: Studentlitteratur AB, 2020, 2, p. 431-439Chapter in book (Other academic)
Place, publisher, year, edition, pages
Lund: Studentlitteratur AB, 2020 Edition: 2
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-9177 (URN)9789144131078 (ISBN)
Available from: 2021-09-29 Created: 2021-09-29 Last updated: 2022-04-19Bibliographically approved
Norberg, A. (2020). Tröst (2ed.). In: Birgitta Andershed; Britt-Marie Ternestedt (Ed.), Palliativ vård: begrepp och perspektiv i teori och praktik (pp. 319-328). Lund: Studentlitteratur AB
Open this publication in new window or tab >>Tröst
2020 (Swedish)In: Palliativ vård: begrepp och perspektiv i teori och praktik / [ed] Birgitta Andershed; Britt-Marie Ternestedt, Lund: Studentlitteratur AB, 2020, 2, p. 319-328Chapter in book (Other academic)
Place, publisher, year, edition, pages
Lund: Studentlitteratur AB, 2020 Edition: 2
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-9175 (URN)9789144131078 (ISBN)
Available from: 2021-09-29 Created: 2021-09-29 Last updated: 2022-04-19Bibliographically approved
Hedman, R., Norberg, A. & Hellström, I. (2019). Agency and communion in people with Alzheimer's disease, as described by themselves and their spousal carers.. Dementia, 18(4), 1354-1372, Article ID 1471301217706268.
Open this publication in new window or tab >>Agency and communion in people with Alzheimer's disease, as described by themselves and their spousal carers.
2019 (English)In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 18, no 4, p. 1354-1372, article id 1471301217706268Article in journal (Refereed) Published
Abstract [en]

Agency (individuality) and communion (togetherness) are vital to a positive sense of self. People with Alzheimer's disease are at risk of experiencing diminished agency and decreased communion. Their family members', especially their partner's, view on their agency and communion is also likely to influence their sense of agency, communion, and self. In the present study, individual interviews with 10 people with Alzheimer's disease and their spousal carers were qualitatively analysed to describe how in each couple the two spouses viewed the agency and communion of the person with Alzheimer's disease from an individual perspective. The findings show that the carers generally described the agency of the person with Alzheimer's disease as slightly weaker compared with the persons with Alzheimer's disease themselves. The carers also appeared to have poor knowledge of what supported and threatened the sense of communion of the person with Alzheimer's disease.

Keywords
Alzheimer’s disease, Agency, Communion, Self, Spousal relationships
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-6185 (URN)10.1177/1471301217706268 (DOI)28440706 (PubMedID)
Available from: 2017-06-20 Created: 2017-06-20 Last updated: 2022-11-02Bibliographically approved
Holmberg, B., Hellström, I., Norberg, A. & Österlind, J. (2019). Assenting to exposedness: meanings of receiving assisted bodily care in a nursing home as narrated by older persons.. Scandinavian Journal of Caring Sciences, 33(4), 868-877
Open this publication in new window or tab >>Assenting to exposedness: meanings of receiving assisted bodily care in a nursing home as narrated by older persons.
2019 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 33, no 4, p. 868-877Article in journal (Refereed) Published
Abstract [en]

Most older persons moving to a nursing home need to receive assisted bodily care, which means being in a position of vulnerability. However, few studies have explicitly focused on the meanings of receiving assisted bodily care from the older persons' perspective. This study aimed to elucidate meanings of receiving assisted bodily care, as narrated by older persons living in a nursing home. Twelve men and women, aged 80 or older, living in a Swedish nursing home, participated in the study. Data were generated by narrative interviews and analysed with a phenomenological-hermeneutical method. The regional ethics committee approved the study. In the analysis, one main theme emerged: 'Assenting to exposedness'. This theme comprised five themes, 'To have hope in hopelessness', 'To relinquish one's body into others' hands', 'To be between power and powerlessness', 'To oscillate between one's own responsibility and demands', 'To be in an ongoing interaction', and ten subthemes. In conclusion, receiving assisted bodily care means to be exposed, but not passively. Rather, it means to be self-determinant for as long as possible, to perceive the body as lived. When the body must be relinquished to others, it might be objectified, leading to care-suffering. To avoid this, the older persons use a certain competence, acquired through life, to decide when to take action or when to assent. However, this is but one of the several possible interpretations, which may be considered a limitation.

Keywords
Assent; Assisted bodily care, Exposedness, Hermeneutics, Lifeworld, Lived body, Nursing home, Older persons, Phenomenology, Self-determination
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-7361 (URN)10.1111/scs.12683 (DOI)30888087 (PubMedID)
Available from: 2019-03-22 Created: 2019-03-22 Last updated: 2023-01-03Bibliographically approved
Holmberg, B., Hellström, I., Norberg, A. & Österlind, J. (2019). Assenting to exposedness: meanings of receiving assisted bodily care (RABC) in a nursing home as narrated by older persons. In: : . Paper presented at IAGG-ER 2019 - 9th International Association of Gerontology and Geriatrics European Region Congress, Gothenburg, May 23-25, 2019.
Open this publication in new window or tab >>Assenting to exposedness: meanings of receiving assisted bodily care (RABC) in a nursing home as narrated by older persons
2019 (English)Conference paper, Poster (with or without abstract) (Refereed)
Abstract [en]

Introduction: Most older people living in nursing homes need R-ABC (assistance while dressing, undressing, eating, maintaining personal hygiene and while being transferred). This conveys to be helped with things that most people prefer to do in private, turning the older person’s body into an area, accessible to others in ways that would be unacceptable in other contexts.

Aim: The aim of the study was to elucidate meanings of receiving assisted bodily care, as narrated by older persons living in a nursing home.

Method: The study used a lifeworld design, focusing upon how the older persons experienced their world. Narrative interviews with 12 older persons generated 28 interviews.The transcribed interviews were analyzed by use of a phenomenological hermeneutical method, inspired by the philosophy of Ricoeur.

Results: The main theme ’Assenting to exposedness’ means to be exposed to others’ glances, touch and benevolence in an organisation that limits the conditions under which one lives. The overall meaning is to be exposed. Before that, one can do nothing but assent. The theme comprised five themes.

To have hope in hopelessness

Means to recognise remaining bodily assets and receive help to practice in order to increase self-determination, while simultaneously being aware that the life journey is nearing its end.

To relinquish one’s body into others’ hands

Means pleasure when experienced as soft, calm, warm, skilled and caring touch while talking about other things, which mutes the care needs. It means suffering when your wishes are neglected and the body is treated ’like a package’.

To be between power and powerlessness

Means to be able, to preserve self-determination by keeping trying to manage on one’s own. It means powerlessness when being without say, or feeling abandoned while waiting.

To oscillate between one’s own responsibility and demands

Means to judge situations and assent to circumstances predicted by others, but it also means uttering complaints about shortages in R-ABC, caused by organisational economic priorities.

To be in an ongoing interaction

Means having an equal and mutual fellowship with ANs, tinged by a joviality and closeness that normalises otherwise embarrassing situations. On the other hand, it means loneliness and alienation when R-ABC is percieved mechanical, not attending to personal wishes about the delivery of assisted bodily care.

Conclusions: The meaning of R-ABC is to be exposed, but not passively. Rather, it means to be self-determinant for as long as possible, to perceive the body as lived and avoid objectification. Further, to take on responsibility for judging the ANs work-load before asking for help.

National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-8179 (URN)
Conference
IAGG-ER 2019 - 9th International Association of Gerontology and Geriatrics European Region Congress, Gothenburg, May 23-25, 2019
Available from: 2020-06-05 Created: 2020-06-05 Last updated: 2023-01-03Bibliographically approved
Norberg, A. (2019). Sense of Self among Persons with Advanced Dementia (1 uppled.). In: Thomas Wisniewski (Ed.), Alzheimer’s Disease: (pp. 205-221). Brisbane: Codon Publications
Open this publication in new window or tab >>Sense of Self among Persons with Advanced Dementia
2019 (English)In: Alzheimer’s Disease / [ed] Thomas Wisniewski, Brisbane: Codon Publications , 2019, 1 uppl, p. 205-221Chapter in book (Refereed)
Abstract [en]

As humans, we have a sense of self, and at best, we are proud of our abilities and feel respected by other persons. Persons with dementia have been regarded losing their self. Quantitative research has shown that this is true, while qualitative research has shown that parts of self are severely affected while other parts remain even among persons with advanced dementia. These persons sometimes keep feeling “still the same” as before getting dementia. Their memory deficits help as does support from other persons. The theory of three aspects of self by the psychologists Rom Harré and Steven Sabat are presented, that is, the feeling that we are, who we are, and who we are together with other persons. Based on empirical research, suggestions will be given about how by promoting experiences of at-homeness, dignity, and being oneself related to others we can help persons with advanced dementia experience themselves as valuable persons.

Place, publisher, year, edition, pages
Brisbane: Codon Publications, 2019 Edition: 1 uppl
Keywords
Advanced dementia, Anosognosia, Confirmation, Dignity, Self
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-8349 (URN)10.15586/alzheimersdisease.2019.ch13 (DOI)31895521 (PubMedID)978-0-6468096-8-7 (ISBN)
Available from: 2020-09-29 Created: 2020-09-29 Last updated: 2023-02-20Bibliographically approved
Mazaheri, M., Ericson-Lidman, E., Joakim, Ö. & Norberg, A. (2018). Meanings of troubled conscience and how to deal with it: expressions of Persian-speaking enrolled nurses in Sweden.. Scandinavian Journal of Caring Sciences, 32(1), 380-388
Open this publication in new window or tab >>Meanings of troubled conscience and how to deal with it: expressions of Persian-speaking enrolled nurses in Sweden.
2018 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 32, no 1, p. 380-388Article in journal (Refereed) Published
Abstract [en]

INTRODUCTION: A feature of the healthcare system in Sweden, particularly in the care of older people, is its cultural diversity in terms of having considerable numbers of both caregivers and care recipients with an immigrant background. Considering the influence of culture in ethical decision-making processes, the idea of conscience and the adverse effects of a troubled conscience, it is important to study the concepts of conscience and troubled conscience in culturally diverse populations. There is no published study regarding troubled conscience among immigrant populations that includes enrolled nurses.

AIM: To illuminate the meanings of troubled conscience and how to deal with it among enrolled nurses with Iranian backgrounds working in Swedish residential care for Persian-speaking people with dementia who have emigrated from Iran.

METHOD: The study was conducted with a phenomenological hermeneutic design. Ten enrolled nurses with an Iranian background, with at least one year's experience of taking care of older people with dementia, were interviewed. The study was reviewed by the Regional Ethical Review Board for ethical vetting of research involving humans. Appropriate measures were taken to ensure confidentiality and voluntary participation.

RESULTS: The meanings of having a troubled conscience for the participants comprise not being a good person, including being an uncaring person, not acting according to one's values and living in a state of unease. Dealing with a troubled conscience involves trying to compensate for the harm one has caused and trying to prevent similar situations by being a responsible caregiver.

CONCLUSIONS: The enrolled nurses understood themselves as caring people and not only caregivers. They knew that they should hear their conscience and respond to it by trying to be a caring person and acting according to their values. The findings should be interpreted in the given specific context.

Keywords
Persian-speaking, Sweden, Dementia, Enrolled nurse, Immigrant, Residential care, Troubled conscience
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-7102 (URN)10.1111/scs.12472 (DOI)28799165 (PubMedID)
Available from: 2018-11-13 Created: 2018-11-13 Last updated: 2023-10-24Bibliographically approved
Hedman, R., Hellström, I., Ternestedt, B.-M., Hansebo, G. & Norberg, A. (2018). Sense of Self in Alzheimer’s Research Participants. Clinical Nursing Research, 27(2), 191-212
Open this publication in new window or tab >>Sense of Self in Alzheimer’s Research Participants
Show others...
2018 (English)In: Clinical Nursing Research, ISSN 1054-7738, E-ISSN 1552-3799, Vol. 27, no 2, p. 191-212Article in journal (Refereed) Published
Abstract [en]

The sense of self is vulnerable in people with Alzheimer's disease (AD), and might be positively and negatively influenced by research participation. The purpose of this study was to describe how people with AD express their experience of being a research participant with respect to their sense of self. Interviews and support group conversations involving 13 people with mild and moderate AD were analyzed using qualitative content analysis. Three themes were constructed: contributing to an important cause, gaining from participating, and experiencing risks and drawbacks. Participants described contributing to research as being in line with their lifelong values and lifestyles. They expressed contentment and pride about being research participants, emphasized their positive relationships with the researchers, and described participation as a meaningful activity. When research procedures threatened their sense of self, they were able to reason about risks and decline participation.

Keywords
Alzheimer’s disease, Research participation, Self, Support group
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-3553 (URN)10.1177/1054773816672671 (DOI)000423586200005 ()29374986 (PubMedID)
Note

Title in dissertation: Being a research participant with Alzheimer’s disease: Expressions of sense of self

Publication status in dissertation: Submitted

Available from: 2014-04-14 Created: 2014-04-14 Last updated: 2022-01-03Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0001-5994-4012

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