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Preparing for caregiving as a transition in awareness of death: Family caregivers experiences during palliative care
Ersta Sköndal University College, Department of Health Care Sciences.
2014 (English)Independent thesis Advanced level (degree of Master (Two Years)), 10 credits / 15 HE creditsStudent thesisAlternative title
Förberedelse för att vårda, en transition i medvetenhet om döden : Närståendevårdares erfarenheter under pågående palliativ vård (Swedish)
Abstract [en]

Background: There is a need for more knowledge about preparedness for caregiving since it has shown to be associated with more positive consequences of family caregiving.

Aim: To explore family caregivers’ experiences from their own stories to find out what could be of significance for preparedness for caregiving

Method: The study had a descriptive and interpretive design using qualitative interviews and qualitative content analysis.

Result: Preparing for caregiving was described in the two sub-themes: living in uncertainty, focusing on the present and preparing for the future, and: preparing for caregiving while transitioning to new roles. The overarching theme: preparing for caregiving in awareness of death was seen as a common thread through the whole result.

Conclusion: Preparing meant dealing with changes in life, living in uncertainty and transitioning into new roles. Family caregivers continuously tried to prepare in different ways due to the changes related to their partner´s illness. Preparing for caregiving meant, to willingly or unwillingly prepare for the dying and death of their partner and awareness about this was always present in some way influencing the whole experience. 

Place, publisher, year, edition, pages
2014. , p. 23
Keywords [en]
Family caregivers, Palliative care, Preparedness, Caregiving
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-4611OAI: oai:DiVA.org:esh-4611DiVA, id: diva2:812949
Educational program
Master in Health Care Sciences - Palliative Care 120 ECTS
Uppsok
Medicine
Supervisors
Examiners
Available from: 2015-05-22 Created: 2015-05-20 Last updated: 2015-05-22Bibliographically approved

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