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Family bonding as a result of the family talk intervention in pediatric oncology: Siblings’ experiences
Ersta sjukhus, Stockholm.
Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Uppsala universitet.ORCID-id: 0000-0002-9396-9800
Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Karolinska institutet.ORCID-id: 0000-0002-8185-781X
Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Karolinska Universitetssjukhuset.ORCID-id: 0000-0003-4736-500X
2021 (engelsk)Inngår i: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 69, nr 3, artikkel-id e29517Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

Background: Childhood cancer affects the whole family. Illness-related stressors increase the risk for poor family communication, affecting the family's well-being. Siblings describe worry and poor illness-related information. As there are few evaluated family interventions in pediatric oncology, this study aimed to pilot-test a family-centered intervention, the family talk intervention (FTI), in pediatric oncology. This paper examined the feasibility in terms of acceptability from the siblings' perspectives.

Methods: This study derives from a pilot study of 26 families including 37 siblings recruited from one pediatric oncology center. Standard FTI comprises six meetings with the family, led by two interventionists, with the main goal to facilitate family communication on illness-related topics (e.g., prognosis, the invisibility of healthy siblings). This paper focuses on interview and survey data from siblings after participation in FTI. The study is registered at ClinicalTrials.gov (Identifier NCT03650530).

Results: The siblings, aged 6 to 24 years, stated that the interventionists made the meetings feel like a safe environment and that it was a relief for the siblings to talk. They reported that FTI helped the family talk openly about illness-related topics, which they felt led to increased family understanding and improved relationships. The siblings described that FTI also helped them with their school situation. The majority of the siblings reported that FTI came at the right time and involved an appropriate number of meetings.

Conclusion: According to the siblings, the timing, content, and structure of FTI were appropriate. FTI showed benefits for both the siblings and each family as a whole.

sted, utgiver, år, opplag, sider
2021. Vol. 69, nr 3, artikkel-id e29517
Emneord [en]
Beardslee's family intervention, Family talk intervention, Pediatric oncology, Psychosocial support, Siblings
HSV kategori
Identifikatorer
URN: urn:nbn:se:esh:diva-9334DOI: 10.1002/pbc.29517ISI: 000736710700001PubMedID: 34971075OAI: oai:DiVA.org:esh-9334DiVA, id: diva2:1624485
Ingår i projekt
Ett familjebaserat stödprogram till barnfamiljer där en förälder eller ett barn har en livshotande sjukdom: En utvärdering av effekt och implementering i klinisk praktik, Swedish Research Council, Forte, Swedish Research Council for Health, Working Life and Welfare, Swedish Cancer Society, Swedish Childhood Cancer Foundation
Forskningsfinansiär
Swedish Childhood Cancer Foundation, TJ2015-0005Swedish Childhood Cancer Foundation, PR2016-013Magnus Bergvall Foundation, 2018-02507Tilgjengelig fra: 2022-01-04 Laget: 2022-01-04 Sist oppdatert: 2023-05-02bibliografisk kontrollert

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Eklund, RakelKreicbergs, UlrikaLövgren, Malin

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