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The Family Talk Intervention in palliative home care when a parent with dependent children has a life-threatening illness: A feasibility study from parents' perspectives
Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Capio Palliativ vård Dalen.ORCID iD: 0000-0003-2711-0245
Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Karolinska universitetssjukhuset.ORCID iD: 0000-0001-5524-0843
Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC.ORCID iD: 0000-0002-9396-9800
Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Karolinska institutet.ORCID iD: 0000-0003-4736-500X
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2021 (English)In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 19, no 2, p. 154-160Article in journal (Refereed) Published
Abstract [en]

OBJECTIVE: One of the main goals of the Family Talk Intervention (FTI) is to increase communication within families with dependent children about illness-related consequences and to support parenting. FTI is family-centered and includes six manual-based meetings led by two interventionists. This study aims to evaluate the feasibility of the FTI in terms of acceptability from the perspective of parents in families with dependent children where one parent receives specialized palliative home care.

METHOD: A descriptive design employing mixed methods was used to evaluate the FTI in specialized palliative home care. In total, 29 parents participated in interviews and responded to a questionnaire following FTI. Qualitative content analysis and descriptive statistics were used for analyses.

RESULTS: FTI responded to both the ill parent's and the healthy co-parent's expectations, and they recommended FTI to other families. Parents found the design of FTI to be well-structured and flexible according to their families' needs. Many parents reported a wish for additional meetings and would have wanted FTI to start earlier in the disease trajectory. Parents also would have wished for a more thorough briefing with the interventionists to prepare before the start. The importance of the interventionists was acknowledged by the parents; their professional competence, engagement, and support were vital for finding ways to open communication within the family. The FTI meetings provided them with a setting to share thoughts and views. Parents clearly expressed that they would never have shared thoughts and feelings in a similar way without the meetings.

SIGNIFICANCE OF RESULTS: According to parents, FTI was found acceptable in a palliative home care context with the potential to add valuable support for families with minor children when a parent is suffering from a life-threatening illness.

Place, publisher, year, edition, pages
2021. Vol. 19, no 2, p. 154-160
Keywords [en]
Children, Communication, Intervention, Life-threatening illness, Palliative care, Parents
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-8358DOI: 10.1017/S1478951520000735ISI: 000644492700005PubMedID: 32854809OAI: oai:DiVA.org:esh-8358DiVA, id: diva2:1485463
Part of project
The Family Talk Intervention in clinical practice when a parent with dependent children or a child is severely ill: An effectiveness-implementation study, Swedish Research Council, Forte, Swedish Research Council for Health, Working Life and Welfare, Swedish Cancer Society, Swedish Childhood Cancer Foundation
Funder
Familjen Erling-Perssons StiftelseAvailable from: 2020-11-02 Created: 2020-11-02 Last updated: 2023-04-11Bibliographically approved

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Alvariza, AnetteJalmsell, LiEklund, RakelLövgren, MalinKreicbergs, Ulrika

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