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COVID-19 IDD: A global survey exploring family members' and paid staff's perceptions of the impact of COVID-19 on individuals with intellectual and developmental disabilities and their caregivers
UCD Centre for Disability Studies, University College Dublin, Ireland.ORCID-id: 0000-0002-9083-3457
La Trobe University, Australia.ORCID-id: 0000-0003-4915-2729
University of British Columbia, Canada.
University of Kent, United Kingdom.
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2020 (Engelska)Ingår i: HRB open research, ISSN 2515-4826, Vol. 3, artikel-id 39Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Background: This protocol outlines research to explore family members' and paid staff's perceptions of the impact of COVID-19 on individuals with intellectual and developmental disabilities and their caregivers. Evidence suggests that people with intellectual and developmental disabilities experience disparities in healthcare access and utilisation. This disparity was evident early in the pandemic when discussions arose regarding the potential exclusion of this population to critical care.

Methods: An anonymous online survey will be conducted with caregivers, both family members and paid staff, to explore their perceptions of the impact of COVID-19 in terms of demographics, living arrangements, access to services, social distancing, and carer wellbeing. The survey will be developed by the research team, many of whom are experts in intellectual disability within their own jurisdictions. Using back-translation our team will translate the survey for distribution in 18 countries worldwide for international comparison. The survey team have extensive personal and professional networks and will promote the survey widely on social media with the support of local disability and advocacy agencies. Statistical descriptive and comparative analyses will be conducted. Ethical approval has been obtained for this study from University College Dublin's Human Research Ethics Committee (HS-20-28-Linehan).

Dissemination: Study findings will be prepared in a number of formats in order to meet the needs of different audiences. Outputs will include academic papers, lessons learned paper, practice guidelines, reports, infographics and video content. These outputs will be directed to families, frontline and management delivering disability services, national-level policy makers, healthcare quality and delivery authorities, national pandemic organisations and international bodies.

Ort, förlag, år, upplaga, sidor
2020. Vol. 3, artikel-id 39
Nyckelord [en]
COVID-19, Caregivers Carers, Coronavirus, Health Disparity, Intellectual Disability, Intellectual and Developmental Disability, Pandemic
Nationell ämneskategori
Socialt arbete Tvärvetenskapliga studier inom samhällsvetenskap Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi
Identifikatorer
URN: urn:nbn:se:esh:diva-8564DOI: 10.12688/hrbopenres.13077.2PubMedID: 33392440OAI: oai:DiVA.org:esh-8564DiVA, id: diva2:1524600
Ingår i projekt
En global studie av Covid 19s påverkan på personer med intellektuell funktionsnedsättning och deras stödpersoner - den svenska delstudien, Forskningsrådet Formas
Anmärkning

Previously titled: COVID-19 IDD: A global survey exploring the impact of COVID-19 on individuals with intellectual and developmental disabilities and their caregivers

Tillgänglig från: 2021-02-01 Skapad: 2021-02-01 Senast uppdaterad: 2023-11-21Bibliografiskt granskad

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Tideman, Magnus

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Linehan, ChristineAraten-Bergam, TalBigby, ChristineBrown, MichaelBredewold, FemmianneChirwa, MasausoCui, JialiangGomiero, TizianoKroll, ThiloNarayan, JayanthiNearchou, FinikiSantos, Flávia H.Šiška, JanStainton, TimTideman, Magnus
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Institutionen för socialvetenskap
Socialt arbeteTvärvetenskapliga studier inom samhällsvetenskapFolkhälsovetenskap, global hälsa, socialmedicin och epidemiologi

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Totalt: 355 träffar
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