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The participation of older people with and without dementia in public space, through the lens of everyday technology use
Karolinska institutet.ORCID iD: 0000-0001-5804-0433
2020 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Participation in activities and places within public space has been linked to numerous health benefits and yet, little is known about participation among older people with and without dementia. Insights about participation in activities and places within public space can contribute to the somewhat ambiguous definition of participation, as “involvement in a life situation”, by acknowledging the complexity and interrelatedness of subjective, social, contextual, temporal, and technological aspects of participation. Thus, the overarching aim of the four studies was to explore participation in activities and places within public space, among older people with and without dementia in two European countries (Sweden and UK), and to evaluate how different aspects, such as the relevance and perceived ability to use Everyday Technologies (ETs), interact with and influence participation, over time.

Across all studies, interviews used the Participation in Activities and Places Outside Home Questionnaire (ACT-OUT) and the Everyday Technology Use Questionnaire (ETUQ), in order to focus on the perspectives of older people with and without dementia themselves. Study one explored stability and changes in participation in places visited within public space in relation to the relevance of ETs used in public space, among a baseline Swedish sample. Study two utilised ordinal regression to investigate the ways in which perceived risks and ET use were associated with out-of-home participation, among a UK sample of older people. Using a mixed methods design and data visualisations, study three delved into aspects of social participation in more depth, including ET use and social deprivation of the living environment, among two UK sub-samples of older people with and without dementia. Study four’s longitudinal design and multilevel modelling deepened the knowledge about how use of ET outside home, relates to participation in places visited within public space among a Swedish sample of older people with dementia over time.

Study one’s findings demonstrated a statistically significant positive association between a higher person measure of ability to use ETs and higher participation in places visited within public space, among the Swedish sub-sample of older people with dementia but not those without dementia. According to the ordinal regression model in study two, a higher probability of ET use was associated with a higher level of out-of-home participation, among the UK sample of older people. By elucidating motivators, considerations that require extra attention, and management strategies among UK sub-samples of older people with and without dementia, study three provided insights into the nuances of social participation. Finally, study four’s findings revealed that decreasing use of ET outside home was associated with decreasing participation in places visited within public space, in a statistically significant way when accounting for age.

In summary, this thesis contributes empirical insights about the participation of older people with and without dementia in activities and places within public space, through the lens of ET use. Such knowledge can be used to develop targeted health and social care planning and the design of more inclusive places, technologies, and services.

Place, publisher, year, edition, pages
Stockholm: Karolinska institutet , 2020. , p. 118
National Category
Occupational Therapy
Identifiers
URN: urn:nbn:se:esh:diva-8823Libris ID: r4czjlvgpwb3kc6cISBN: 9789180160841 (print)OAI: oai:DiVA.org:esh-8823DiVA, id: diva2:1554053
Public defence
2021-01-22, Rum H3, Zanderska Huset, Karolinska institutet, Alfred Nobels Allé 23, Huddinge, 09:00 (English)
Opponent
Supervisors
Available from: 2021-05-11 Created: 2021-05-11 Last updated: 2021-05-11Bibliographically approved
List of papers
1. Everyday technologies and public space participation among people with and without dementia
Open this publication in new window or tab >>Everyday technologies and public space participation among people with and without dementia
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2019 (English)In: Canadian Journal of Occupational Therapy / Revue Canadienne d`Ergotèrapie, ISSN 0008-4174, E-ISSN 1911-9828, Vol. 86, no 5, p. 400-411Article in journal (Refereed) Published
Abstract [en]

Background: Occupational therapists support everyday technology use; however, it is necessary to consider the challenges that people with dementia encounter with everyday technologies when participating in various places within public space.

Purpose: The purpose of the study was to explore stability and change in participation in places visited within public space in relation to the relevance of everyday technologies used within public space.

Method: People with dementia (n = 35) and people with no known cognitive impairment (n = 34) were interviewed using the Participation in Activities and Places Outside Home Questionnaire and the Everyday Technology Use Questionnaire. Data analysis used modern and classical test theory.

Findings: Both samples participated in places within public space; however, participation and relevance of everyday technologies were significantly lower for the dementia group.

IMPLICATIONS: To enable participation, occupational therapists need to be aware of challenges that technologies and places within public space present to people with dementia.

Abstract [fr]

Description: Les ergothérapeutes favorisent l’utilisation des technologies courantes; toutefois, il est essentiel de prendre en compte les difficultés rencontrées par les personnes atteintes d’une démence face aux technologies courantes lorsqu’elles participent à des activités dans divers lieux situés dans l’espace public. But. Cette étude visait à explorer la stabilité et le changement en matière de participation dans des lieux fréquentés dans l’espace public, en lien avec la pertinence des technologies courantes utilisées dans l’espace public.

Méthodologie: Des entrevues ont été effectuées auprès de personnes atteintes de démence (n = 35) et de personnes n’ayant aucun trouble cognitif connu (n = 34) à l’aide du Participation in Activities and Places Outside Home Questionnaire et du Everyday Technology Use Questionnaire. L’analyse de données était basée sur la théorie moderne et classique des tests.

Résultats: Les deux échantillons ont participé à différentes activités dans des lieux situés dans l’espace public; toutefois, la participation et la pertinence des technologies courantes étaient beaucoup plus faibles chez le groupe de personnes atteintes d’une démence.

Conséquences: Pour favoriser la participation des personnes atteintes de démence, les ergothérapeutes doivent être conscients des difficultés rencontrées par ces personnes face aux technologies et aux lieux situés dans l’espace public.

Keywords
Community participation, Dementia, Environment, Geriatrics, Technology, Démence, Environnement, Gériatrie, Participation communautaire, Technologie
National Category
Occupational Therapy
Identifiers
urn:nbn:se:esh:diva-8786 (URN)10.1177/0008417419837764 (DOI)31142140 (PubMedID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare
Note

Forskningsfinansiär: Marie Skłodowska Curie Actions –Innovative Training Networks, H2020-MSCA-ITN-2015

Projektnummer: 676265

Available from: 2021-04-29 Created: 2021-04-29 Last updated: 2021-05-11Bibliographically approved
2. Perceived risks, concession travel pass access and everyday technology use for out-of-home participation: cross-sectional interviews among older people in the UK.
Open this publication in new window or tab >>Perceived risks, concession travel pass access and everyday technology use for out-of-home participation: cross-sectional interviews among older people in the UK.
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2020 (English)In: BMC Geriatrics, E-ISSN 1471-2318, Vol. 20, no 1, article id 192Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: The health-promoting qualities of participation as an opportunity for social and cognitive engagement are well known. Use of Everyday Technology such as Smartphones or ATMs, as enabling or disabling factors for out-of-home participation is however under-researched, particularly among older people with and without dementia. Out-of-home participation involves participation in places and activities outside of a person's home, in public space. Situated within the context of an increasingly technological society, the study investigated factors such as perceived risks, access to a concession travel pass and use of Everyday Technologies, and their relationship with out-of-home participation, among older people in the UK.

METHODS: One hundred twenty-eight older people with and without dementia in urban and rural environments in the UK, were interviewed using the Participation in ACTivities and Places OUTside Home (ACT-OUT) Questionnaire and the Everyday Technology Use Questionnaire (ETUQ). Associations between Everyday Technology use, perceived risk of falling, functional impairment, access to a concession travel pass and out-of-home participation were investigated using ordinal regression.

RESULTS: A higher probability of Everyday Technology use (Odds Ratio [OR] = 1.492; 95% Confidence Interval [CI] = 1.041-1.127), perceived risk of falling outside home (OR = 2.499; 95% CI = 1.235-5.053) and, access to a concession travel pass (OR = 3.943; 95% CI = 1.970-7.893) were associated with a higher level of out-of-home participation. However, other types of risk (getting lost; feeling stressed or embarrassed) were not associated with out-of-home participation. Having a functional impairment was associated with a low probability of a higher level of out-of-home participation (OR = .470; 95% CI = .181-1.223). Across the sample, 'outside home' Everyday Technologies were used to a higher degree than 'portable' Everyday Technologies which can be used both in and outside home.

CONCLUSIONS: The study provides insights into perceived risks, access to a concession travel pass and use of Everyday Technologies, and their relationship with out-of-home participation, among older people in the UK. Increased knowledge about factors associated with out-of-home participation may help to guide targeted health and social care planning.

Keywords
Activities of daily living, Dementia, Environment, Older adults, Risk, Social participation, Technology
National Category
Occupational Therapy
Identifiers
urn:nbn:se:esh:diva-8785 (URN)10.1186/s12877-020-01565-0 (DOI)32503429 (PubMedID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2013–2104
Note

Forskningsfinansiär:  Marie Skłodowska Curie Actions –Innovative Training Networks, H2020-MSCA-ITN-2015

Projektnummer: 676265

Available from: 2021-04-29 Created: 2021-04-29 Last updated: 2024-07-04Bibliographically approved
3. Social Participation in Relation to Technology Use and Social Deprivation: A Mixed Methods Study Among Older People with and without Dementia
Open this publication in new window or tab >>Social Participation in Relation to Technology Use and Social Deprivation: A Mixed Methods Study Among Older People with and without Dementia
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2020 (English)In: International Journal of Environmental Research and Public Health, ISSN 1661-7827, E-ISSN 1660-4601, Vol. 17, no 11, article id E4022Article in journal (Refereed) Published
Abstract [en]

Social participation is a modifiable determinant for health and wellbeing among older people; however, social participation is increasingly dependent on technology use. This study investigated social participation in relation to Everyday Technology use and social deprivation of the living environment, among older people with and without dementia in the United Kingdom. Sixty-four people with dementia and sixty-four people without dementia were interviewed using standardized questionnaires: The Participation in ACTivities and Places OUTside Home Questionnaire and Everyday Technology Use Questionnaire. A mixed methods approach integrated statistical analyses and content analysis of free-text responses, through data visualizations. Small, statistically significant associations were found between social participation and Everyday Technology use outside home, for participants with dementia (Rs = 0.247; p = 0.049) and without dementia (Rs = 0.343; p = 0.006). A small, statistically significant association was identified between social participation and social deprivation in the living environment, among only participants with dementia (Rs = 0.267, p = 0.033). The content analysis and graphical joint display revealed motivators, considerations that require extra attention, and strategies for managing social participation. The results underline how Everyday Technology use can be assistive to social participation but also the need to consider social deprivation of the living environment, especially among people with dementia.

Keywords
Dementia, Digital accessibility, Information and communication technologies, Social participation, Technologies for aging
National Category
Occupational Therapy
Identifiers
urn:nbn:se:esh:diva-8784 (URN)10.3390/ijerph17114022 (DOI)32516958 (PubMedID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2013–2104
Note

Article belongs to the Special Issue: Assistive Technologies for Children, Young People and Adults

Forskningsfinansiär:  Marie Skłodowska-Curie Actions—Innovative TrainingNetworks, H2020-MSCA-ITN-2015

Projektnummer: 676265

Available from: 2021-04-29 Created: 2021-04-29 Last updated: 2023-10-24Bibliographically approved
4. Enacting citizenship through participation in a technological society: a longitudinal three-year study among people with dementia in Sweden
Open this publication in new window or tab >>Enacting citizenship through participation in a technological society: a longitudinal three-year study among people with dementia in Sweden
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2023 (English)In: Ageing & Society, ISSN 0144-686X, E-ISSN 1469-1779, Vol. 43, no 2, p. 276-297Article in journal (Refereed) Published
Abstract [en]

The role of Everyday Technology (ET) use is presented as subsidiary or neutral in policy for age- and dementia-friendly communities; and yet, research suggests that older people, especially those with dementia, experience increased challenges using ET in their everyday lives. Through the lens of micro-citizenship, the study aims to deepen the knowledge about how use of ET outside the home, including portable ETs, relates to participation in places visited within public space among people with dementia over time. Using a longitudinal study design, 35 people with dementia were recruited at baseline and followed over three years. Data were collected through semi-structured interviews using standardised questionnaires: the Participation in ACTivities and Places OUTside Home Questionnaire (ACT-OUT) and the Everyday Technology Use Questionnaire (ETUQ). Random intercept modelling and descriptive statistics were used to analyse the data. Throughout the three-year study, decreasing use of ET outside the home, including portable ETs, was associated with decreasing participation in places visited within public space, in a statistically significant way when controlling for age (F = 7.59, p = 0.01). The findings indicate that facilitating access and use of ET outside the home, among people with dementia, should be integral to promoting and maintaining participation in age- and dementia-friendly communities.

Keywords
Ageing, Citizenship, Dementia, Environment, Longitudinal, Social participation, Technology
National Category
Occupational Therapy
Identifiers
urn:nbn:se:esh:diva-8801 (URN)10.1017/S0144686X21000544 (DOI)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2013–2104The Kamprad Family Foundation, 20180057
Note

Forskningsfinansiär: Marie Skłodowska Curie Actions – Innovative Training Networks, H2020-MSCA-ITN-2015

Projektnummer: 676265

Finansiering av Open access: Karolinska institutet

Available from: 2021-05-05 Created: 2021-05-05 Last updated: 2023-12-13Bibliographically approved

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Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
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  • asciidoc
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