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Family bonding as a result of the family talk intervention in pediatric oncology: Siblings’ experiences
Ersta sjukhus, Stockholm.
Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Uppsala universitet.ORCID iD: 0000-0002-9396-9800
Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Karolinska institutet.ORCID iD: 0000-0002-8185-781X
Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Karolinska Universitetssjukhuset.ORCID iD: 0000-0003-4736-500X
2021 (English)In: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 69, no 3, article id e29517Article in journal (Refereed) Published
Abstract [en]

Background: Childhood cancer affects the whole family. Illness-related stressors increase the risk for poor family communication, affecting the family's well-being. Siblings describe worry and poor illness-related information. As there are few evaluated family interventions in pediatric oncology, this study aimed to pilot-test a family-centered intervention, the family talk intervention (FTI), in pediatric oncology. This paper examined the feasibility in terms of acceptability from the siblings' perspectives.

Methods: This study derives from a pilot study of 26 families including 37 siblings recruited from one pediatric oncology center. Standard FTI comprises six meetings with the family, led by two interventionists, with the main goal to facilitate family communication on illness-related topics (e.g., prognosis, the invisibility of healthy siblings). This paper focuses on interview and survey data from siblings after participation in FTI. The study is registered at ClinicalTrials.gov (Identifier NCT03650530).

Results: The siblings, aged 6 to 24 years, stated that the interventionists made the meetings feel like a safe environment and that it was a relief for the siblings to talk. They reported that FTI helped the family talk openly about illness-related topics, which they felt led to increased family understanding and improved relationships. The siblings described that FTI also helped them with their school situation. The majority of the siblings reported that FTI came at the right time and involved an appropriate number of meetings.

Conclusion: According to the siblings, the timing, content, and structure of FTI were appropriate. FTI showed benefits for both the siblings and each family as a whole.

Place, publisher, year, edition, pages
2021. Vol. 69, no 3, article id e29517
Keywords [en]
Beardslee's family intervention, Family talk intervention, Pediatric oncology, Psychosocial support, Siblings
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-9334DOI: 10.1002/pbc.29517ISI: 000736710700001PubMedID: 34971075OAI: oai:DiVA.org:esh-9334DiVA, id: diva2:1624485
Part of project
The Family Talk Intervention in clinical practice when a parent with dependent children or a child is severely ill: An effectiveness-implementation study, Swedish Research Council, Forte, Swedish Research Council for Health, Working Life and Welfare, Swedish Cancer Society, Swedish Childhood Cancer Foundation
Funder
Swedish Childhood Cancer Foundation, TJ2015-0005Swedish Childhood Cancer Foundation, PR2016-013Magnus Bergvall Foundation, 2018-02507Available from: 2022-01-04 Created: 2022-01-04 Last updated: 2023-05-02Bibliographically approved

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Eklund, RakelKreicbergs, UlrikaLövgren, Malin

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