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Nursing as a balancing act in allogeneic hematopoietic cell transplantation: Nurses' experiences through participation in workshops
Karolinska Institutet; Sophiahemmet högskola.ORCID iD: 0000-0002-3672-7055
Karolinska Institutet; Sophiahemmet högskola.
Karolinska universitetssjukhuset.
Karolinska Institutet; Karolinska universitetssjukhuset.
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2023 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 63, article id 102300Article in journal (Refereed) Published
Abstract [en]

Purpose

Registered nurses have a key role in supporting patients during the trajectory of allogeneic hematopoietic cell transplantation (allo-HCT). However, the circumstances for performing nursing are not previously outlined therefore the purpose of this study was to explore the conditions for nursing care in allo-HCT.

Method

An explorative design, inspired by Experienced based co-design was used to gather experiences, thoughts and visions of nursing care in allo-HCT by means of workshops. Thematic analysis was applied to analyse the data.

Result

An overarching theme that was defined from the data was nursing as a balancing act and illustrating conditions for performing nursing in a highly medical-technical environment. The theme included three sub-themes: Fragmented care vs holistic care outlining how the holistic approach to care disappeared when the care became fragmented; Proximity vs distance illuminating the balance between seeing the patient as an independent person despite illness and the need for support; Teamwork vs stand-alone demonstrating the difficulties inherent in adapting to both teamwork and independence in nursing.

Conclusion

This study shows that the conditions for RNs and nursing care in allo-HCT care is to balance tasks and approach towards the patient and themselves. RNs must weigh and balance what is most important in the moment and where something else often has to be put aside. It is difficult for RNs to find the time to plan each patient's care and to support the patient in the way they see as most optimal to prepare for discharge, self-care and rehabilitation.

Place, publisher, year, edition, pages
Elsevier, 2023. Vol. 63, article id 102300
Keywords [en]
Allogeneic hematopoietic cell transplantation, Holistic nursing, Nursing care, Oncology nursing
National Category
Nursing
Research subject
The Individual in the Welfare Society, Palliative Care
Identifiers
URN: urn:nbn:se:esh:diva-10119DOI: 10.1016/j.ejon.2023.102300PubMedID: 36893569OAI: oai:DiVA.org:esh-10119DiVA, id: diva2:1740768
Funder
Sjöberg FoundationAvailable from: 2023-03-02 Created: 2023-03-02 Last updated: 2023-06-30Bibliographically approved

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Lundh Hagelin, Carina

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