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The influence of illness perspectives on self-management of chronic disease
Mittuniversitetet.
Mittuniversitetet, Universitetet i Tromsø, Norge.
Mittuniversitetet.
2011 (English)In: Journal of Nursing and Healthcare of Chronic Illness, ISSN 1752-9816, E-ISSN 1752-9824, Vol. 3, no 2, 109-118 p.Article in journal (Refereed) Published
Abstract [en]

Aim: To explore people’s illness perspectives and related self-management of chronic disease.

Background: Individuals’ illness beliefs and perspectives have been suggested to influence their self-management behaviour. However, research that has examined the influence of illness perspectives on chronic disease self-management has been largely quantitative and has focused on selected elements of self-management. How individuals’ illness perspectives influence their whole of self-management has not been investigated in depth.

Method: The phenomenographic research study entailed 26 narrative interviews with Swedish adults with a variety of chronic diseases. Data were collected mostly during 2006.

Results: The participants described two illness perspectives; being life-oriented meant to focus upon how to live a good life with disease, whereas a diseaseoriented illness perspective emphasised the medical and physiological aspects of disease. The participants attested to one of the two illness perspectives as a main perspective, although they shifted between the perspectives depending of context and illness experience. The participants’ illness perspectives were reflected in their understandings of self-management. Participants with a dominant life-oriented illness perspective performed self-management in order to continue living a ‘normal’ life (e.g. facilitate activity and mental well-being). When holding a disease-oriented illness perspective, self-management was focused upon controlling disease (e.g. symptom management and avoiding disease related complications).

Conclusions: People with chronic illness hold a dominant illness perspective that determines how they understand and enact self-management. These perspectives 2011 Blackwell Publishing Ltd 109 are not static; instead individuals tend to shift between the perspectives under specific circumstances.

Relevance to clinical practice: Health-care providers shall acknowledge that individuals’ with chronic illness shift between a life-oriented and a disease-oriented illness perspective. The results of the current study can be used by health-care providers in order to launch a dialogue in order to support individuals’ self-management.

Place, publisher, year, edition, pages
Singapore: Blackwell Publishing Ltd , 2011. Vol. 3, no 2, 109-118 p.
Keyword [en]
Chronic illness, Illness representatives, Health beliefs, Illness perspectives, Self-management, Self-care
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-5528DOI: 10.1111/j.1752-9824.2011.01087.xOAI: oai:DiVA.org:esh-5528DiVA: diva2:1065535
Projects
Exploring individuals conceptions as a way to understand self-management among people living with long term medical conditions.
Available from: 2011-03-28 Created: 2016-11-30 Last updated: 2017-03-28Bibliographically approved

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