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Att leva med Crohns sjukdom och ulcerös kolit: en litteraturöversikt över patienters upplevelser av det dagliga livet
Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
2017 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
Living with Crohn’s disease and ulcerative colitis : a literature review of patients' experiences of daily life (English)
Abstract [sv]

Bakgrund: Crohns sjukdom och ulcerös kolit är kroniska, inflammatoriska tarmsjukdomar som under de senaste decennierna har ökat påtagligt. De kan drabba människor i alla åldrar och ha en negativ påverkan på patienternas livskvalitet. Sjuksköterskan har en viktig roll i att se till att patienterna får tillräckligt med information och stöd för att klara av att sköta sin egenvård.

Syfte: Syftet var att belysa hur patienter med Crohns sjukdom och ulcerös kolit upplevde symtomens påverkan i det dagliga livet och hur de anpassat sin tillvaro efter sjukdomen.

Metod: En litteraturöversikt grundad på elva vårdvetenskapliga studier med kvalitativ design genomfördes. Studierna analyserades utifrån det valda syftet och nyckelfynd sammanställdes under två huvudteman.

Resultat: Litteraturöversikten belyste hur deltagarna upplevde sjukdomarnas symtom och vilken påverkan de hade på det vardagliga livet. Här beskrevs påverkan på familjeliv, relationer, sociala sammanhang och arbetsliv. Sammanfattande utgjorde sjukdomarna ett hinder. Vidare beskrevs sjukdomarnas emotionella påverkan och hur deltagarna upplevde att de led av en osynlig sjukdom. Avslutningsvis visas vilka attityder deltagarna hade mot livet, vilka strategier som använts för att hantera sjukdomen och att acceptans av sjukdomen var viktig för att lära sig att leva med den.

Diskussion: Resultatfynden har diskuterats utifrån Callista Roys adaptionsmodell och kopplats till andra vetenskapliga studier. Livet med en kronisk sjukdom innebär ständiga förändringar och sjuksköterskan kan genom att identifiera faktorer som påverkar adaptionen hjälpa patienten att uppnå balans.

Abstract [en]

Background: Crohn's disease and ulcerative colitis are chronic inflammatory bowel diseases that have increased significantly in recent decades. The diseases can debut at all ages, and they have a negative effect on the patients´ quality of life. A nurse has an important part of ensuring that patients receive sufficient information and support to manage their self-care.

Aim: The purpose was to illuminate how patients with Crohn's disease and ulcerative colitis experienced the effects of the symptoms in their daily lives and how they adapted to the disease.

Method: A literature review based on eleven nursing studies with qualitative design was conducted. The studies were analyzed based on the chosen purpose and key findings were compiled under two main themes.

Results: The literature review illustrated how the participants experienced the symptoms of the disease and what impact they had on everyday life. The impact on family life, relationships, social contexts and working life were described. In summary, the disease was an obstacle. The emotional impact of the disease and how the participants perceived that they suffered from an invisible disease were described. Finally, what attitudes the participants had towards life, what strategies were used to manage the disease, and that acceptance of the disease was important for learning to handle it.

Discussion: The findings have been discussed based on Callista Roys adaptation model and linked to other scientific studies. Life with a chronic disease involves constant changes, and the nurse can help the patient to achieve balance by identifying factors that affect the adaptation.

Place, publisher, year, edition, pages
2017. , 34 p.
Keyword [en]
Inflammatory bowel disease, Crohn's disease, Ulcerative colitis, Quality of life, Callista Roy, Patients experience
Keyword [sv]
Inflammatoriska tarmsjukdomar, Crohns sjukdom, Ulcerös kolit, Livskvalitet, Callista Roy, Patientupplevelse
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-6240OAI: oai:DiVA.org:esh-6240DiVA: diva2:1134780
Educational program
Bachelor of Science in Nursing
Uppsok
Medicine
Supervisors
Examiners
Available from: 2017-08-21 Created: 2017-08-21 Last updated: 2017-08-21Bibliographically approved

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