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Adaptation and evaluation of the Family Involvement and Alienation Questionnaire for use in the care of older people, psychiatric care, palliative care and diabetes care
Ersta Sköndal Bräcke University College, Department of Health Care Sciences.ORCID iD: 0000-0002-2108-1343
Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Capio Palliativ vård Dalen, Stockholm.ORCID iD: 0000-0003-2711-0245
Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
Högskolan Dalarna; Uppsala universitet.
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2018 (English)In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 74, no 8, p. 1839-1850Article in journal (Refereed) Published
Abstract [en]

AIM: To adapt the Family Involvement and Alienation Questionnaire for use in the care of older people, psychiatric care, palliative care and diabetes care and to evaluate its validity and reliability.

BACKGROUND: Involvement in the professional care has proven to be important for family members. However, they have described feelings of alienation in relation to how they experienced the professionals' approach. To explore this issue, a broad instrument that can be used in different care contexts is needed.

DESIGN: A psychometric evaluation study, with a cross-sectional design.

METHOD: The content validity of the Family Involvement and Alienation Questionnaire was evaluated during 2014 by cognitive interviews with 15 family members to adults in different care contexts. Psychometric evaluation was then conducted (2015-2016). A sample of 325 family members participated, 103 of whom in a test-retest evaluation. Both parametric and non-parametric methods were used.

RESULTS: The content validity revealed that the questionnaire was generally understood and considered to be relevant and retrievable by family members in the contexts of the care of older people, psychiatric care, palliative care and diabetes care. Furthermore, the Family Involvement and Alienation Questionnaire (Revised), demonstrated satisfactory psychometric properties in terms of data quality, homogeneity, unidimensionality (factor structure), internal consistency and test-retest reliability.

CONCLUSION: The study provides evidence that the Family Involvement and Alienation Questionnaire (Revised) is reliable and valid for use in further research and in quality assessment in the contexts of the care of older people, psychiatric care, palliative care and diabetes care. This article is protected by copyright. All rights reserved.

Place, publisher, year, edition, pages
2018. Vol. 74, no 8, p. 1839-1850
Keywords [en]
Care of older people, Diabetes care, Family involvement, Instrument development, Nursing, Palliative care, Psychiatric care, Psychometric testing, Reliability, Validity
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Nursing
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URN: urn:nbn:se:esh:diva-6718DOI: 10.1111/jan.13579PubMedID: 29603762OAI: oai:DiVA.org:esh-6718DiVA, id: diva2:1197247
Available from: 2018-04-12 Created: 2018-04-12 Last updated: 2023-10-24Bibliographically approved

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Ewertzon, MatsAlvariza, AnetteWinnberg, ElisabethAndershed, BirgittaMomeni, PardisKneck, Åsa

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