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When Nursing Care and Clinical Trials Coincide: A Qualitative Study of the Views of Nordic Oncology and Hematology Nurses on Ethical Work Challenges
Ersta Sköndal Bräcke University College, Department of Health Care Sciences. Centrum för forsknings- och bioetik, Centre for Research Ethics & Bioethics, Uppsala universitet.ORCID iD: 0000-0001-6011-6740
Danmark.
Uppsala universitet.ORCID iD: 0000-0001-7486-4678
Finland.ORCID iD: 0000-0002-0095-3683
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2018 (English)In: Journal of Empirical Research on Human Research Ethics, ISSN 1556-2646, E-ISSN 1556-2654, Journal of Empirical Research on Human Research Ethics, ISSN 1556-2646, p. 1-11Article in journal (Refereed) Epub ahead of print
Abstract [en]

This study investigated the kinds of ethical challenges experienced by nurses in oncology and hematology when nursing care and research overlap in clinical trials, and how the nurses handle such challenges. Individual interviews with 39 nurses from Sweden, Denmark, and Finland indicated that all nurses were positive about research, considering it essential for developing the best care. Ethical challenges exist, however; the most difficult were associated with the end-of-life patients, no longer responsive to standard therapy, who eagerly volunteer for cutting-edge drug trials in the hope of gaining therapeutic benefit. Many nurses lacked systematic strategies for addressing such challenges but found support from their nursing colleagues and relied on the research protocols to guide them.

Place, publisher, year, edition, pages
2018. p. 1-11
Keywords [en]
Ethics, Cancer/oncology, Informed consent, Clinical trials, Hope, End-of-life, Hematology
National Category
Medical and Health Sciences Ethics
Identifiers
URN: urn:nbn:se:esh:diva-6880DOI: 10.1177/1556264618783555OAI: oai:DiVA.org:esh-6880DiVA, id: diva2:1236556
Available from: 2018-08-02 Created: 2018-08-02 Last updated: 2018-08-14Bibliographically approved

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Godskesen, Tove E.Eriksson, StefanHalkoaho, Arja
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