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End of life of patients treated with haemodialysis as narrated by their close relatives.
Sophiahemmet högskola, Karolinska institutet.
Karolinska institutet.
Sophiahemmet högskola, Karolinska institutet, Stiftelsen Stockholms sjukhem.ORCID iD: 0000-0002-0197-9121
Karolinska institutet, Danderyds sjukhus.
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2015 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 29, no 4, p. 776-84Article in journal (Refereed) Published
Abstract [en]

AIM: The study aimed to describe end of life for patients treated with maintenance haemodialysis as narrated by their close relatives.

INTRODUCTION: Many patients undergoing haemodialysis are older, have several comorbidities and underestimated symptoms and are in their last year of life. To improve care, we need to know more about their end-of-life situation.

DESIGN: Qualitative and descriptive.

METHODS: Qualitative retrospective interviews were conducted with 14 close relatives of deceased haemodialysis patients (3-13 months after death). Data were analysed using qualitative content analysis. The study is ethically approved.

FINDINGS: In the last months, a gradual deterioration in health with acute episodes necessitating hospital admissions was described. This involved diminishing living space and expressions of dejection, but also of joy. Three patterns emerged in the last weeks: uncertain anticipation of death as life fades away; awaiting death after haemodialysis withdrawal; and sudden but not unexpected death following intensive care. Findings show complexities of decisions on haemodialysis withdrawal.

CONCLUSIONS: Different end-of-life patterns all involved increasingly complex care needs and existential issues. Findings show a need for earlier care planning. The identification of organisational factors to facilitate continuity and whole person care to meet these patients' specific care needs with their complex symptom burdens and comorbidities is needed. Findings indicate the need for integration of a palliative care approach in the treatment of patients in haemodialysis care.

Place, publisher, year, edition, pages
2015. Vol. 29, no 4, p. 776-84
Keywords [en]
End of life, End-stage renal disease, Haemodialysis, Qualitative content analysis, Qualitative interviews, Retrospective interviews
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-7128DOI: 10.1111/scs.12209PubMedID: 25754028OAI: oai:DiVA.org:esh-7128DiVA, id: diva2:1264159
Available from: 2018-11-19 Created: 2018-11-19 Last updated: 2018-11-19Bibliographically approved

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