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Experiences of Individuals Awaiting Lung Transplantation
Karolinska institutet.
Karolinska institutet.
Ersta Sköndal Bräcke University College, Department of Health Care Sciences. Uppsala universitet.ORCID iD: 0000-0001-6011-6740
2018 (English)In: Respiratory care, ISSN 0020-1324, E-ISSN 1943-3654, Vol. 63, no 12, p. 1535-1540Article, review/survey (Refereed) Published
Abstract [en]

Lung transplantation is an established intervention for patients with advanced and life-threatening respiratory disease. Unfortunately, the shortage of organ donors results in a need for organs that greatly exceeds availability. This narrative review aimed to investigate the experiences of patients with respiratory diseases who wait for lung transplantation. Articles were retrieved from medical literature databases. Thirteen qualitative studies were reviewed, one of them used a mixed method. We found that individuals faced varied and complex situations differently while waiting for lung transplantations, depending on physical, psychological, social, and existential factors. Waiting gives hope for a future without the limitations imposed by the disease but also causes great stress. Many individuals struggled with the existential guilt associated with the privilege of having access to transplantation. This review highlighted that support from health-care professionals, next of kin, patients who had previously received a transplantation, and close friends have a vital role to play for individuals waiting for a lung transplantation.

Place, publisher, year, edition, pages
2018. Vol. 63, no 12, p. 1535-1540
Keywords [en]
Respiratory diseases, Lung transplantation, Waiting list Experiences, Palliative care
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-7194DOI: 10.4187/respcare.06401PubMedID: 30467225OAI: oai:DiVA.org:esh-7194DiVA, id: diva2:1273928
Available from: 2018-12-25 Created: 2018-12-25 Last updated: 2023-11-21Bibliographically approved

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Godskesen, Tove E.

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