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Närståendes upplevelser vid vårdande av en familjemedlem med Alzheimers sjukdom: En litteraturöversikt
Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
2018 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
Next of kin’s experiences caring for a family member with Alzheimer’s disease : A literature review (English)
Abstract [sv]

Bakgrund: Alzheimers sjukdom är en demenssjukdom som främst drabbar äldre men kan även förekomma bland yngre individer. Sjukdomen medför begränsningar så att patienten bland annat får svårigheter att hitta i sin omgivning eller känna igen tidigare bekanta saker. Närstående är därför betydelsefulla i vårdande av den drabbade. Ju mer vårdbehovet ökar, desto mer påverkas närstående socialt, fysiskt och psykiskt då de har ett stort ansvar i vårdande och det påverkar deras hälsa negativt. Det är därför viktig att vårdpersonal erbjuder dem det stöd de behöver i vårdandet.

Syfte: Att beskriva närståendes upplevelser av att vårda en familjemedlem som drabbats av Alzheimers sjukdom.

Metod: En litteraturöversikt grundad på nio kvalitativa studier som hittades i databaserna: CINAHL, PubMed och Ageline. Studierna söktes fram samt analyserades och gemensamma teman identifierades. 

Resultat: Fem huvudteman identifierades: att få diagnos, varierande känslor behov av kunskap och stöd, rollförändringar, och redskap i vårdande.

Diskussion: Närståendes upplevelser var både positiva och negativa. Resultatet diskuteras utifrån Roys adaptionsteori med ”individen” i fokus. En bättre förståelse av närståendes upplevelser i vårdande av personer med Alzheimers sjukdom både i samhället och hos vårdpersonal kan underlätta vårdande för familjemedlem och främja hälsa hos närstående. För att förebygga ohälsa och främjar livsvillkor krävs det stöd till både närstående och patienter. Mer forskning samt kontinuerliga utbildningar om närståendes upplevelser i vårdande av en person med Alzheimers sjukdom behövs.

Abstract [en]

Background: Alzheimer's disease is a dementia that primarily affects elderly but may occur among younger people too. The disease causes severe memory loss so that the patient, among other things, has difficulty finding out in his surroundings or recognizing previously familiar things. The next of kin are therefore important in caring for the sick person. As the need for care increases, the more it affects the next of kin socially, physically and mentally, because they have a major responsibility/role in caring and it can negatively affect their health. It is therefore important that healthcare professionals provide them with the support they need in caregiving.

Aim: To describe next of kin’s experiences of caring for a family member affected by Alzheimer's disease.

Method: A literature review based on nine qualitative studies found in the databases: CINAHL, PubMed and Ageline. The studies were searched, analyzed, and the common themes identified.

Results: Five main themes were identified: to get a diagnosis, the varying feelings, need of knowledge and support, role changes, and tools in caregiving.

Discussion: Next of kin’s experiences were both positive and negative. The results are discussed based on Roys adaptation theory with the “individual” in focus. A better understanding of the next of kin’s experience in caring for a person with Alzheimer's disease both in society and healthcare professionals can facilitate care for a family member and promote the health of their next of kin. To prevent ill health and promote good living conditions, support is required for both next of kin and his/her family member. More research as well as good and continuous education about the next of kin’s experiences in caring for a person with Alzheimer’s disease is needed.

Place, publisher, year, edition, pages
2018. , p. 35
Keywords [en]
Alzheimer's disease, Experiences, Next of kin
Keywords [sv]
Alzheimers sjukdom, Upplevelser, Närstående
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-7249OAI: oai:DiVA.org:esh-7249DiVA, id: diva2:1279815
Educational program
Bachelor of Science in Nursing
Uppsok
Medicine
Supervisors
Examiners
Available from: 2019-01-17 Created: 2019-01-17 Last updated: 2019-01-17Bibliographically approved

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