Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Living in the presence of death: An integrative literature review of relatives' important existential concerns when caring for a severely ill family member
Mid Sweden University, Department of Health Sciences, Östersund, Sweden.ORCID iD: 0000-0001-9623-5813
Bräcke Diakoni Foundation, Research Unit, Gothenburg, Sweden; Karolinska Institutet, Institution of Learning, Informatics, Management and Ethics, Medical Management Centre, Stockholm, Sweden; The Sahlgrenska Academy, University of Gothenburg, Institute of Health and Care Sciences, Sweden.
Angered Local Hospital, Gothenburg, Sweden; The Sahlgrenska Academy, University of Gothenburg, Institute of Health and Care Sciences, Sweden.
Sahlgrenska University Hospital, Department of Oncology, Clinical Trial Unit. Gothenburg, Sweden; The Sahlgrenska Academy, University of Gothenburg, Institute of Health and Care Sciences, Sweden; School of Life Sciences, University of Skövde, Sweden.
2012 (English)In: Open Nursing Journal, E-ISSN 1874-4346, Vol. 6, p. 1-12Article, review/survey (Refereed) Published
Abstract [en]

AIM: The aim of this study was to explore relatives' existential concerns when caring for a seriously ill family member as well as to describe interventions that meet these concerns.

METHODS: In this integrative literature review we assessed and classified 17 papers, 12 qualitative and 5 quantitative. Literature was sought in the databases Cinahl, PubMed, Psykinfo and Web of Science in September 2009 and in March 2010. Search terms used in different combinations were: family, family caregiver, next of kin, relatives, palliative, palliative care, end-of-life care, existential, spirit*. Data were redrawn from the papers results/findings, and synthesized into a new descriptive content.

RESULTS: The results were categorized from 13 papers exploring relatives' important existential concerns and 4 papers describing interventions aimed to support them in the existential area. A majority of the reviewed papers had been written in Sweden and concerned relatives of patients with cancer. One overarching theme, living in the presence of death, and three categories: responses to life close to death; support when death is near; and beyond the presence of death were created.

CONCLUSION: There is an urgent demand for large-scale studies using accurate methodology, as well as a need to design qualified investigations regarding the effects of various interventions, and to determine which interventions are the most effective in supporting relatives who experience existential distress manifested physically and/or psychologically. There is also a considerable demand for educational interventions among professionals in various healthcare settings to increase their knowledge regarding existential concerns among relatives.

Place, publisher, year, edition, pages
Bentham OPEN , 2012. Vol. 6, p. 1-12
Keywords [en]
Cancer, End-of-life care, Family, Incurable illness, Nursing, Review
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-7411DOI: 10.2174/1874434601206010001PubMedID: 22371820OAI: oai:DiVA.org:esh-7411DiVA, id: diva2:1305392
Available from: 2019-04-16 Created: 2019-04-16 Last updated: 2024-06-12Bibliographically approved

Open Access in DiVA

No full text in DiVA

Other links

Publisher's full textPubMed

Authority records

Melin-Johansson, Christina

Search in DiVA

By author/editor
Melin-Johansson, Christina
In the same journal
Open Nursing Journal
Nursing

Search outside of DiVA

GoogleGoogle Scholar

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 22 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf