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Meanings of feeling well for women with multiple sclerosis
Luleå tekniska universitet.
Luleå tekniska universitet.
Luleå tekniska universitet.
2010 (English)In: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557, Vol. 20, no 9, p. 1254-1261Article in journal (Refereed) Published
Abstract [en]

In research concerning multiple sclerosis (MS), the factors that impact on people's well-being and quality of life have been studied, but little has been written about what it means to feel well for women with MS. Therefore, in this study our aim was to describe meanings of feeling well for women with MS. We interviewed 15 women with MS, and a phenomenological hermeneutic interpretation was utilized to analyze the interviews. Through this study it can be understood that finding a pace where daily life goes on means that women with MS feel well when the illness is kept in check and is not the dominant experience. The findings of this study can be used to confirm women's experiences of feeling well, despite living with the consequences of MS. Health care professionals will find the results of this study useful when they reflect on and formulate the care of women with MS when attempting to support the latter's desire to feel well in their daily lives.

Place, publisher, year, edition, pages
2010. Vol. 20, no 9, p. 1254-1261
National Category
Nursing
Research subject
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-7771DOI: 10.1177/1049732310371103ISI: 000280688100009PubMedID: 20463358Scopus ID: 2-s2.0-77955584703OAI: oai:DiVA.org:esh-7771DiVA, id: diva2:1351507
Available from: 2016-09-29 Created: 2019-09-16 Last updated: 2019-09-19Bibliographically approved
In thesis
1. Meanings of women's experiences of living with multiple sclerosis
Open this publication in new window or tab >>Meanings of women's experiences of living with multiple sclerosis
2010 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The aim of this doctoral thesis was to describe meanings of women's experiences of living with multiple sclerosis (MS). It focuses specifically on the women's experiences of daily life (I), the experience of fatigue (II), experiences of feeling well (III) and experiences of treatment (IV). Narrative interviews were conducted with 25 women living with MS and the interviews were analyzed from a phenomenological hermeneutic interpretation.For women with MS, living with an unrecognizable body meant that the deterioration of their bodies had become clear and served as a hindrance in daily life. The experience of fatigue seemed to mean that the body instead of working as an implement in order to manage daily life had become an enemy. These experiences included bodily changes, which were evident to others, and imposed feelings of being met in a different way. The ill body threatens the women's dignity and they expressed being avoided by others as hurtful. Despite the fact of all aspects of daily life are being affected by illness, the women with MS nevertheless do find ways to experience feeling well. Feeling well, for women with MS can be understood as finding a pace where daily life goes on and the illness is not the dominant experience.This thesis suggests that meanings of women's experiences of living with MS can be comprehended as a movement between the two dimensions of having a value and feeling unimportant to others. In the dimension of having a value, feeling well is brought forward, meanwhile the dimension of feeling unimportant to others, implies suffering in the daily lives of women with MS. For these women recognizing oneself as valuable and sharing an understanding are important in order to feel dignified in daily life and to experience feeling well.

Place, publisher, year, edition, pages
Luleå: Luleå tekniska universitet, 2010. p. 69
National Category
Nursing
Research subject
Nursing
Identifiers
urn:nbn:se:esh:diva-7772 (URN)978-91-7439-091-9 (ISBN)
Public defence
2010-04-23, D770, 09:00 (Swedish)
Opponent
Note

Paper IV: Olsson, M., Skär, L., & Söderberg, S. Meanings of treatment for women with multiple sclerosis. Manuscript submitted.

Available from: 2019-09-19 Created: 2019-09-19 Last updated: 2019-09-19Bibliographically approved

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