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The meaning of women's experiences of living with multiple sclerosis
Luleå tekniska universitet.
Luleå tekniska universitet.ORCID iD: 0000-0001-5294-3332
Luleå tekniska universitet.
2008 (English)In: Health Care for Women International, ISSN 0739-9332, E-ISSN 1096-4665, Vol. 29, no 4, p. 416-430Article in journal (Refereed) Published
Abstract [en]

We conducted a qualitative inquiry in order to describe the meaning of women's experiences of living with multiple sclerosis (MS). Multiple sclerosis is a chronic autoimmune disease of the central nervous system. The majority of persons living with MS are women. Living with MS has been described as difficult because of the uncertainty of the illness. Ten women with MS were interviewed and the interviews were analyzed with a phenomenological hermeneutic interpretation. In this study, we suggest that the meaning of living with MS for women can be understood as trying to maintain power and living with an unrecognizable body. The bodies of women with MS serve as hindrances in everyday life. Bodily changes evident to others impose feelings of being met in a different way, which can be understood as an expression of a violated

Place, publisher, year, edition, pages
2008. Vol. 29, no 4, p. 416-430
National Category
Nursing
Research subject
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-7777DOI: 10.1080/07399330701876646ISI: 000255155100007PubMedID: 18389436Scopus ID: 2-s2.0-41849096679OAI: oai:DiVA.org:esh-7777DiVA, id: diva2:1351510
Available from: 2016-09-29 Created: 2019-09-16 Last updated: 2019-09-19Bibliographically approved
In thesis
1. Meanings of women's experiences of living with multiple sclerosis
Open this publication in new window or tab >>Meanings of women's experiences of living with multiple sclerosis
2010 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The aim of this doctoral thesis was to describe meanings of women's experiences of living with multiple sclerosis (MS). It focuses specifically on the women's experiences of daily life (I), the experience of fatigue (II), experiences of feeling well (III) and experiences of treatment (IV). Narrative interviews were conducted with 25 women living with MS and the interviews were analyzed from a phenomenological hermeneutic interpretation.For women with MS, living with an unrecognizable body meant that the deterioration of their bodies had become clear and served as a hindrance in daily life. The experience of fatigue seemed to mean that the body instead of working as an implement in order to manage daily life had become an enemy. These experiences included bodily changes, which were evident to others, and imposed feelings of being met in a different way. The ill body threatens the women's dignity and they expressed being avoided by others as hurtful. Despite the fact of all aspects of daily life are being affected by illness, the women with MS nevertheless do find ways to experience feeling well. Feeling well, for women with MS can be understood as finding a pace where daily life goes on and the illness is not the dominant experience.This thesis suggests that meanings of women's experiences of living with MS can be comprehended as a movement between the two dimensions of having a value and feeling unimportant to others. In the dimension of having a value, feeling well is brought forward, meanwhile the dimension of feeling unimportant to others, implies suffering in the daily lives of women with MS. For these women recognizing oneself as valuable and sharing an understanding are important in order to feel dignified in daily life and to experience feeling well.

Place, publisher, year, edition, pages
Luleå: Luleå tekniska universitet, 2010. p. 69
National Category
Nursing
Research subject
Nursing
Identifiers
urn:nbn:se:esh:diva-7772 (URN)978-91-7439-091-9 (ISBN)
Public defence
2010-04-23, D770, 09:00 (Swedish)
Opponent
Note

Paper IV: Olsson, M., Skär, L., & Söderberg, S. Meanings of treatment for women with multiple sclerosis. Manuscript submitted.

Available from: 2019-09-19 Created: 2019-09-19 Last updated: 2019-09-19Bibliographically approved
2. Expressions of freedom in everyday life: the meaning of women's experiences of living with multiple sclerosis
Open this publication in new window or tab >>Expressions of freedom in everyday life: the meaning of women's experiences of living with multiple sclerosis
2007 (English)Licentiate thesis, comprehensive summary (Other academic)
Abstract [en]

The aim of this licentiate thesis was to describe the meaning of women's experiences of living with multiple sclerosis (MS). This licentiate thesis focuses specific on the women's experiences of daily life (I) and the experience of fatigue (II). Narrative interviews were conducted with 10 women living with MS and the interviews were analysed with a phenomenological hermeneutic interpretation. This licentiate thesis proposes that the meaning of living with MS for women can be seen as living an everyday life defined by the body, which imposes living with a restrained freedom in the same time as a feat for freedom in everyday life exists. The constraints of freedom in everyday life, involves the body, relations to others and not being able to involve in everyday life in a desired way. Despite the demanding body which directs the women's life they choose to involve in everyday life instead of withdraw. While the women's experience of freedom is held back the women seam to feat for an own inner freedom, which is used to approach life and meet the demands of illness. The relationship between this inner freedom and the restrained freedom means a feat for freedom in order to meet the conditions that MS brings into the women's everyday life.

Place, publisher, year, edition, pages
Luleå: Luleå tekniska universitet, 2007. p. 45
National Category
Nursing
Research subject
Nursing
Identifiers
urn:nbn:se:esh:diva-7778 (URN)7c19b2f0-e8e7-11db-b9a9-000ea68e967b (Local ID)7c19b2f0-e8e7-11db-b9a9-000ea68e967b (Archive number)7c19b2f0-e8e7-11db-b9a9-000ea68e967b (OAI)
Note

Godkänd; 2007; 20070403 (ysko)

Available from: 2019-09-19 Created: 2019-09-19 Last updated: 2019-09-19Bibliographically approved

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