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Children’s Self-Reports About Illness-Related Information and Family Communication When a Parent Has a Life-Threatening Illness
Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC.ORCID iD: 0000-0002-9396-9800
Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC.ORCID iD: 0000-0002-8185-781X
Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC.
Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC.ORCID iD: 0000-0003-4736-500X
2020 (English)In: Journal of Family Nursing, ISSN 1074-8407, E-ISSN 1552-549XArticle in journal (Refereed) Epub ahead of print
Abstract [en]

Children's experiences of information and family communication when a parent has a life-threatening illness have been sparsely studied, though such information is important for the child's wellbeing. The aim of this study was to explore children's reports of illness-related information and family communication when living with a parent with a life-threatening illness. Forty-eight children, aged 7 to 19 years, were recruited from four specialized palliative home care units in Stockholm, Sweden. All but one child reported that someone had told them about the parent's life-threatening illness; however, two thirds wanted more information. A quarter of the teenagers reported that they had questions about the illness that they did not dare to ask. Half of the children, aged 8 to 12, reported that they felt partially or completely unable to talk about how they felt or show their feelings to someone in the family. Interventions are needed that promote greater family communication and family-professional communication.

Place, publisher, year, edition, pages
2020.
Keywords [en]
children’s information needs; children’s self-report; family communication; palliative care
National Category
Nursing
Research subject
The Individual in the Welfare Society, Palliative Care
Identifiers
URN: urn:nbn:se:esh:diva-7978DOI: 10.1177/1074840719898192PubMedID: 31931660OAI: oai:DiVA.org:esh-7978DiVA, id: diva2:1391987
Available from: 2020-02-06 Created: 2020-02-06 Last updated: 2020-02-10

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Eklund, RakelKreicbergs, UlrikaAlvariza, AnetteLövgren, Malin
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