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Upplevelser av att leva med Amyotrofisk lateralskleros (ALS): En litteraturöversikt
Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
2020 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
Experiences of living with Amyotrophic lateral sclerosis (ALS) : A literature rewiew (English)
Abstract [sv]

Bakgrund: ALS är en progressiv, ovanlig och obotlig sjukdom. Vuxna personer drabbas främst. Livsstilsförändringar är oundvikliga och eftersom att upplevelsen att leva med denna sjukdom kan variera, är det angeläget att olika upplevelser lyfts i denna studie för att sjukvården kring dessa personer ska kunna vara så personcentrerad som möjligt.  

Syfte: Syftet var att beskriva personers upplevelser av att leva med ALS. 

Metod: En litteraturöversikt som bygger på sju kvalitativa och tre kvantitativa vetenskapliga artiklar från CINAHL Complete, Academic Search Complete och PsycINFO, dessa var publicerade mellan åren 2010 – 2020.  

Resultat: Fem stycken teman identifierades: Ångest; Missuppfattningar; Acceptans; Lidande; och Beröring. Det framkom att de upplevde ett multidimensionellt lidande som förvärras ju mer sjukdomsprogressionen fortlöper. Det framkom även att många personer hade ångest inför när de skulle avlida. I samband med sjukdomslidandet framkom det att många personer upplevde ångest.  

Diskussion: I metoddiskussionen diskuterades användningen av vetenskapliga artiklar med samma författare samt hur samspelet mellan författarna varit. I resultatdiskussionen diskuterades två dominerande resultat, att samtliga deltagare upplevde ett multidimensionellt lidande i takt med att sjukdomsprogressionen fortlöpte samt ångest inför när de skulle avlida.  

Abstract [en]

Background: ALS is a progressive, unusual and incurable disease. Adults are primarily affected. Lifestyle changes are inevitable and because the experience of living with this disease may vary, it is important that different experiences are highlighted in this study in order to allow the care of these people to be as person-centered as possible. 

Aim: The aim was to describe experiences of people living with ALS. 

Method: A literature review based on seven qualitative and three quantitative articles found on CINAHL Complete, Academic Search Complete and PsycINFO, that was published between the years 2010 – 2020.   

Results: Five themes were identified: Anxiety; Misconceptions; Acceptance; Suffering; and Touch. It turned out that they experienced a multidimensional suffering that worsened as the disease progression progressed. It also emerged that many people had anxiety when they would die. In connection with the illness suffering, many people experienced anxiety. 

Discussion: In the method discussion the use of articles with the same author was discussed and how the interaction between the authors has been. In the results discussion, two dominant outcomes were discussed, that all participants experienced a multidimensional suffering as disease progression progressed and anxiety faced when they were to die. 

Place, publisher, year, edition, pages
2020. , p. 33
Keywords [en]
Amyotrophic lateral sclerosis, Living with, Experiences.
Keywords [sv]
Amyotrofisk lateralskleros, Leva med, Upplevelser.
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-8138OAI: oai:DiVA.org:esh-8138DiVA, id: diva2:1431075
Educational program
Bachelor of Science in Nursing
Uppsok
Medicine
Supervisors
Examiners
Available from: 2020-05-19 Created: 2020-05-19 Last updated: 2020-05-19Bibliographically approved

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