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Belonging to a community of care: Mothers' experiences of online peer support groups for parents having lost a child with congenital heart defects
Ersta Sköndal Bräcke University College, Department of Health Care Sciences. Uppsala universitet.ORCID iD: 0000-0001-7935-3260
Uppsala universitet; Röda Korsets högskola.
Ersta Sköndal Bräcke University College, Department of Health Care Sciences. Uppsala universitet.ORCID iD: 0000-0001-5104-1281
2022 (English)In: Death Studies, ISSN 0748-1187, E-ISSN 1091-7683, Vol. 46, no 7, p. 1741-1749Article in journal (Refereed) Published
Abstract [en]

The aim was to study mothers' experiences of online peer support groups after the death of a child. Participants (N = 8) were recruited through a newsletter for the Swedish association for families/children with heart defects, and two closed support groups on Facebook (900 and 100 members) and interviewed by telephone. Transcripts were analyzed with qualitative content analysis. The groups were available around the clock, regardless of support need, and mothers joined both to receive and provide support. Participation in online peer support groups may provide a sense of belonging to a caring community and serve as a valuable complement to healthcare.

Place, publisher, year, edition, pages
2022. Vol. 46, no 7, p. 1741-1749
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Nursing
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URN: urn:nbn:se:esh:diva-8511DOI: 10.1080/07481187.2020.1850548ISI: 000596970100001PubMedID: 33252318OAI: oai:DiVA.org:esh-8511DiVA, id: diva2:1505460
Available from: 2020-12-01 Created: 2020-12-01 Last updated: 2022-08-03Bibliographically approved

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Klarare, AnnaMattsson, Elisabet

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