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Anhörigas upplevelser av palliativ vård vid livets slutskede: en litteraturöversikt
Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
2020 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
Family members´ experiences of palliative care at the end-of-life : a literature review (English)
Abstract [sv]

Bakgrund: Palliativ vård i livets slutskede inträder i övergången då patienten närmar sig livets slut och kännetecknas av en helhetssyn på människan. Vården utförs i syfte att lindra lidande och främja livskvaliteten för alla patienter med progressiv, obotlig sjukdom eller skada. Anhöriga ska också erbjudas att delta i den palliativa vården. Forskning visar att ungefär 10 procent av efterlevande riskerar att få sorgerelaterade psykiska besvär.

Syfte: Syftet med studien var undersöka anhörigas upplevelser av palliativ vård vid livets slutskede.

Metod: Litteraturöversikt med tio artiklar. Nio kvalitativa artiklar och en artikel med mixed-method som analyserades enligt Fribergs metod.

Resultat: Huvudtemana som växte fram var kommunikation, information, anhörigstöd och delaktighet i den palliativa vården. Huvudtemana delades var för sig upp i underkategorierna kommunikation som mottogs väl, kommunikation som brast, information som förmedlades bra, undermålig information, emotionellt stöd, avsaknad av emotionellt stöd, andligt stöd, tillfredställande delaktighet, när anhöriga inte blev delaktiga.

Slutsats: Anhöriga upplevde brister beträffande både kommunikation, information, delaktighet och emotionellt stöd i den palliativa vården. Detta medförde ett onödigt lidande och försämrad livskvalitet. Bristerna fick dem i värsta fall att känna sig förringade och avvisade. Anhöriga behövde en kommunikation som genomsyrades av empati och engagemang. Informationen behövde vara lättförståelig och upprepas. Anhöriga upplevde att de hade behov avemotionellt stöd i form av att bli förstådda och bekräftade i sin sorg. De upplevde också ett behov av att få delta i vården och upplevde den palliativa vården som mer positiv om de erbjöds att delta. 

Abstract [en]

Background: Palliative care in the final stages of life enters the transition when the patient approaches the end of life and is characterized by a holistic view of man. The care is performed in order to alleviate suffering and promote the quality of life for all patients with progressive, incurable disease or injury. Relatives must also be offered to participate in palliative care. Research shows that about 10 percent of survivors are at risk for grief-related mental illness.

Aim: The purpose of the study was to investigate relatives' experiences of palliative care at the end of life. Method: Literature overview with ten articles. Nine qualitative articles and one article with mixed method.

Results: Main themes emerged were communication, information, family support and participation in palliative care. Main themes were divided separately into the sub-categories communication well received,communication broken, information conveyed well, substandardinformation, emotional support, lack of emotional support, spiritual support, satisfactory participation, when relatives did not participate.

Conclusion: Relatives experienced shortcomings in terms of communication, information, participation and emotional support in palliative care. This led to unnecessary suffering and deteriorating quality of life. In the worst case, the shortcomings made them feel degraded and rejected. Relatives needed a communication that was permeated by empathy and commitment. Information needed to be easy to understand and repeat. Relatives felt they needed emotional support of being understood and confirmed in their grief. They also experienced a need to participate in care and experienced palliative care as more positive if they were offered to participate.

Place, publisher, year, edition, pages
2020. , p. 38
Keywords [en]
Palliative care, End-of-life care, Family, Family caregiver, Experiences, Communication, Information, Support, Participation
Keywords [sv]
Palliativ vård, Vård i livets slutskede, Anhöriga, Anhörigvårdare, Upplevelser, Kommunikation, Information, Stöd, Delaktighet
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-8571OAI: oai:DiVA.org:esh-8571DiVA, id: diva2:1518878
Educational program
Bachelor of Science in Nursing
Uppsok
Medicine
Supervisors
Examiners
Available from: 2021-01-19 Created: 2021-01-17 Last updated: 2021-01-19Bibliographically approved

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