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Närståendes upplevelser av att vårda en anhörig med cancer i livets slutskede i hemmet: en litteraturöversikt
Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
2021 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
Family’s experiences of caring for a relative with cancer at the end of life at home : a literature review (English)
Abstract [sv]

Bakgrund: Varje år behöver 70 000–75 000 människor palliativ vård, varav de flesta har en cancersjukdom. Närstående har en viktig och central del i palliativ vård och kan påverka den drabbades mående innebär att lindra symtom och lidande där fokus inte ligger på att bota sjukdomen. Sjuksköterskan har en viktig roll att stötta och involvera närstående i kommunikationen. 

Syfte: Syftet var att beskriva närståendes upplevelser av att vårda en anhörig med cancer i livets slutskede i hemmet.  

Metod: Metoden som valdes var en litteraturöversikt. Tio vetenskapliga artiklar inkluderades i resultatet. Artiklarna analyserades enligt Fribergs metod. Resultatartiklarna hade kvalitativ design och hämtades från CINAHL Complete och MEDLINE.  

Resultat: Litteraturöversikten presenterades i tre teman och fem underteman. Det första temat innefattar att bli en vårdare, med undertemat ansvar att ständigt vara på vakt. Det andra temat innefattar känslor av vårdandet, med underteman stress och tiden nära döden. Det sista temat innefattar behov av stöd, med underteman stöd från familj och vänner, stöd från hälso-sjukvården.  

Slutsats: Resultatet visade att närstående kände ett ansvar av att vårda sin anhörig, detta ansvar medförde bland annat att tunga beslut låg i deras händer angående anhörigas autonomi. Ansvaret bidrog även med negativa effekter både psykiskt och fysiskt i form av utmattning. Förberedelser inför döden visade sig vara en viktig del för närståendes mentala hälsa samt att stöd från familj, vänner och vårdpersonal framkom som betydelsefullt. 

Abstract [en]

Background: Every year, 70 000–75 000 people need palliative care, most of them have cancer. Relatives have an important and central part in palliative care and can affect the victim's mood. Palliative care involves relieving symptoms and suffering where the focus is not on curing the disease. The nurse has an important role to support and involve relatives in the communication. Autonomy is seen as a difficult ethical dilemma in palliative care as the sufferer may have difficulty being self-determined in the final stages of life.  

Aim: The purpose was to describe relatives' experiences of caring for a relative with cancer in the final stages of life at home. 

Method: The chosen method was a literature review linked to Friberg. Ten scientific articles were included in the results. The articles were analyzed according to Friberg's method. The result articles had a qualitative design and were taken from CINAHL Complete and MEDLINE.  

Results: The literature review was presented in three themes and five sub-themes. The first theme includes becoming a caregiver, with the sub-theme responsibility to be constantly on guard. The second theme includes emotions of care, with the sub-theme of stress, the time close to death. The last theme includes need for support, with the sub-theme support from family and friends, support from health care.  

Conclusion: The results showed that close relatives felt a responsibility to care for their relatives, this responsibility meant, among other things, that heavy decisions were in their hands regarding the relatives' autonomy. The responsibility also contributed with negative effects both mentally and physically in the form of exhaustion. Preparations for death proved to be an important part of the mental health of close relatives and that support from family, friends and care staff emerged as meaningful. 

Place, publisher, year, edition, pages
2021. , p. 35
Keywords [en]
Home Care, Caregivers, Adult, Children, Family, Family Relationships, Nuclear Family, Parent, Spouses, Relatives, Vital Events, Experiences, Palliative Care, Terminal Care, Hospice Care
Keywords [sv]
Vård i hemmet, Vårdare, Vuxna barn, Familj,  Familjerelationer, Kärnfamilj, Föräldrar, Makar, Släktning, Livsavgörande händelser,  Experiences, Palliativ vård, Terminal vård, Hospicevård
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-8771OAI: oai:DiVA.org:esh-8771DiVA, id: diva2:1546133
Educational program
Bachelor of Science in Nursing
Uppsok
Medicine
Supervisors
Examiners
Available from: 2021-04-22 Created: 2021-04-21 Last updated: 2021-04-22Bibliographically approved

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