Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Experiences of food and mealtime from the perspective of patients with chronic life-limiting disease: a mixed-method systematic review
Ersta Sköndal Bräcke University College, Department of Health Care Sciences.ORCID iD: 0000-0001-6019-4335
Ersta Sköndal Bräcke University College, Department of Health Care Sciences.ORCID iD: 0000-0003-1835-1960
Ersta Sköndal Bräcke University College, Department of Health Care Sciences. Uppsala universitet.ORCID iD: 0000-0001-5104-1281
Ersta Sköndal Bräcke University College, Department of Health Care Sciences. Uppsala universitet.ORCID iD: 0000-0001-7935-3260
2021 (English)In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 77, no 11, p. 4400-4413Article, review/survey (Refereed) Published
Abstract [en]

Aim: To describe and synthesise experiences of food and mealtimes from the perspective of patients with chronic life-limiting disease.

Design: A mixed-method systematic review.

Data sources: The databases Academic Search Complete, CINAHL, Nursing and Allied Health Database, PsycINFO, PubMed, Soc Index and Web of Science Core Collection were searched (January 2000 to March 2019).

Review methods: Out of 3151 identified articles, 24 were included for appraisal and synthesis, using a data based convergent design.

Results: Four themes were derived: 'understanding hampered eating-perhaps it is best to let nature run its course'; 'food and meals evoke distress-reducing joy, testing interim ways'; 'struggling with food and meals-eating to please others and to postpone death'; and 'food and meals as caring and love-flanked by social disconnecting'.

Conclusion: For patients with chronic life-limiting disease, food entailed potential to remain healthy, improve well-being and prolong life. Meanwhile, eating difficulties were experienced as fundamentally affecting social life and interactions; consequently, joy around food and meals was lost.

Place, publisher, year, edition, pages
2021. Vol. 77, no 11, p. 4400-4413
Keywords [en]
Chronic disease, Eating problems, End-of-life, Nursing, Nutrition, Patient perspectives, Systematic review
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-8904DOI: 10.1111/jan.14927ISI: 000661963400001PubMedID: 34133759OAI: oai:DiVA.org:esh-8904DiVA, id: diva2:1560086
Available from: 2021-06-03 Created: 2021-06-03 Last updated: 2023-11-21Bibliographically approved
In thesis
1. Mealtimes in palliative care contexts: Perspectives of patients, partners, and registered nurses
Open this publication in new window or tab >>Mealtimes in palliative care contexts: Perspectives of patients, partners, and registered nurses
2022 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The overall aim was to explore patients’, partners’, and registered nurses’ (RNs)experiences of mealtimes in palliative care contexts. Qualitative (studies I, II, IVand V) and quantitative (study IV) study designs were used to explore the experiences of mealtimes in palliative care from various perspectives. Three interview studies (studies I, II, V), a mixed-method systematic review (study III),and a cross-sectional study (study IV), were conducted. The findings showed that patient’s appreciated support that resembled their needs and wishes during hampered eating. Being encouraged to eat could both reduce and induce distress and well-being, social life was affected. Food and eating had existential loading (I, III). The partners described how they tried to support their dying partner by striving to maintain ordinariness around food and mealtimes, as well as finding new ways to support eating (II). RNs highlighted that food and mealtimes in palliative care cause psychosocial distress for patients and their families. Exploration implies that RNs perceptions align with patients’and families’, indicating awareness of the challenges that patients and families face (IV). RNs in palliative care are well prepared to support patients with eating challenges related to physical problems, but might be less prepared to support existential, psychological, and social needs (V).In conclusion, efforts to minimize the distress that patients and families experience in relation to mealtimes in palliative care are required. An area in need of further development is how to support RNs in communicating about food and mealtimes in palliative care to support patients’, partners’, and families’ well-being at the patient’s end-of-life.

Place, publisher, year, edition, pages
Stockholm: Marie Cederschiöld University, 2022. p. 110
Series
Avhandlingsserie inom området Människan i välfärdssamhället, ISSN 2003-3699 ; 14
Keywords
End-of-life, Family, Food, Mealtimes, Nursing, Nutrition, Palliative care, Partner, Patient perspectives, Registered nurses
National Category
Nursing
Research subject
The Individual in the Welfare Society, Palliative Care
Identifiers
urn:nbn:se:esh:diva-9425 (URN)978-91-985806-3-1 (ISBN)
Public defence
2022-04-08, 09:00
Opponent
Supervisors
Available from: 2022-03-11 Created: 2022-02-24 Last updated: 2023-09-22

Open Access in DiVA

No full text in DiVA

Other links

Publisher's full textPubMed

Authority records

Wallin, ViktoriaOmerov, PernillaMattsson, ElisabetKlarare, Anna

Search in DiVA

By author/editor
Wallin, ViktoriaOmerov, PernillaMattsson, ElisabetKlarare, Anna
By organisation
Department of Health Care Sciences
In the same journal
Journal of Advanced Nursing
Nursing

Search outside of DiVA

GoogleGoogle Scholar

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 265 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf