Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Caring for patients with eating deficiencies in palliative care—Registered nurses' experiences: A qualitative study
Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC.ORCID iD: 0000-0001-6019-4335
Ersta Sköndal Bräcke University College, Department of Health Care Sciences. Uppsala universitet.ORCID iD: 0000-0001-5104-1281
Ersta Sköndal Bräcke University College, Department of Health Care Sciences.ORCID iD: 0000-0003-1835-1960
Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Uppsala universitet.ORCID iD: 0000-0001-7935-3260
2022 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 31, no 21-22, p. 3165-3177Article in journal (Refereed) Published
Abstract [en]

AIMS AND OBJECTIVES: The aim was to explore RNs' experiences of caring for patients with eating deficiencies in palliative care.

BACKGROUND: Food and mealtimes are fundamental aspects for wellbeing and social interactions. The worldwide trajectory of ageing populations may result in increased need for palliative care. Everyday life with chronic life limiting illness and eating deficiencies is challenging for patients and families. RNs are key care providers at end-of-life.

DESIGN: A qualitative study with an inductive approach was used.

METHODS: Nineteen experienced RNs in palliative care were interviewed through telephone; interviews were audio recorded and transcribed verbatim. Inductive qualitative content analysis was performed, and the COREQ checklist was used to guide proceedings.

RESULTS: The overarching theme, Supporting persons with eating deficiencies in-between palliative care and end-of-life care, is represented by three sub-themes: Easy to stick with doing, Just being, without doing, is hard and Letting go. Near end-of-life, eating symbolized social belonging and quality of life for RNs, whereas for patients and families, eating symbolized life. RNs tried practical solutions, however, not always according to patients' and families' preferences.

CONCLUSIONS: RNs were well prepared to tackle physical inconveniences and provide support, however, less prepared to encounter existential, psychological and social issues in relation to eating deficiencies. Although RNs stated that human beings stop eating when they are about to die, letting nature run its' course and facilitating patients' transition to end-of-life care was challenging.

RELEVANCE TO CLINICAL PRACTICE: Food and mealtimes represent fundamental aspects of human life and denote central parts in RNs clinical practice in palliative care. The findings can inspire development of a comprehensive palliative care approach to support patients and families. Structured reflection in relation to clinical practice may support and encourage RNs, caring for patients with eating deficiencies, in mastering both doing and being.

Place, publisher, year, edition, pages
2022. Vol. 31, no 21-22, p. 3165-3177
Keywords [en]
Caring, Eating problems, End-of-life, Families, Mealtime, Nursing, Nutrition, Palliative care, Patients
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-9295DOI: 10.1111/jocn.16149ISI: 000723896300001PubMedID: 34850477OAI: oai:DiVA.org:esh-9295DiVA, id: diva2:1617718
Available from: 2021-12-07 Created: 2021-12-07 Last updated: 2023-02-16Bibliographically approved
In thesis
1. Mealtimes in palliative care contexts: Perspectives of patients, partners, and registered nurses
Open this publication in new window or tab >>Mealtimes in palliative care contexts: Perspectives of patients, partners, and registered nurses
2022 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The overall aim was to explore patients’, partners’, and registered nurses’ (RNs)experiences of mealtimes in palliative care contexts. Qualitative (studies I, II, IVand V) and quantitative (study IV) study designs were used to explore the experiences of mealtimes in palliative care from various perspectives. Three interview studies (studies I, II, V), a mixed-method systematic review (study III),and a cross-sectional study (study IV), were conducted. The findings showed that patient’s appreciated support that resembled their needs and wishes during hampered eating. Being encouraged to eat could both reduce and induce distress and well-being, social life was affected. Food and eating had existential loading (I, III). The partners described how they tried to support their dying partner by striving to maintain ordinariness around food and mealtimes, as well as finding new ways to support eating (II). RNs highlighted that food and mealtimes in palliative care cause psychosocial distress for patients and their families. Exploration implies that RNs perceptions align with patients’and families’, indicating awareness of the challenges that patients and families face (IV). RNs in palliative care are well prepared to support patients with eating challenges related to physical problems, but might be less prepared to support existential, psychological, and social needs (V).In conclusion, efforts to minimize the distress that patients and families experience in relation to mealtimes in palliative care are required. An area in need of further development is how to support RNs in communicating about food and mealtimes in palliative care to support patients’, partners’, and families’ well-being at the patient’s end-of-life.

Place, publisher, year, edition, pages
Stockholm: Marie Cederschiöld University, 2022. p. 110
Series
Avhandlingsserie inom området Människan i välfärdssamhället, ISSN 2003-3699 ; 14
Keywords
End-of-life, Family, Food, Mealtimes, Nursing, Nutrition, Palliative care, Partner, Patient perspectives, Registered nurses
National Category
Nursing
Research subject
The Individual in the Welfare Society, Palliative Care
Identifiers
urn:nbn:se:esh:diva-9425 (URN)978-91-985806-3-1 (ISBN)
Public defence
2022-04-08, 09:00
Opponent
Supervisors
Available from: 2022-03-11 Created: 2022-02-24 Last updated: 2023-09-22

Open Access in DiVA

No full text in DiVA

Other links

Publisher's full textPubMed

Authority records

Wallin, ViktoriaMattsson, ElisabetOmerov, PernillaKlarare, Anna

Search in DiVA

By author/editor
Wallin, ViktoriaMattsson, ElisabetOmerov, PernillaKlarare, Anna
By organisation
Palliative Research Centre, PRCDepartment of Health Care Sciences
In the same journal
Journal of Clinical Nursing
Nursing

Search outside of DiVA

GoogleGoogle Scholar

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 204 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf