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Experience of Information Provision at the Stroke Unit From the Perspective of Relatives to Stroke Survivors
Sahlgrenska Universitetssjukhuset; Göteborgs universitet.ORCID iD: 0000-0001-9354-6130
Ersta Sköndal Bräcke University College, Department of Social Sciences. Göteborgs universitet.ORCID iD: 0000-0002-2194-6773
2020 (English)In: Rehabilitation Process and Outcome, ISSN 1179-5727, Vol. 9, article id 1179572720947086Article in journal (Refereed) Published
Abstract [en]

Introduction: Stroke not only affects the stroke survivor, it also significantly affects their families. Given the important supportive role that relatives of stroke survivor have, they should receive information that helps them plan and cope with the new situation. The objective of the study was to explore how relatives to stroke survivors perceived the information provided by the stroke unit.

Methods: This qualitative study was based on extensive semi-structured interviews with an inductive approach. A heterogeneous convenience sample of relatives to stroke survivor (n=14) was selected. Qualitative content analysis served to analyze the transcribed interview texts.

Results: The content analysis yielded four categories, each with 2-3 subcategories. The overall theme was "to be acknowledged or not": it encompassed the underlying meaning and the relationships between the categories. The four categories were as follows: shifting information needs; striving for information; lacking of continuity and structure; and taking part and being acknowledged.

Conclusions: The study highlighted that the relatives of stroke survivors have a strong need for information and showed that the relatives experienced that they did not always feel satisfactorily informed and supported by the healthcare professionals in the stroke unit. A challenge for the healthcare professionals was to be able to give the right information at the right time and in the appropriate way. The study also showed that when the relatives were acknowledged and invited to participate in the rehabilitation process, they were less anxious of the discharge.

Place, publisher, year, edition, pages
2020. Vol. 9, article id 1179572720947086
Keywords [en]
Stroke rehabilitation, Access to information, Patient participation, Time factors
National Category
Occupational Therapy
Identifiers
URN: urn:nbn:se:esh:diva-9198DOI: 10.1177/1179572720947086ISI: 000561657600001PubMedID: 34497469OAI: oai:DiVA.org:esh-9198DiVA, id: diva2:1623403
Funder
The Swedish Stroke Association
Note

Forskningsfinansiär: Sveriges Arbetsterapeuter

Available from: 2021-12-29 Created: 2021-12-29 Last updated: 2021-12-29Bibliographically approved

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Björkdahl, Ann

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