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Out-of-home participation among people living with dementia: A study in four countries
Karolinska institutet.
Karolinska institutet.
Karolinska institutet; School of Social Work and Health, Lausanne, Switzerland; University of Applied Sciences and Arts of Western Switzerland, Delémont, Switzerland.
Marie Cederschiöld University, Department of Health Care Sciences. Karolinska institutet; Uppsala universitet.ORCID iD: 0000-0001-5804-0433
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2022 (English)In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 21, no 5, article id 14713012221084173Article in journal (Refereed) Published
Abstract [en]

Social participation in out-of-home activities is important for people living with dementia, yet little is known about such participation. The aim of this study was to explore and compare out-of-home participation among people living with dementia in four countries by assessing different types of places of participation visited or no longer visited. A cross-sectional design was used to gather self-reported experiences concerning out-of-home participation among people with mild stage dementia living in Canada (n = 29), Sweden (n = 35), Switzerland (n = 35) and the UK (n = 64). Interviews were conducted using the Participation in ACTivities and places OUTside the Home for older adults (ACT-OUT) instrument. Participants still visited 16 (Median) places out of a possible total of 24, and they had abandoned 5 (Median) places. Neighbourhood was the place most participants still visited, whereas 50% of them had stopped going to a Sports facility, with no significant differences between country samples regarding how many participants had abandoned that place (Fisher's exact test, p > 0.01). There were significant differences between country samples in the frequency of present participation and abandonment of the Hospital, Dentist's office, Cemetery, Garden, and Forest (Fisher's exact test, all p < 0.01). Although the participants still visited a variety of places, they had stopped going to places previously visited, which indicates reductions in participation, posing an inherent risk to well-being. The similarities and differences across samples from the four countries suggest that healthcare services and access to public transport may contribute to the complex interactional process of out-of-home participation for people living with dementia. The findings highlight the need for initiatives targeting specific types of places to support continued participation in society, especially places at a higher risk of abandonment such as places for recreation and physical activity.

Place, publisher, year, edition, pages
2022. Vol. 21, no 5, article id 14713012221084173
Keywords [en]
Community, Environment, Neighbourhood, Place, Society
National Category
Occupational Therapy
Identifiers
URN: urn:nbn:se:esh:diva-9499DOI: 10.1177/14713012221084173ISI: 000783565700001PubMedID: 35435030OAI: oai:DiVA.org:esh-9499DiVA, id: diva2:1653799
Funder
The Kamprad Family Foundation, 20180057Swedish Research Council, 2017-02768Forte, Swedish Research Council for Health, Working Life and Welfare, 2013-2104
Note

Övriga forskningsfinansiärer: Marie Sklodowska Curie Actions – Innovative Training Networks, H2020-MSCA-ITN-2015, [676265]; the Swizz Alzheimer Association; the Swiss Occupational Therapy Association; Social Science Humanities Research Council (SSHRC) Institutional Grant Canada

Available from: 2022-04-25 Created: 2022-04-25 Last updated: 2023-01-26Bibliographically approved

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