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Upplevelser av att leva med multipel skleros: En litteraturöversikt
Marie Cederschiöld University, Department of Health Care Sciences.
Marie Cederschiöld University, Department of Health Care Sciences.
2022 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
Experiences of living with multiple sclerosis : A literature review (English)
Abstract [sv]

Bakgrund: Multipel skleros (MS) är en kronisk, inflammatorisk, autoimmun sjukdom. Det finns inget botemedel och därmed är kontakten med sjukvården livslång. För att förbättra vården genom personcentrerad vård och ett bättre stöd, är det viktigt för en sjuksköterska att veta hur olika personer kan uppleva MS. I sin tur kan det leda till ökat välmående hos patienten.

Syfte: Syftet var att belysa vuxna personers upplevelser av att leva med multipel skleros.

Metod: Litteraturöversikten är baserad på tio kvalitativa vetenskapliga originalartiklar. Databaserna som användes vid litteratursökningen var Cinahl Complete och PubMed. Artiklarna analyserades i enlighet med Fribergs fyra olika steg.

Resultat: Fem teman framkom: “Kroppsliga förändringar och dess påverkan”, “Erfarenheter av vården”, “Att få diagnos”, “Stöd av omgivningen och organisationer” och “Påverkan på psykisk hälsa”.

Sammanfattning: När kroppen förändrades var det svårt att acceptera sin kroniska sjukdom och många negativa känslor uppkom. Livet förändrades och stöd från närstående och stödgrupper var till hjälp. För att kunna främja hälsan hos personer med MS var det viktigt med god kunskap hos personalen men kunskapen varierade hos sjuksköterskorna vilket var negativt. 

Abstract [en]

Background: Multiple sclerosis (MS) is a chronic, inflammatory, autoimmune disease. There is no cure, and thus the contact with healthcare is lifelong. To improve care through person-centered care and better support, it is important for a nurse to know how different people can experience MS. In turn, this can lead to increased well-being of the patient.

Aim: The purpose was to highlight adults’ experiences of living with Multiplesclerosis.

Method: The literature review is based on ten qualitative scientific original articles. The databases used in the literature search were Cinahl Complete and PubMed. The articles were analyzed in accordance with Friberg’s four different steps.

Results: Five themes emerged: "Physical changes and their impact", "Experiences of healthcare", “To be diagnosed”, "Support from the environment" and "Impact on mental health."

Summary: When the body changed, it was difficult to accept its chronic disease and many negative emotions arose. Life changed, and support from relatives and support groups was helpful. Good knowledge was important among the staff to promote the health of persons with MS, but the knowledge varied among the nurses, which was negative.

Place, publisher, year, edition, pages
2022. , p. 31
Keywords [en]
Multiple sclerosis, Experiences, Qualitative, Nurse, Patient
Keywords [sv]
Multipel skleros, Upplevelser, Kvalitativ, Sjuksköterska, Patient
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-9527OAI: oai:DiVA.org:esh-9527DiVA, id: diva2:1657140
Educational program
Bachelor of Science in Nursing
Uppsok
Medicine
Supervisors
Examiners
Available from: 2022-05-10 Created: 2022-05-09 Last updated: 2022-05-10Bibliographically approved

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