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Erfarenheter av palliativ vård ur ett patientperspektiv: En litteraturöversikt
Marie Cederschiöld University, Department of Health Care Sciences.
Marie Cederschiöld University, Department of Health Care Sciences.
2022 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
Experience of palliative care from a patient perspective : A literature review (English)
Abstract [sv]

Bakgrund: Det är cirka 40 miljoner människor i världen som är i behov av palliativa vårdinsatser och i Sverige anses 70 000 – 75 000 personer vara i behov av det årligen. Vården baseras på holistisk vård som grundas på de fyra hörnstenarna, vilket sjuksköterskan bör förhålla sig till. Patienters åsikter anses värdefulla för en god palliativ vård.

Syfte: Syftet med litteraturöversikten är att belysa vuxna patienters erfarenheter av palliativ vård. 

Metod: Metoden som har används är en allmän litteraturöversikt. Tio kvalitativa vetenskapliga artiklar har bidragit till resultatet. Åtta artiklar är från PubMed och Cinahl Complete, två genom sekundärsökning. Artiklarna analyserades enligt rekommenderade analyssteg. 

Resultat: Fyra huvudteman med tillhörande underteman framkom: (1) Holistisk vård med undertema Upplevelser av holistisk vård och Livskvalitet trots obotlig sjukdom, (2) Upplevelser av palliativa teamet med undertema Upplevelser av sjuksköterskor och Upplevelser av brister under vårdtiden, (3) Vikten av information och kunskap samt (4) Dialog vid livets slut med undertema Avsked av närstående och Önskningar vid livets slut.

Sammanfattning: Palliativ vård upplevdes generellt positivt av patienter utifrån detta resultat. Värdig vård ansågs vara genom holistisk vård och tid. För att hantera och acceptera sin situation angav patienterna att information om tillstånd och behandling var viktigt, likaså samtal om livets slut. Palliativa vården och vårdteamet hade en viktig roll för patienter med obotlig sjukdom.

Abstract [en]

Background: There are about 40 million people in the world who are in need of palliative care and in Sweden 70,000 - 75,000 people are considered to be in need of it annually. The care is based on holistic care which is founded in the four cornerstones, which the nurse should relate to. Patients opinions are considered valuable for good palliative care. 

Aim: The purpose of the literature review is to explain adult patients experiences of palliative care. 

Method: The used method is for a general literature review. Ten qualitative articles have contributed to the result. Eight articles from PubMed and Cinahl Complete, two through a secondary search. The articles were analyzed according to recommended analysis steps.

Results: Four main themes with associated sub-themes emerged. (1) Holistic care with the sub-theme Experiences of holistic care and Quality of life despite incurable disease, (2) Experiences of the palliative care team with the sub-theme Experiences of nurses and Experiences of deficiencies during the care period, (3) The importance of information and knowledge and (4) Dialogue at the end of life with subtheme Farewell to relatives and Wishes at the end of life.

Summary: Experiences of palliative care were generally experienced positively by patients based on this result. Nurses' abilities to care holistically and provide time were perceived by patients as dignified care. To handle and accept their situation, the patients indicated that information about the condition and treatment was important, as well as conversations about the end of life. Palliative care and the care team also had an important role for patients living with an incurable disease.

Place, publisher, year, edition, pages
2022. , p. 29
Keywords [en]
Palliative care, Patient perception, Patient experience
Keywords [sv]
Palliativ vård, Patienters erfarenheter, Patienters upplevelser
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-9597OAI: oai:DiVA.org:esh-9597DiVA, id: diva2:1667939
Educational program
Bachelor of Science in Nursing
Uppsok
Medicine
Supervisors
Examiners
Available from: 2022-06-13 Created: 2022-06-11 Last updated: 2022-06-13Bibliographically approved

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