Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
A survey study of family members' encounters with healthcare services within the care of older people, psychiatric care, palliative care and diabetes care
Ersta Sköndal Bräcke University College, Department of Health Care Sciences.ORCID iD: 0000-0003-3150-0596
Linnéuniversitetet.ORCID iD: 0000-0002-0961-5250
Ersta Sköndal Bräcke University College, Department of Health Care Sciences. Dalens sjukhus, Stockholm.ORCID iD: 0000-0003-2711-0245
Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
Show others and affiliations
2022 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 36, no 4Article in journal (Refereed) Published
Abstract [en]

The aim of this study was to describe and compare family members' experiences of approach in encounters with healthcare professionals and possible feelings of alienation in the professional care within four care contexts: the care of older people, psychiatric care, palliative care and diabetes care. The design was an explorative cross-sectional survey study. Data were collected in Sweden using the Family Involvement and Alienation Questionnaire-Revised (FIAQ-R). It measures family members' experiences of the healthcare professionals' approach and the family members' feeling of alienation from the provision of professional care. A total of 1047 questionnaires were distributed to family members using convenient sampling method, of which 294 were included. Data were analysed using rank-based, non-parametric statistical methods. The results indicated that most respondents experienced a positive actual approach from the healthcare professionals. Many participants rated the importance of approach at a higher level than their actual experience. Participants in the context of diabetes care reported a more negative actual approach from the healthcare professionals than did participants in the other contexts and considered the healthcare professionals' approach towards them as being less important. The results for the entire group indicated that the participants felt a low level of alienation from the professional care. Participants in the context of the care of older people reported significantly lower level of feeling of being alienated than did participants in the contexts of psychiatric care and diabetes care. The differences between participants in diabetes care and other care contexts can possibly be explained by a more fully implemented self-care approach among the patients in diabetes care than in the other care contexts. Even though the results are quite positive, it is still important that nurses consider a family-centred approach to better adapt to the needs of both the family members and the patients.

Place, publisher, year, edition, pages
2022. Vol. 36, no 4
Keywords [en]
Alienation, Care context, Cross-sectional, Encounter, Family members, Healthcare services, Next of kin, Self-reported
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-9695DOI: 10.1111/scs.13096ISI: 000822244000001PubMedID: 35808909OAI: oai:DiVA.org:esh-9695DiVA, id: diva2:1685561
Available from: 2022-08-03 Created: 2022-08-03 Last updated: 2022-11-21Bibliographically approved

Open Access in DiVA

No full text in DiVA

Other links

Publisher's full textPubMed

Authority records

Momeni, PardisAlvariza, AnetteWinnberg, ElisabethKneck, ÅsaEwertzon, Mats

Search in DiVA

By author/editor
Momeni, PardisÅrestedt, KristoferAlvariza, AnetteWinnberg, ElisabethKneck, ÅsaEwertzon, Mats
By organisation
Department of Health Care Sciences
In the same journal
Scandinavian Journal of Caring Sciences
Nursing

Search outside of DiVA

GoogleGoogle Scholar

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 163 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf