Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Patients' experiences with a welfare technology application for remote home care: A longitudinal study
Lovisenberg Diaconal University College, Norway; University of Oslo, Norway.ORCID iD: 0000-0002-3302-408X
University of South-Eastern Norway, Norway.
University of Oslo, Norway.
VID Specialized University, Norway.
Show others and affiliations
2023 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 32, no 17-18, p. 6545-6558Article in journal (Refereed) Published
Abstract [en]

Aims  and  Objectives: To explore the longitudinal experiences using an application named remote home care for remote palliative care among patients with cancer living at home.

Background: Introducing welfare technology in home- based care for patients with cancer in the palliative phase is internationally suggested as a measure to remotely support palliative care needs. However, little is known about the experiences of patients utilising welfare technology applications to receive home-based care from healthcare professionals in a community care context. Although living with cancer in the palliative phase often presents rapidly changing ailments, emotions and chal-lenges with patients' needs changing accordingly, no studies exploring the longitudinal experiences of patients were found.

Design: A qualitative study with a longitudinal, exploratory design.

Methods: Data were collected through individual interviews with 11 patients over 16 weeks. The data were analysed using qualitative content analysis. The COREQ checklist guided the reporting of the study.

Results: Three themes were identified: (1) potential to facilitate self- governance of life-limiting illness in daily life, (2) need for interpersonal relationships and connections, and (3) experiences of increased responsibility and unclear utility of the Remote Home Care.

Conclusion: The results showed that remote home care facilitated patients' daily routines, symptom control and improved illness- management at home. Interpersonal relationships with healthcare professionals were considered pivotal for satisfactory follow-up. Infrastructural glitches regarding data access, information sharing and lack of continuous adjustments of the application represented major challenges, with the potential to impose a burden on patients with cancer in the palliative phase.

Relevance to Clinical Practice: By exploring the experiences of patients in palliative care over time as the disease progresses, this study provides constructive insights for the design and development of welfare technology applications and optimal care strategies.

Patient or Public Contribution: The remote home care was developed by interdisciplinary healthcare professionals.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2023. Vol. 32, no 17-18, p. 6545-6558
Keywords [en]
Cancer, eHealth, Palliative care, Person-centred care, Qualitative study, Telehealth, Telemedicine
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-9925DOI: 10.1111/jocn.16592ISI: 000890377300001PubMedID: 36437490OAI: oai:DiVA.org:esh-9925DiVA, id: diva2:1714007
Available from: 2022-11-28 Created: 2022-11-28 Last updated: 2023-12-13Bibliographically approved

Open Access in DiVA

No full text in DiVA

Other links

Publisher's full textPubMed

Authority records

Österlind, Jane

Search in DiVA

By author/editor
Oelschlägel, LinaÖsterlind, JaneSteindal, Simen A.
By organisation
Palliative Research Centre, PRC
In the same journal
Journal of Clinical Nursing
Nursing

Search outside of DiVA

GoogleGoogle Scholar

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 88 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf