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Web-based support for spouses of patients with life-threatening illness cared for in specialized home care: A feasibility study
Marie Cederschiöld University, Department of Health Care Sciences, Palliative Research Centre, PRC. Karolinska Universitetssjukhuset.
Marie Cederschiöld University, Department of Health Care Sciences, Palliative Research Centre, PRC. Stockholms Sjukhem.ORCID iD: 0000-0003-2711-0245
Marie Cederschiöld University, Department of Health Care Sciences, Palliative Research Centre, PRC. Karolinska Institutet.ORCID iD: 0000-0002-8185-781x
Marie Cederschiöld University, Department of Health Care Sciences, Palliative Research Centre, PRC.ORCID iD: 0000-0001-6019-4335
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2022 (English)In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, p. 1-9Article in journal (Refereed) Epub ahead of print
Abstract [en]

OBJECTIVES: Psychoeducational interventions for family caregivers have shown to be effective but not possible for all caregivers to attend; thus, web-based interventions may be a complement. This study aimed to evaluate feasibility of a web-based intervention, "narstaende.se," from the perspective of spouses of patients receiving specialized home care.

METHODS: A website was developed, containing videos with conversations between health-care professionals and family caregivers (actors), informative texts, links to further information, and a chat forum. The aim of the website is to provide support and promote preparedness for caregiving and death, and the content is theoretically and empirically grounded. The study had a descriptive cross-sectional design. Altogether, 26 spouses answered a questionnaire, before accessing the website, and 4 weeks after this, 12 spouses were interviewed. Descriptive statistics and qualitative content analysis were used.

RESULTS: Spouses experienced the website as being easy to use, welcoming, and with relevant content. Participating spouses would recommend "narstaende.se" to others in similar situations, and the majority found the website introduced timely. Videos seemed easily accessible and were most used, contributing to a feeling of recognition and sharing the situation. The online format was perceived as flexible, but still not all spouses visited the website, stating the desire for support in real life.

SIGNIFICANCE OF RESULTS: A web-based intervention can be feasible for spouses in specialized home care; however, the digital format is not suitable for everyone. Further research is needed to determine the website's potential to provide support and increase preparedness for family caregivers in general.

Place, publisher, year, edition, pages
Cambridge University Press, 2022. p. 1-9
Keywords [en]
End of life, Family caregivers, Palliative care, Web-based support, eHealth/digital support
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-9990DOI: 10.1017/S1478951522001602PubMedID: 36537025OAI: oai:DiVA.org:esh-9990DiVA, id: diva2:1723939
Available from: 2023-01-04 Created: 2023-01-04 Last updated: 2023-02-16Bibliographically approved

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Häger Tibell, LouiseAlvariza, AnetteKreicbergs, UlrikaWallin, ViktoriaHolm, Maja

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