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Increased preparedness for caregiving among family caregivers in specialized home care by using the Carer Support Needs Assessment Tool Intervention
Marie Cederschiöld University, Department of Health Care Sciences, Palliative Research Centre, PRC. Capio Palliative Care, Dalen Hospital, Stockholm.
Faculty of Health and Life Sciences, Linnaeus University, Kalmar; Department of Research, Region Kalmar County.
Department of Nursing Science, Sophiahemmet University, Stockholm.ORCID iD: 0000-0002-3647-1686
Division of Nursing, Midwifery & Social Care, Faculty of Biology, Medicine and Health, University of Manchester, United Kingdom.
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2024 (English)In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 22, no 2, p. 236-242Article in journal (Refereed) Published
Abstract [en]

OBJECTIVES: Family caregivers often feel insufficiently prepared for a caregiving role, experiencing challenges and demands related to care at home that may negatively affect their own quality of life. Supportive interventions have been shown to influence negative effects, but more studies are needed. Therefore, this study aims to explore potential effects of the Carer Support Needs Assessment Tool Intervention on preparedness, caregiver burden, and quality of life among Swedish family caregivers in specialized home care.

METHODS: The study had a pre-post intervention design and was conducted at 6 specialized home care services in Sweden. Family caregivers who received the intervention completed a questionnaire, including the Preparedness for caregiving scale, Caregiver Burden Scale, and Quality of Life in Life-Threatening Illness - Family carer version, at 2 time points, baseline and follow up, about 5 weeks later. Data were analyzed using descriptive statistics and Wilcoxon signed-rank test.

RESULTS: Altogether, 33 family caregivers completed the baseline and follow-up assessment. A majority were retired (n = 26, 81%) and women (n = 19, 58%) and two-fifths had a university degree (n = 13, 41%). The family caregivers had significantly increased their preparedness for caregiving between the baseline and follow-up assessment (Mdn = 18 vs. 20, p = 0.002). No significant changes were found on caregiver burden or quality of life.

SIGNIFICANCE OF RESULTS: The results add to knowledge regarding the Carer Support Needs Assessment Tool Intervention's potential to improve family caregiver outcomes. Findings suggest that the intervention may be used to improve the preparedness for caregiving and support among family caregivers in specialized home care.

Place, publisher, year, edition, pages
2024. Vol. 22, no 2, p. 236-242
Keywords [en]
Caregivers, Home care, Intervention, Palliative, Preparedness
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-10342DOI: 10.1017/S1478951523000639PubMedID: 37278216OAI: oai:DiVA.org:esh-10342DiVA, id: diva2:1775523
Note

Publication status in dissertation: Advance online publication.

Publication year in dissertation: 2023.

Available from: 2023-06-19 Created: 2023-06-27 Last updated: 2024-04-22Bibliographically approved
In thesis
1. A person-centred approach to support family caregivers in specialised home care: The Carer Support Needs Assessment Tool Intervention
Open this publication in new window or tab >>A person-centred approach to support family caregivers in specialised home care: The Carer Support Needs Assessment Tool Intervention
2023 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Family caregivers are crucial providers of support and care for patients with lifethreatening illness and many report unmet support needs. With the use of quantitative and qualitative methods this thesis aimed to evaluate the Carer Support Needs Assessment Tool (CSNAT) and explore experiences and potential effects of utilising the Carer Support Needs Assessment Tool Intervention (CSNAT-I) among family caregivers and registered nurses in the context of specialised home care. The results showed that the CSNAT tool was valid and reliable for use among family caregivers in specialised home care (I). Family caregivers reported most the need for additional support concerning “Knowing what to expect in the future” (I, II). They reported and described how higher levels of need for more support were associated with poorer quality of life (II). The intervention was effective in significantly increasing family caregivers’ preparedness for caregiving (p = 0.002) (IV). Participating nurses expressed that their everyday clinical practice changed while learning to use the CSNAT-I and they experienced professional and personal growth (III). Their assessments and supportive inputs shifted from reactive towards proactive and more in collaboration with family caregivers. When utilizing the CSNAT-I, family caregivers experienced their conversations with nurses as co-created, providing new perspectives and insights which increased their involvement and helped in finding solutions (V).

In conclusion, this thesis gives further weight to the importance of addressing family caregivers' support needs as a part of nursing.

Place, publisher, year, edition, pages
Stockholm: Marie Cederschiöld högskola, 2023. p. 126
Series
Avhandlingsserie inom området Människan i välfärdssamhället, ISSN 2003-3699 ; 17
Keywords
Family caregivers, Home care, Intervention, Nursing, Palliative care, Preparedness, Quality of life, Support
National Category
Nursing
Research subject
The Individual in the Welfare Society, Palliative Care
Identifiers
urn:nbn:se:esh:diva-10404 (URN)978-91-985806-6-2 (ISBN)
Public defence
2023-10-13, Marie Cederschiöld högskola, 13:00
Opponent
Supervisors
Available from: 2023-09-22 Created: 2023-09-21 Last updated: 2023-09-25

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Norinder, MariaAlvariza, Anette

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