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Parental Perspectives on Family Mealtimes Related to Gastrostomy Tube Feeding in Children
Högskolan i Halmstad, Centrum för forskning om välfärd, hälsa och idrott (CVHI).ORCID iD: 0000-0001-5499-7246
Jönköping University, Jönköping, Sweden.ORCID iD: 0000-0001-9597-039X
Region Halland, Kungsbacka, Sweden.ORCID iD: 0000-0002-9486-8585
2021 (English)In: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557, Vol. 31, no 9, p. 1596-1608Article in journal (Refereed) Published
Abstract [en]

Built on the important functions daily routines serve families and child health, this study aimed to explore parents’ descriptions of mealtimes and food-related challenges when living with a child using a gastrostomy feeding tube. The study was informed by ecocultural theory and based on in-depth interviews combined with stimulated recall. The interviews of 10 parents were inductively analyzed by means of qualitative content analysis. Four main categories comprised the parents’ descriptions: “One situation, different functions,” “On the child’s terms,” “Doing something to me,” and “An unpredictable pattern,” with one overarching theme. The analyses showed that the parents strived to establish mealtimes in line with their cultural context, although they struggled to reach a point of satisfaction. The study highlights the importance of health care professionals to address the medical aspects of caring for a child with a G-tube, but also the potential psychological and social consequences for ordinary family life. © The Author(s) 2021.

Place, publisher, year, edition, pages
Thousand Oaks, CA: Sage Publications , 2021. Vol. 31, no 9, p. 1596-1608
Keywords [en]
developmental disabilities, enteral nutrition, ecocultural theory, interviews, pediatrics, qualitative, stimulated recall, Sweden
National Category
Pediatrics
Identifiers
URN: urn:nbn:se:esh:diva-10412DOI: 10.1177/1049732321997133ISI: 000627084200001PubMedID: 33666118Scopus ID: 2-s2.0-85102151433OAI: oai:DiVA.org:esh-10412DiVA, id: diva2:1796933
Note

Funding: The Department of Research and Development, Region Halland, Sweden (Grant no. 894731).

Available from: 2023-09-13 Created: 2023-09-13 Last updated: 2023-09-13Bibliographically approved

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Backman, Ellen

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