Planned maintenance
A system upgrade is planned for 13/12-2023, at 12:00-13:00. During this time DiVA will be unavailable.
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Children's perspectives on mealtimes when living with a gastrostomy tube: A qualitative study
Högskolan i Halmstad, Centrum för forskning om välfärd, hälsa och idrott (CVHI).ORCID iD: 0000-0001-5499-7246
Department of Research and Development, Region Halland, Halmstad, Sweden.ORCID iD: 0000-0002-9486-8585
2021 (English)In: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 58, p. 53-59Article in journal (Refereed) Published
Abstract [en]

Purpose: To explore children's experiences of mealtimes when living with a gastrostomy tube.Design and methods: The study used a qualitative descriptive design framed within ecocultural theory. Seven children, three girls and four boys, aged 6–12 years with long-term health conditions and a gastrostomy tube participated in individual interviews. The interviews were qualitatively analysed by means of systematic text condensation.

Results: Four main categories comprised the findings of the children's mealtimes experiences: “Stable in form, open to variation,” “An individual, and a shared activity,” “An object that needs to be dealt with” and “A part of me.” A complex picture emerged, where the children experienced nutrition, whether through the gastrostomy tube or orally, as necessary for a healthy body, although this did not suffice to make the mealtime experience positive.

Conclusions: Regardless of the children's amount of oral intake, everyday mealtimes were valued as opportunities for social interaction and experienced as a predictable, routine activity no different from the mealtimes of other families. The accounts illustrated that in many situations the children knew precisely what they needed and did not need, what they liked and disliked and why.

Practice implications: Healthcare professionals should take children's knowledge into consideration to a greater extent when planning follow-up and intervention. The study illuminates that children can take an active part in their healthcare when offered flexible and carefully designed communication material, even in the presence of communicative and/or intellectual disability. © 2020 The Author(s). 

Place, publisher, year, edition, pages
Philadelphia, PA: Elsevier , 2021. Vol. 58, p. 53-59
Keywords [en]
Cognitive and communicative disabilitites, Enteral nutrition, Qualitative research, Pediatrics, Ecocultural theory
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-10413DOI: 10.1016/j.pedn.2020.11.018ISI: 000656655100022PubMedID: 33321374Scopus ID: 2-s2.0-85097781109OAI: oai:DiVA.org:esh-10413DiVA, id: diva2:1796934
Note

Funding: This work was supported by the Majblomman foundation, Sweden [Grant no. 2020–3] and Department of Research and Development, Region Halland, Sweden [Grant no. 894731].

Available from: 2023-09-13 Created: 2023-09-13 Last updated: 2023-09-13Bibliographically approved

Open Access in DiVA

No full text in DiVA

Other links

Publisher's full textPubMedScopus

Authority records

Backman, Ellen

Search in DiVA

By author/editor
Backman, EllenKarlsson, Ann-Kristin
In the same journal
Journal of Pediatric Nursing: Nursing Care of Children and Families
Nursing

Search outside of DiVA

GoogleGoogle Scholar

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 17 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf