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Parenting a child with cancer and maintaining a healthy couple relationship: Findings from the Family Talk Intervention
Marie Cederschiöld University, Department of Health Care Sciences, Palliative Research Centre, PRC. Department of Nursing Sciences Sophiahemmet University Stockholm Sweden;Department of Health Care Sciences Palliative Research Centre, Marie Cederschiöld University Stockholm Sweden.ORCID iD: 0000-0003-2074-5985
Marie Cederschiöld University, Department of Health Care Sciences, Palliative Research Centre, PRC.ORCID iD: 0000-0002-0440-637X
Marie Cederschiöld University, Department of Health Care Sciences, Palliative Research Centre, PRC. Advanced Pediatric Home Care, Karolinska University Hospital, Stockholm, Sweden.ORCID iD: 0000-0003-4736-500X
Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
2024 (English)In: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 71, no 1Article in journal (Refereed) Published
Abstract [en]

Background Despite the challenges that caring for a child with cancer brings for parents, little knowledge is available concerning the effects on the parents’ couple relationship. Furthermore, few interventions have been designed to support parents in their couple relationship. The aim of this paper was, therefore, to explore parents’ experiences of their couple relationship while having a dependent child with cancer and the support they received from a family-based intervention, the Family Talk Intervention (FTI).

Methods Data for this paper were taken from semi-structured interviews performed in a pilot study of the FTI in the context of pediatric oncology. In total, 22 couples were interviewed after participating in the FTI. The interviews were transcribed and analyzed using qualitative content analysis.

Results Parents described how maintaining a couple relationship while living with childhood cancer could be very challenging and was not given the highest priority. The FTI was considered a way of providing important support to the couple and a chance for them to sit down together and listen to each other's perspectives on the situation. Parents described that the FTI had helped them gain an increased mutual understanding, sometimes also helping them to realize that they needed more extensive professional support in their relationship.

Conclusions Living with childhood cancer and upholding a healthy couple relationship is challenging for parents. The FTI has the potential to support couples, mainly by providing opportunities for parents to communicate with each other. However, some couples may be in need of a tailored clinical intervention.

Place, publisher, year, edition, pages
2024. Vol. 71, no 1
Keywords [en]
Childhood cancer, Parents, Psycho-educational, Relationship, Support
National Category
Nursing
Research subject
The Individual in the Welfare Society, Palliative Care
Identifiers
URN: urn:nbn:se:esh:diva-10526DOI: 10.1002/pbc.30709PubMedID: 37817346OAI: oai:DiVA.org:esh-10526DiVA, id: diva2:1817516
Part of project
The Family Talk Intervention in clinical practice when a parent with dependent children or a child is severely ill: An effectiveness-implementation study, Swedish Research Council, Forte, Swedish Research Council for Health, Working Life and Welfare, Swedish Cancer Society, Swedish Childhood Cancer Foundation
Funder
Swedish Childhood Cancer FoundationAvailable from: 2023-12-06 Created: 2023-12-06 Last updated: 2023-12-07Bibliographically approved

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Holm, MajaLundberg, TinaLövgren, Malin

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