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Närståendes upplevelser vid palliativ vård i glesbygd: En litteraturöversikt
Marie Cederschiöld University, Department of Health Care Sciences. Sophiahemmet Högskola.
Marie Cederschiöld University, Department of Health Care Sciences. Sophiahemmet Högskola.
2024 (Swedish)Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesisAlternative title
Familys' experiences of palliative care in rural areas : A literature review (English)
Abstract [sv]

Bakgrund Närstående till patienter som får palliativ vård står inför en betydande börda. Denna börda kan vara fysisk, känslomässig och praktisk. Personer boende på glesbygden har utmaningar som långa avstånd till vårdinrättningar och brist på tillgång till specialiserad vård. Resurser i glesbygden har begränsad kapacitet att svara upp mot behoven hos patienten och deras familj. Det är dokumenterat att det finns utmaningar med att bedriva och följa riktlinjer för palliativ vård i glesbygdsområden men det saknas en sammanfattande bild av närståendes upplevelser i samband med palliativ vård i glesbygden.

Syfte Syftet var att beskriva närståendes upplevelser vid palliativ vård i glesbygd.

Metod En litteraturöversikt med induktiv ansats genomfördes. Sökningar genomfördes i databaserna PubMed och Cinahl och resulterade i 11 artiklar som bedömdes kunna svara på syftet. De valda artiklarna analyserades med en tematisk analysmetod.

Resultat Resultatet kan sammanfattas i fyra huvudteman: Interaktion med vårdpersonal, Från okunskap till förståelse, Uppoffring och belöning och Praktiska förutsättningar. Resultaten kopplas i resultatdiskussionen till Andersheds teori om delaktighet, med insikter som kan härledas till både delaktighet i ljuset och mörkret. Perspektiven som framkommer belyser olika aspekter av delaktighet inom ramen för Andersheds teoretiska ramverk.

Slutsats Sammantaget visar studien på den betydelsefulla rollen av gemenskap, kommunikation och individanpassad vård i palliativ miljö, vilket har implikationer för hur vården kan förbättras och anpassas för att möta närståendes behov och önskemål i glesbygdsområden.

Abstract [en]

Background Families of patients receiving palliative care face significant burdens. These burdens can be physical, emotional, and practical. People living in rural areas have challenges such as long distances to health care facilities and lack of access to specialized care. Resources in rural areas have limited capacity to respond to the needs of the patient and their family. It has been documented that there are challenges with conducting and following guidelines for palliative care in rural areas, but there is a lack of a summary picture of relatives' experiences in connection with palliative care in rural areas.

Aim The aim is to describe the experiences of relatives in palliative care in rural areas.

Method A literature review was conducted using an inductive approach. Searches were performed in the PubMed and Cinahl databases and resulted in 11 articles deemed able to address the aim. The selected articles were analyzed using a thematic analysis method.

Results The results can be summarized into four main themes: Interaction with Healthcare Personnel, From lack of knowledge to understanding, Sacrifices and rewards, and Practical Conditions. In the results discussion the findings are linked to Andershed's theory of participation, with insights that can be attributed to both participation in light and darkness. The perspectives that emerge illuminate different aspects of participation within the framework of Andershed's theoretical framework.

Conclusion This study highlights the significant role of community, communication, and individualized care in the palliative environment, with implications for how healthcare can be improved and adapted to meet the needs and preferences of relatives in rural areas.

Place, publisher, year, edition, pages
2024. , p. 26
Keywords [en]
Palliative Care, Relatives, Rural Areas, Healthcare Quality, Community
Keywords [sv]
Palliativ vård, Närstående, Glesbygd, Vårdkvalitet, Gemenskap
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-10834OAI: oai:DiVA.org:esh-10834DiVA, id: diva2:1861130
Educational program
Postgraduate Diploma in Specialist Nursing - Palliative Care (Coordinated by Marie Cederschiöld University College and Sophiahemmet University College)
Uppsok
Medicine
Supervisors
Examiners
Available from: 2024-05-29 Created: 2024-05-27 Last updated: 2024-05-29Bibliographically approved

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Andersson, S. & Wester, S (2024)(733 kB)91 downloads
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