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Mutuality and understanding through web-based support during specialised palliative home care: Family caregivers’ and patients’ experiences
Marie Cederschiöld University, Department of Health Care Sciences, Palliative Research Centre, PRC.ORCID iD: 0000-0003-4315-7676
Marie Cederschiöld University, Department of Health Care Sciences, Palliative Research Centre, PRC.ORCID iD: 0000-0001-6019-4335
Marie Cederschiöld University, Department of Health Care Sciences, Palliative Research Centre, PRC. Sophiahemmet University, Stockholm; Karolinska Institute, Stockholm.ORCID iD: 0000-0002-8780-5922
University of Melbourne, Melbourne, Australia; Vrije University, Brussels, Belgium.
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2024 (English)Conference paper, Poster (with or without abstract) (Refereed)
Abstract [en]

Background/Aim Family caregivers and patients in palliative care are often mutually dependent, supporting each other through the impact of serious illness. The possibility to cope as a couple is of particular importance for family caregivers when providing care at home. A psycho-educational website was developed to support family caregivers in this situation. In short videos healthcare professionals and family caregivers (actors) interact, discussing issues known to be of importance for family caregivers, for example illness-related communication and planning for the future. This study aimed to explore influences of web-based support on experiences of mutual support between family caregivers and patients with life-threatening illness.

Methods This study was part of a randomised controlled trial and used a qualitative approach. In total, 8 couples were interviewed, one family caregiver and one patient together in each interview (age 46–85). Data were analysed using interpretive description.

Results Both family caregivers and patients appreciated the opportunity for family caregivers to have their own private platform of support. For each of them personally, and as a couple, it was relieving that also family caregivers’ needs gained attention and were put into focus. Family caregivers expressed feelings of normalisation as their own thoughts were addressed in the videos. Recognising the situations described in the videos was empowering, helping to cope with their own stress and strain, as well as facing the patient’s similar feelings. This facilitated their everyday life as a couple supporting each other in illness. Couples described themselves as being a team.

Conclusions This website, supporting family caregivers, influenced family caregivers’ and patients’ mutual life by enhancing understanding of the shared situation and how to approach it. Although only family caregivers did access the website, it was beneficial for both of them in their everyday life.

Place, publisher, year, edition, pages
2024.
National Category
Nursing
Research subject
The Individual in the Welfare Society, Palliative Care
Identifiers
URN: urn:nbn:se:esh:diva-10845DOI: 10.1177/0269216324124233OAI: oai:DiVA.org:esh-10845DiVA, id: diva2:1863634
Conference
13th World Research Congress of the EAPC (European Association for Palliative Care), Barcelona, Spain, May 16-18, 2024.
Part of project
Promoting preparedness for family caregiving in a specialised palliative home care context - a randomized controlled web-based intervention trial, Swedish Research CouncilAvailable from: 2024-05-31 Created: 2024-05-31 Last updated: 2024-06-04Bibliographically approved

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Bauman, CeciliaWallin, ViktoriaDoveson, SandraKreicbergs, UlrikaAlvariza, Anette

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