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A Scoping Review of Outcomes Measured and Involvement of People With Intellectual Disabilities in Active Support Research
Marie Cederschiöld University, Department of Social Work.ORCID iD: 0000-0002-2115-9913
Södertörn University, Sweden.ORCID iD: 0000-0002-3868-0254
La Trobe University, Australia.ORCID iD: 0000-0002-8464-8642
La Trobe University, Australia.ORCID iD: 0000-0001-7001-8976
Show others and affiliations
2024 (English)In: JARID: Journal of applied research in intellectual disabilities, ISSN 1360-2322, E-ISSN 1468-3148, Vol. 37, no 6, p. 1-14, article id e13309Article in journal (Refereed) Published
Abstract [en]

Background: Active Support is a staff practice that aims to increase engagement of people with intellectual disabilities. This study seeks to: (1) identify the outcomes of staff using Active Support and how these are measured; (2) identify how the views of people with intellectual disabilities have been included in Active Support research.

Method: A scoping review was conducted of peer-reviewed articles about Active Support published between 2009 and 2023.

Results: Sixteen articles were identified. Outcomes included engagement, the quality of staff support, choice and challenging behaviour. Structured observations were the most frequently used measurement method. Only two studies explored people with intellectual disabilities' perspectives about Active Support.

Conclusions: Consistent use of similar measures is a strength of Active Support research. Including perspectives of people with intellectual disabilities may provide insight into dimensions of support not been measured and assist in further developing these measures and Active Support practice.

Place, publisher, year, edition, pages
2024. Vol. 37, no 6, p. 1-14, article id e13309
Keywords [en]
Active support, Engagement, Intellectual disability, Quality of life, Staff support
National Category
Social Work
Research subject
Människan i välfärdssamhället, Socialt arbete
Identifiers
URN: urn:nbn:se:esh:diva-11370DOI: 10.1111/jar.13309ISI: 001330267600001PubMedID: 39397250OAI: oai:DiVA.org:esh-11370DiVA, id: diva2:1954114
Available from: 2025-04-23 Created: 2025-04-23 Last updated: 2025-04-24Bibliographically approved
In thesis
1. More participation, choice making and meaningful activities in everyday life for people with intellectual disabilities?: Evaluation of Active Support and Frontline Practice Leadership in group homes in Sweden
Open this publication in new window or tab >>More participation, choice making and meaningful activities in everyday life for people with intellectual disabilities?: Evaluation of Active Support and Frontline Practice Leadership in group homes in Sweden
2025 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Active Support is an internationally well-researched staff practice to improve quality of life for people with intellectual disabilities living in group homes. However, research findings from Sweden are lacking about Active Support. The aim of this doctoral thesis was to investigate the two-year effect of Active Support, including Frontline Practice Leadership, in Swedish group homes for people with intellectual disabilities.

Four group homes participated in this intervention project. A mixed methods approach was used, combining interviews with managers and service users, observations of leadership and staff-service users’ interactions and staff questionnaires. Data was collected on repeated occasions, both before and after the training, to evaluate the longitudinal effects of Active Support training.

Results showed that better support was given in all four group homes after Active Support training. Services users said that their influence, choices and emotional support had improved. Observations over two years confirmed that staff-serviceusers’ interactions had improved with more activity and choices. Practice leadership, a part of Active Support, was important for working with Active Support and feedback sessions were particularly important to continuously develop staff support.This intervention project shows that Active Support is a promising staff practice that develops staff´s support skills in group homes in Sweden. These findings also show the importance that people with intellectual disabilities are heard when evaluating new staff practices.

Place, publisher, year, edition, pages
Stockholm: Marie Cederschiöld högskola, 2025. p. 183
Series
Avhandlingsserie inom området Människan i välfärdssamhället, ISSN 2003-3699 ; 22
Keywords
Intellectual disability, Active Support, Staff practice, Frontline Practice Leadership, Interviews, Staff development, Group homes
National Category
Social Work
Research subject
Människan i välfärdssamhället, Socialt arbete
Identifiers
urn:nbn:se:esh:diva-11376 (URN)978-91-985807-1-6 (ISBN)
Public defence
2025-05-23, Aulan, Campus Ersta, Stigbergsgatan 30, Stockholm, 09:00
Opponent
Supervisors
Available from: 2025-04-30 Created: 2025-04-24 Last updated: 2025-04-30Bibliographically approved

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Aspling, JennyTideman, Magnus

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