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Active support as good support in group homes?: A longitudinal interview study with service users
Marie Cederschiöld University, Department of Social Work.ORCID iD: 0000-0002-2115-9913
Södertörn University, Sweden.ORCID iD: 0000-0002-3868-0254
Marie Cederschiöld University, Department of Social Work.ORCID iD: 0000-0002-7519-6488
2025 (English)In: Journal of Intellectual & Developmental Disability, ISSN 1366-8250, E-ISSN 1469-9532, Vol. 50, no 1, p. 33-44Article in journal (Refereed) Published
Abstract [en]

Background: Support from staff plays an important role in quality of life for people with intellectual disability. This study focuses on service users’ views of Active Support as good support and whether Active Support increases the quality of everyday support in group homes.

Method: Nine service users were interviewed at baseline and at follow-up one year after staff received Active Support training. Thematic analyses were used to develop themes.

Results: Three main themes were created: (1) Home is more than just a place, it is a feeling; (2) Good care is caring with accessible communication; and (3) Time is precious. Participants were more satisfied with most of the support at follow-up, particularly choice-making, control in everyday life, relationships, and emotional support.

Conclusions: Active Support corresponds well with service users’ perceptions of good support. Infuture studies of Active Support service users’ voices should be a part of the follow-up.

Place, publisher, year, edition, pages
2025. Vol. 50, no 1, p. 33-44
Keywords [en]
Active support, Intellectualdisability, Interviews, Grouphomes, Support workers, Ethic of care
National Category
Social Work
Research subject
Människan i välfärdssamhället, Socialt arbete
Identifiers
URN: urn:nbn:se:esh:diva-11372DOI: 10.3109/13668250.2024.2400097ISI: 001321382100001PubMedID: 39957526OAI: oai:DiVA.org:esh-11372DiVA, id: diva2:1954229
Available from: 2025-04-24 Created: 2025-04-24 Last updated: 2025-04-24Bibliographically approved
In thesis
1. More participation, choice making and meaningful activities in everyday life for people with intellectual disabilities?: Evaluation of Active Support and Frontline Practice Leadership in group homes in Sweden
Open this publication in new window or tab >>More participation, choice making and meaningful activities in everyday life for people with intellectual disabilities?: Evaluation of Active Support and Frontline Practice Leadership in group homes in Sweden
2025 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Active Support is an internationally well-researched staff practice to improve quality of life for people with intellectual disabilities living in group homes. However, research findings from Sweden are lacking about Active Support. The aim of this doctoral thesis was to investigate the two-year effect of Active Support, including Frontline Practice Leadership, in Swedish group homes for people with intellectual disabilities.

Four group homes participated in this intervention project. A mixed methods approach was used, combining interviews with managers and service users, observations of leadership and staff-service users’ interactions and staff questionnaires. Data was collected on repeated occasions, both before and after the training, to evaluate the longitudinal effects of Active Support training.

Results showed that better support was given in all four group homes after Active Support training. Services users said that their influence, choices and emotional support had improved. Observations over two years confirmed that staff-serviceusers’ interactions had improved with more activity and choices. Practice leadership, a part of Active Support, was important for working with Active Support and feedback sessions were particularly important to continuously develop staff support.This intervention project shows that Active Support is a promising staff practice that develops staff´s support skills in group homes in Sweden. These findings also show the importance that people with intellectual disabilities are heard when evaluating new staff practices.

Place, publisher, year, edition, pages
Stockholm: Marie Cederschiöld högskola, 2025. p. 183
Series
Avhandlingsserie inom området Människan i välfärdssamhället, ISSN 2003-3699 ; 22
Keywords
Intellectual disability, Active Support, Staff practice, Frontline Practice Leadership, Interviews, Staff development, Group homes
National Category
Social Work
Research subject
Människan i välfärdssamhället, Socialt arbete
Identifiers
urn:nbn:se:esh:diva-11376 (URN)978-91-985807-1-6 (ISBN)
Public defence
2025-05-23, Aulan, Campus Ersta, Stigbergsgatan 30, Stockholm, 09:00
Opponent
Supervisors
Available from: 2025-04-30 Created: 2025-04-24 Last updated: 2025-04-30Bibliographically approved

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Aspling, JennyTideman, Magnus

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