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A phenomenological study of fibromyalgia: patient perspectives
Linköpings universitet.
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1999 (English)In: Scandinavian Journal of Primary Health Care, ISSN 0281-3432, E-ISSN 1502-7724, Vol. 17, no 1, 11-16 p.Article in journal (Refereed) Published
Abstract [en]

OBJECTIVE: To describe the way in which the fibromyalgia patients understand the meaning of their illness. DESIGN: Qualitative, empirical phenomenological psychological method. SETTING: A collaborative transdisciplinary interview study of patients' described experiences of living with fibromyalgia. No therapeutic relationships existed between patients and researchers. SUBJECTS: Eighteen patients with fibromyalgia were interviewed. Ten of the 18 taped interviews were transcribed and analysed. MAIN OUTCOME MEASURES: Patients' narratives, described experiences of living with fibromyalgia. RESULTS: The patients were intensively involved in efforts to get their self-images as ill persons confirmed. Their experience was that the disease started dramatically, with a variety of capriciously appearing symptoms of unknown cause that gave rise to the suffering. The fibromyalgia patients seemed to develop strategies to cope with a precarious self-image and find ways to manage the thought of what the future would bring. CONCLUSION: The meaning structures revealed in the patients' ways of describing their experiences of living with fibromyalgia seemed to be partially constituted by their efforts to stand forth as afflicted with a disease, which could be a way to help them to manage the demands that they placed upon themselves.

Place, publisher, year, edition, pages
1999. Vol. 17, no 1, 11-16 p.
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-79PubMedID: 10229986OAI: oai:DiVA.org:esh-79DiVA: diva2:318071
Available from: 2010-05-06 Created: 2010-05-06 Last updated: 2011-04-04Bibliographically approved

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