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Developing the concept of family involvement and the alienation questionnaire in the context of psychiatric care
Örebro universitet. ; Högskolan Dalarna.
Ersta Sköndal University College, Department of palliative care research.
2008 (English)In: International Journal of Mental Health Nursing, ISSN 1445-8330, E-ISSN 1447-0349, Vol. 17, no 6, 439-49 p.Article in journal (Refereed) Published
Abstract [en]

Research shows that family members of people with a mental illness often experience a lack of involvement in the psychiatric care of their relative. An interpretation of the findings of these studies raises the question of whether the family members' experience of not being involved can be conceptualized in terms of alienation towards mental health services from their encounter with psychiatric care. In order to explore this possibility, the Family Involvement and Alienation Questionnaire (FIAQ) was constructed, guided by relevant theoretical frameworks and empirical research. The content validity of the questionnaire was evaluated by two groups of experienced researchers who had sound knowledge of the theoretical frameworks used. Validity based on the response process was evaluated by the parents of people with mental illness. The reliability of the questionnaire was evaluated by a test-retest design with a group of 15 family members. The data were analyzed by a non-parametric statistical method. The results of the validity and reliability evaluations showed that of the 46 original items in the questionnaire, 28 would be useful in exploring the concept of family involvement and alienation in the context of psychiatric care. Further, minor modifications could make the FIAQ useful in exploring these concepts in other settings.

Place, publisher, year, edition, pages
2008. Vol. 17, no 6, 439-49 p.
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-415DOI: 10.1111/j.1447-0349.2008.00570.xPubMedID: 19128291OAI: oai:DiVA.org:esh-415DiVA: diva2:327865
Available from: 2010-06-30 Created: 2010-06-30 Last updated: 2012-10-10Bibliographically approved
In thesis
1. Familjemedlem till person med psykossjukdom: bemötande och utanförskap i psykiatrisk vård
Open this publication in new window or tab >>Familjemedlem till person med psykossjukdom: bemötande och utanförskap i psykiatrisk vård
2012 (Swedish)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

This thesis focused on the situation of family members of persons with psychotic illness, particular on their experience of the approach of the healthcare professionals and of their feelings of alienation regarding the professional care of their family member. A further aim was to explore how siblings who have participated in a support group for siblings experienced their situation.

A questionnaire was developed that enabled the aims of this thesis to be investigated (I). Seventy family members from various parts of Sweden participated, and data were collected via the questionnaire developed in study I (II-III). Thirteen siblings who previously had participated in a support group participated in follow-up focus groups interviews (IV).

The questionnaire developed was shown to be reliable and valid in these studies (I). In many cases, the participants had experienced an approach from professionals that indicated that they did not experience openness, confirmation and cooperation, and that they felt powerless and socially isolated in relation to the care. There was also found to be a certain degree of association between how the participants experienced the approach and whether they felt alienation (II). The majority of the participants considered openness, confirmation, and cooperation to be important aspects of professional’s approach. The result also identified a low level of agreement between the participants’ experience and what they considered to be significant in the professional’s approach (III). The findings revealed the complexity of being a sibling of an individual with psychotic illness. Participating in a support group for siblings can be of importance in gaining knowledge and minimizing feelings of being alone (IV).

Although the psychiatric care services in Sweden have been aware of the importance of cooperating with family members, the results indicated that there is a need for further research in this area. 

Place, publisher, year, edition, pages
Örebro: Örebro universitet, 2012. 82 p.
Series
Örebro Studies in Care Sciences, ISSN 1652-1153 ; 35
Keyword
Alienation, Family participation, Support group, Professional´s approach, Psychiatric health care services, Sibling
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-1731 (URN)978-91-7668-858-8 (ISBN)
Public defence
2012-03-26, Örebro universitet, Hörsal P1, Fakultetsgatan 1, Örebro, 14:00 (Swedish)
Opponent
Supervisors
Available from: 2012-10-10 Created: 2012-10-10 Last updated: 2013-05-15Bibliographically approved

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