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Living with severe chronic heart failure in palliative advanced home care.
Ersta Sköndal University College, Department of palliative care research. Ersta Sköndal University College, Department of Health Care Sciences.ORCID iD: 0000-0001-5994-4012
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2006 (English)In: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 5, no 4, 295-302 p.Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Living with severe chronic heart failure (CHF) in palliative care has been little studied. AIM: The aim of this study is to illuminate meaning of living with severe CHF in palliative advanced home care through patients' narratives. METHODS: Narrative interviews were conducted with 4 patients, tape-recorded and transcribed verbatim. A phenomenological-hermeneutic method was used to interpret the text. RESULTS: Meaning of living with severe CHF in palliative advanced home care emerged as 'knocking on death's door' although surviving. The course of the illness forces one to live a 'roller coaster life,' with an ongoing oscillation between ups and downs. Making it through the downs breeds a kind of confidence in one's ability to survive and the will to live is strong. Being offered a safety belt in the 'roller coaster' by the palliative advanced home care team evokes feelings of security. CONCLUSIONS: Meaning of living with severe CHF in palliative advanced home care is on one hand, being aware of one's imminent death, on the other hand, making it through the downs i.e. surviving life-threatening conditions, breed confidence in also surviving the current down. Being constructively dependent on palliative advanced home care facilitates everyday life at home.

Place, publisher, year, edition, pages
2006. Vol. 5, no 4, 295-302 p.
Keyword [en]
Activities of Daily Living, Adaptation; Psychological, Aged, Aged; 80 and over, Attitude to Death, Attitude to Health, Chronic Disease, Fear/psychology, Female, Geriatric Assessment, Heart Failure/prevention & control/*psychology, Home Care Services/organization & administration, Humans, Male, Nursing Methodology Research, Palliative Care/organization & administration/*psychology, Questionnaires, Self Care/psychology, Self Efficacy, Severity of Illness Index, Social Isolation, Social Support, Sweden
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Nursing
Identifiers
URN: urn:nbn:se:esh:diva-517DOI: 10.1016/j.ejcnurse.2006.01.006PubMedID: 16546447OAI: oai:DiVA.org:esh-517DiVA: diva2:330349
Note
Ingår i avhandling: Brännström, Margareta. Ett liv i berg och dalbana: innebörder av att leva med svår kronisk hjärtsvikt i palliativ avancerad hemsjukvård utifrån patienters, närståendes och sjuksköterskors berättelser. 2007.Available from: 2010-07-15 Created: 2010-07-15 Last updated: 2016-12-05Bibliographically approved

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