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Being in the patient position: experiences of health care among people with irritable bowel syndrome
Ersta Sköndal University College, Enheten för forskning i palliativ vård.
Ersta Sköndal University College, Department of Health Care Sciences. Ersta Sköndal University College, Enheten för forskning i palliativ vård.
2010 (English)In: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557, Vol. 20, no 8, 1116-27 p.Article in journal (Refereed) Published
Abstract [en]

The purpose of this study was to gain in-depth understanding of what it is like for a person with irritable bowel syndrome to be in the patient position in encounters with health care providers. We conducted qualitative interviews with nine individuals. Our analysis, guided by interpretive description, revealed experiences of unsupportive and supportive encounters. Unsupportive encounters were shaped by humiliation, insignificance, and abandonment. Not feeling believed and acknowledged as persons made the participants lose trust in their own experience, which enhanced their unfamiliar mood of being in the world. Supportive encounters were less prominent. These were characterized by openness and acknowledgment of the patient's lifeworld. Feeling significant and being listened to promoted feelings of being in a partnered, cocreating relationship. It is reasonable to assume that care originating in the patient's lifeworld would support the patients to use their strength to manage illness and regain familiarity in everyday life.

Place, publisher, year, edition, pages
2010. Vol. 20, no 8, 1116-27 p.
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-699DOI: 10.1177/1049732310369914PubMedID: 20463359OAI: oai:DiVA.org:esh-699DiVA: diva2:358019
Available from: 2010-10-20 Created: 2010-10-20 Last updated: 2015-11-04Bibliographically approved
In thesis
1. Living with irritable bowel syndrome: A patient perspective on everyday life, health care encounters and patient education
Open this publication in new window or tab >>Living with irritable bowel syndrome: A patient perspective on everyday life, health care encounters and patient education
2010 (English)Doctoral thesis, comprehensive summary (Other academic)
Place, publisher, year, edition, pages
Stockholm: Karolinska institutet, 2010. 84 p.
Keyword
coping, health care relationships, illness experience, irritable bowel syndrome, learning, life world, lived body, patient education, patient perspective, shame, unhomelikeness
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-1712 (URN)978-91-7409-997-3 (ISBN)
Public defence
2010-10-22, Aulan, Ersta Sköndal högskola, Stigbergsgatan 30, Stockholm, 09:32
Opponent
Supervisors
Available from: 2012-09-26 Created: 2012-09-18 Last updated: 2012-09-26Bibliographically approved

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Håkanson, CeciliaSahlberg-Blom, EvaTernestedt, Britt-Marie
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CiteExportLink to record
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