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Family member’s expectations of the psychiatric health-care professionals´ approach towards them
Örebro universitet. ; Högskolan Dalarna.ORCID iD: 0000-0002-2108-1343
Ersta Sköndal University College, Enheten för forskning i palliativ vård.
2011 (English)In: Journal of Psychiatric and Mental Health Nursing, ISSN 1351-0126, E-ISSN 1365-2850, Vol. 18, no 2, p. 146-157Article in journal (Refereed) Published
Place, publisher, year, edition, pages
2011. Vol. 18, no 2, p. 146-157
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:esh:diva-1318DOI: 10.1111/j.1365-2850.2010.01647.xOAI: oai:DiVA.org:esh-1318DiVA, id: diva2:452025
Available from: 2011-10-27 Created: 2011-10-27 Last updated: 2020-06-03Bibliographically approved
In thesis
1. Familjemedlem till person med psykossjukdom: bemötande och utanförskap i psykiatrisk vård
Open this publication in new window or tab >>Familjemedlem till person med psykossjukdom: bemötande och utanförskap i psykiatrisk vård
2012 (Swedish)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

This thesis focused on the situation of family members of persons with psychotic illness, particular on their experience of the approach of the healthcare professionals and of their feelings of alienation regarding the professional care of their family member. A further aim was to explore how siblings who have participated in a support group for siblings experienced their situation.

A questionnaire was developed that enabled the aims of this thesis to be investigated (I). Seventy family members from various parts of Sweden participated, and data were collected via the questionnaire developed in study I (II-III). Thirteen siblings who previously had participated in a support group participated in follow-up focus groups interviews (IV).

The questionnaire developed was shown to be reliable and valid in these studies (I). In many cases, the participants had experienced an approach from professionals that indicated that they did not experience openness, confirmation and cooperation, and that they felt powerless and socially isolated in relation to the care. There was also found to be a certain degree of association between how the participants experienced the approach and whether they felt alienation (II). The majority of the participants considered openness, confirmation, and cooperation to be important aspects of professional’s approach. The result also identified a low level of agreement between the participants’ experience and what they considered to be significant in the professional’s approach (III). The findings revealed the complexity of being a sibling of an individual with psychotic illness. Participating in a support group for siblings can be of importance in gaining knowledge and minimizing feelings of being alone (IV).

Although the psychiatric care services in Sweden have been aware of the importance of cooperating with family members, the results indicated that there is a need for further research in this area. 

Place, publisher, year, edition, pages
Örebro: Örebro universitet, 2012. p. 82
Series
Örebro Studies in Care Sciences, ISSN 1652-1153 ; 35
Keywords
Alienation, Family participation, Support group, Professional´s approach, Psychiatric health care services, Sibling
National Category
Nursing
Identifiers
urn:nbn:se:esh:diva-1731 (URN)978-91-7668-858-8 (ISBN)
Public defence
2012-03-26, Örebro universitet, Hörsal P1, Fakultetsgatan 1, Örebro, 14:00 (Swedish)
Opponent
Supervisors
Available from: 2012-10-10 Created: 2012-10-10 Last updated: 2020-06-03Bibliographically approved

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Ewertzon, MatsAndershed, Birgitta

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