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Meeting the needs of family members of persons with life threatening illness: a support group programme during ongoing palliative care.
Ersta Sköndal University College, Enheten för forskning i palliativ vård.
Ersta Sköndal University College, Enheten för forskning i palliativ vård.
Ersta Sköndal University College, Enheten för forskning i palliativ vård.
Ersta Sköndal University College, Enheten för forskning i palliativ vård.
2011 (English)In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 9, no 3, 263-271 p.Article in journal (Refereed) Published
Place, publisher, year, edition, pages
2011. Vol. 9, no 3, 263-271 p.
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:esh:diva-1320DOI: 10.1017/S1478951511000216OAI: oai:DiVA.org:esh-1320DiVA: diva2:452029
Available from: 2011-10-27 Created: 2011-10-27 Last updated: 2017-01-12Bibliographically approved
In thesis
1. A support group programme for family members: an intervention during ongoing palliative care
Open this publication in new window or tab >>A support group programme for family members: an intervention during ongoing palliative care
2012 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Family members are central in providing care for patients with lifethreatening illness, but they often experience a lack of necessary preparation and knowledge, with a need for information and psychosocial support. The overall aim of this thesis was to investigate participant’s experiences as well as effects of a support group programme for family members of patients with life-threatening illness during ongoing palliative care.

Methods: A mixed method design was used. Study I was retrospective descriptive and used a phenomenological method to analyse 10 face-to-face interviews about experiences of participating in the programme. Study II was retrospective descriptive and used qualitative content analysis to analyse 29 telephone interviews about experiences of the programme design. Study III was correlational and used a confirmatory factor analysis to psychometrically evaluate the preparedness for caregiving scale(PCS), caregiver competence scale(CCS) and rewards of caregiving scale(RCS) in 124 family members. Study IV was prospective quasi-experimental and used interferential statistics to investigate effects of the programme, assessing preparedness, competence, rewards, anxiety, depression, hope and health in 125 family members.

Results: The main experiences of participation in the programme were; a sense of safety and belonging, confirmation, insight into the gravity of the illness, and a moment of rest. The programme was experienced as covering topics of interest, structured to make participants feel invited by the caring team and using an open approach that fostered a warm atmosphere. The Swedish versions of PCS, CCS and RCS were shown to be valid and reliable. Family members who participated in the programme significantly increased in preparedness, competence and rewards in relation to caregiving. No significant changes were shown for anxiety, depression, hope and health.

Clinical implications: The results should provide encouragement in the challenging work to develop and deliverer interventions, with the explicit purpose of supporting family members in palliative care.

Place, publisher, year, edition, pages
Örebro universitet, 2012. 271 p.
Keyword
Competence, Family members, Interventions, Palliative care, Preparedness, Rewards, Support groups
National Category
Health Sciences Nursing
Identifiers
urn:nbn:se:esh:diva-1868 (URN)9789176688694 (ISBN)
Available from: 2012-12-27 Created: 2012-12-20 Last updated: 2017-02-14Bibliographically approved

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Henriksson (Alvariza), AnetteBenzein, EvaTernestedt, Britt-MarieAndershed, Birgitta
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