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Adaptation and psychometric evaluation of the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale in a sample of Swedish family members of patients with life-threatening illness
Örebro universitet.
Ersta Sköndal University College, Enheten för forskning i palliativ vård. Gjövik University, Norway.
Ersta Sköndal University College, Enheten för forskning i palliativ vård. Linnéuniversitetet.
Linnéuniversitetet, Linköpings universitet.
2012 (English)In: Palliative Medicine: A Multiprofessional Journal, ISSN 0269-2163, E-ISSN 1477-030X, Vol. 26, no 7, 930-938 p.Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Family members often take on many caring responsibilities, with complex issues and challenges to consider. Feelings of preparedness, competence and reward are identified as concepts that may protect caregiver wellbeing and decrease negative outcomes related to caregiving.

AIM: This study aimed to translate, adapt and psychometrically evaluate the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale in Swedish family members of patients with life threatening illness.

DESIGN: Correlational.

SETTING/PARTICIPANTS: The study took place in four settings including advanced palliative care. The scales were tested in a sample of 125 family members of persons with life-threatening illness. All three scales were tested in relation to distribution of item and scale scores, missing data patterns, dimensionality, convergent validity and reliability.

RESULTS: The results in this study indicate that the Swedish versions of The Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale are valid, reliable and user-friendly scales. Confirmatory factor analysis showed that the scales were unidimensional and all demonstrated Cronbach's alpha values of ≥0.9.

CONCLUSIONS: As a result of this study it is anticipated that the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale could provide a basis for collaborative research between different countries and make international studies more comparable and generalizable despite differences in language and culture.

Place, publisher, year, edition, pages
2012. Vol. 26, no 7, 930-938 p.
Keyword [en]
Family caregivers, Life-threatening illness, Psychometric evaluation
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:esh:diva-1321DOI: 10.1177/0269216311419987PubMedID: 21908520OAI: oai:DiVA.org:esh-1321DiVA: diva2:452034
Note

Published online before print September 9, 2011.

Available from: 2011-10-27 Created: 2011-10-27 Last updated: 2017-01-12Bibliographically approved
In thesis
1. A support group programme for family members: an intervention during ongoing palliative care
Open this publication in new window or tab >>A support group programme for family members: an intervention during ongoing palliative care
2012 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Family members are central in providing care for patients with lifethreatening illness, but they often experience a lack of necessary preparation and knowledge, with a need for information and psychosocial support. The overall aim of this thesis was to investigate participant’s experiences as well as effects of a support group programme for family members of patients with life-threatening illness during ongoing palliative care.

Methods: A mixed method design was used. Study I was retrospective descriptive and used a phenomenological method to analyse 10 face-to-face interviews about experiences of participating in the programme. Study II was retrospective descriptive and used qualitative content analysis to analyse 29 telephone interviews about experiences of the programme design. Study III was correlational and used a confirmatory factor analysis to psychometrically evaluate the preparedness for caregiving scale(PCS), caregiver competence scale(CCS) and rewards of caregiving scale(RCS) in 124 family members. Study IV was prospective quasi-experimental and used interferential statistics to investigate effects of the programme, assessing preparedness, competence, rewards, anxiety, depression, hope and health in 125 family members.

Results: The main experiences of participation in the programme were; a sense of safety and belonging, confirmation, insight into the gravity of the illness, and a moment of rest. The programme was experienced as covering topics of interest, structured to make participants feel invited by the caring team and using an open approach that fostered a warm atmosphere. The Swedish versions of PCS, CCS and RCS were shown to be valid and reliable. Family members who participated in the programme significantly increased in preparedness, competence and rewards in relation to caregiving. No significant changes were shown for anxiety, depression, hope and health.

Clinical implications: The results should provide encouragement in the challenging work to develop and deliverer interventions, with the explicit purpose of supporting family members in palliative care.

Place, publisher, year, edition, pages
Örebro universitet, 2012. 271 p.
Keyword
Competence, Family members, Interventions, Palliative care, Preparedness, Rewards, Support groups
National Category
Health Sciences Nursing
Identifiers
urn:nbn:se:esh:diva-1868 (URN)9789176688694 (ISBN)
Available from: 2012-12-27 Created: 2012-12-20 Last updated: 2017-02-14Bibliographically approved

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