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Effects of a support group programme for patients with life-threatening illness during ongoing palliative care
Örebro universitet.
Linköping universitet, Linne universitet.
Ersta Sköndal University College, Palliative Research Centre, PRC. Linnéuniversitetet.
Ersta Sköndal University College, Palliative Research Centre, PRC. Karolinska institutet, Stockholms sjukhem.
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2013 (English)In: Palliative Medicine: A Multiprofessional Journal, ISSN 0269-2163, E-ISSN 1477-030X, Vol. 27, no 3, 257-264 p.Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Health care systems in many countries are moving towards outpatient care in which family members are central in providing care for patients with life-threatening illness. Several studies show that family members report a lack of preparation, knowledge and the ability to handle the caregiver role, and a need for information and psychosocial support. 

AIM: The aim was to investigate the effects of a support group programme for family members of patients with life-threatening illness during ongoing palliative care.

DESIGN: A prospective quasi-experimental design, including an intervention group and a comparison group, was used.

SETTINGS/PARTICIPANTS: A support group programme was offered to family members during ongoing palliative care at three intervention settings: two specialist palliative care units and one haematology unit. A fourth setting, a specialist palliative care unit, was used for comparisons.

RESULTS: Family members taking part in the support group programme significantly increased their perceptions of preparedness for caregiving, competence for caregiving, and rewards of caregiving. Hope, anxiety, depression symptoms and health showed no significant changes.

CONCLUSIONS: The intervention, including a support group programme delivered to family members of patients with life-threatening illness during ongoing palliative care, proved to be effective in certain domains of caregiving. No negative outcomes were detected. The results indicate that this intervention could be implemented and delivered to family members during ongoing palliative care.

Place, publisher, year, edition, pages
2013. Vol. 27, no 3, 257-264 p.
Keyword [en]
Palliative care, Family members, Intervention, Support groups
National Category
Health Sciences
Identifiers
URN: urn:nbn:se:esh:diva-1867DOI: 10.1177/0269216312446103PubMedID: 22562965OAI: oai:DiVA.org:esh-1867DiVA: diva2:579887
Note

Published online before print May 4.

Available from: 2012-12-20 Created: 2012-12-20 Last updated: 2017-01-12Bibliographically approved
In thesis
1. A support group programme for family members: an intervention during ongoing palliative care
Open this publication in new window or tab >>A support group programme for family members: an intervention during ongoing palliative care
2012 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Family members are central in providing care for patients with lifethreatening illness, but they often experience a lack of necessary preparation and knowledge, with a need for information and psychosocial support. The overall aim of this thesis was to investigate participant’s experiences as well as effects of a support group programme for family members of patients with life-threatening illness during ongoing palliative care.

Methods: A mixed method design was used. Study I was retrospective descriptive and used a phenomenological method to analyse 10 face-to-face interviews about experiences of participating in the programme. Study II was retrospective descriptive and used qualitative content analysis to analyse 29 telephone interviews about experiences of the programme design. Study III was correlational and used a confirmatory factor analysis to psychometrically evaluate the preparedness for caregiving scale(PCS), caregiver competence scale(CCS) and rewards of caregiving scale(RCS) in 124 family members. Study IV was prospective quasi-experimental and used interferential statistics to investigate effects of the programme, assessing preparedness, competence, rewards, anxiety, depression, hope and health in 125 family members.

Results: The main experiences of participation in the programme were; a sense of safety and belonging, confirmation, insight into the gravity of the illness, and a moment of rest. The programme was experienced as covering topics of interest, structured to make participants feel invited by the caring team and using an open approach that fostered a warm atmosphere. The Swedish versions of PCS, CCS and RCS were shown to be valid and reliable. Family members who participated in the programme significantly increased in preparedness, competence and rewards in relation to caregiving. No significant changes were shown for anxiety, depression, hope and health.

Clinical implications: The results should provide encouragement in the challenging work to develop and deliverer interventions, with the explicit purpose of supporting family members in palliative care.

Place, publisher, year, edition, pages
Örebro universitet, 2012. 271 p.
Keyword
Competence, Family members, Interventions, Palliative care, Preparedness, Rewards, Support groups
National Category
Health Sciences Nursing
Identifiers
urn:nbn:se:esh:diva-1868 (URN)9789176688694 (ISBN)
Available from: 2012-12-27 Created: 2012-12-20 Last updated: 2017-02-14Bibliographically approved

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